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  The Alpha-1 Association Support Group Network is a collective of more than 75 affiliated support groups including four Virtual Support Groups (Alpha-1 Families, Caregivers and Pre and Post Transplants and Alphha-1 Buddies). These groups are committed to improving the quality of life of individuals and their families affected by Alpha-1 and to extending the mission of the Alpha-1 Association. Association Support Groups help people develop an enhanced, healthier sense of personal identity and a connection with the larger Alpha-1 Community. Our Support Groups abide by Guidelines established by a Support Group Leader Advisory Committee, a Board standing committee consisting of seasoned Support Group Leaders. These operating guidelines ensuring the consistency of Support Groups related to educational opportunities, principles of emotional support, confidentiality, and unbiased relationships with industry. If there is not a Support Group in your area and you are interested in organizing one, please contact chorsak@alpha1.org Support Group Leaders listed on this website are for the sole purpose of assisting newly diagnosed Alphas and/or their caregivers in their local areas. Please contact the Alpha-1 Association for any marketing activities at 1-800.521-3025 or by email at: info@alpha1.org. We are happy to discuss all inquiries.
To see a list of non-affiliated Alpha-1 Support Groups, click here. |
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