| 1:00 pm – 5:30 pm | Early Conference Registration |
| 7:30 pm – 8:00 pm | Alpha Angels Reception |
| 8:00 pm – 9:00 pm | Alpha Angels Memorial Service |
| 8:30 am – 10:00 am | Breakfast |
| 8:30 am – 5:00 pm | Registration |
| 10:15 am – 10:40 am | A1F Conference Kickoff: A1F Welcome & Opening Remarks Scott Santarella, President & CEO, Alpha-1 Foundation |
| 10:40 am – 11:40 am | Alpha Empowerment Hour |
| 11:40 am – 12:10 pm | Alpha-1 Research Registry and the A1F Therapeutic Development Network (TDN) Alison Keaveny, Director of Clinical Research, Alpha-1 Foundation Nadine Nuchovich, Clinical Research & Global Manager, Alpha-1 Foundation Michael Campos, MD, Professor of Clinical Medicine at the University of Miami School of Medicine |
| 12:10 pm – 1:00 pm | Platinum Sponsor Presentations AlphaNet, CSL, Grifols, Sanofi, & Takeda |
| 1:00 pm – 2:00 pm | Lunch |
| 2:00 pm – 2:40 pm | Alpha-1 Antitrypsin Deficiency 101: Liver Alyson Fox, Medical Director, Adult Liver Transplant, Columbia University |
| 2:45 pm – 3:25 pm | Alpha-1 Antitrypsin Deficiency 101: Lung Brooks Kuhn, MD, University of California, Davis Medical Center, Sacramento, CA |
| 3:30 pm – 4:10 pm | Advances in Genetic Testing & Understanding the Genetic Risk for Alpha-1 Victor Ortega, MD, PhD, Pulmonary Disease Specialist & Genetic Epidemiologist, Mayo Clinic, Phoenix, AZ |
| 5:30 pm – 6:00 pm | Alpha-1 Kids Room Meet & Greet |
| 7:00 pm – 9:30 pm | Dinner Reception |
| 7:30 am – 9:00 am | Breakfast |
| 8:00 am – 2:00 pm | Registration |
| 9:00 am – 9:45 am | The Future of Alpha-1 Detection Scott Santarella, President & CEO, Alpha-1 Foundation James Stoller, MD, MS, Board Member, Alpha-1 Foundation and AlphaDetect Julie Murray, President & CEO, AlphaDetect |
| 9:45 am –10:45 am | Alpha-1 Research Panel Moderated by: Brad Drummond, MD, Associate Professor of Medicine, Director, Alpha-1 Clinic at the University of North Carolina at Chapel Hill Igor Barjaktarevic, MD, PhD, Medical Director, COPD Program, David Geffen School of Medicine at University of California, Los Angeles (UCLA) Arpan Mohanty, MD, MSc, Director of Clinical Research, Boston Medical Center Jeffrey Teckman, MD, Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital J. Michael Wells, MD, Medical Director UAB, Alpha-1 Pulmonary CRC, Associate Professor, Division of Pulmonary, Allergy, and Critical Care Medicine Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation |
| 10:45 am – 11:05 am | Research & Clinical Trials 101 Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation |
| 11:05 am – 11:20 am | Break |
| 11:20 am – 12:50 pm | Emerging Therapies in Alpha-1 Introduced by: Jon Hagstrom, Board Chair, Alpha-1 Foundation Moderated by: Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation |
| 1:00 pm – 2:00 pm | Lunch & Exhibits |
| Time | Track 1 | Track 2 | Track 3 |
| 2:00 pm – 2:35 pm | The Benefits of Pulmonary Rehab, Practical Breathing Tools, and PFT Insights Rajat Suri, MD Professor of medicine in the Division of Pulmonary, Critical Care, Sleep Medicine, and Physiology at UC San Diego School of Medicine | What’s New in Alpha-1 Research? Charlie Strange, MD Professor of Pulmonary & Critical Care Medicine, Medical University of South Carolina | Alpha-1 Pediatric Research – What’s New and What’s on the Horizon Jeffrey Teckman, MD Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital |
| 2:40 pm – 3:15 pm | Advanced Lung Disease and Preparing for a Lung Transplant Rajat Walia, MD Division Chief of the Pulmonary and Critical Care Section, the Division Chief of Pulmonary Medicine, Division Chief, Pulmonary Disease, and the Medical Director of Lung Transplantation at Norton Thoracic Institute, St. Joseph’s Hospital and Medical Center | Understanding the Importance of Clinical Trials Alice Turner, MBChB, PhD, Board Member, Alpha-1 Foundation | Ask The Expert: Alpha-1 Pediatric Liver Q&A Jeffrey Teckman, MD Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital |
| 3:15 pm – 3:35 pm | Break | ||
| 3:35 pm – 4:10 pm | Alpha-1 Liver Transplant: Basics, Latest Techniques, and What You Need to Know Jason Hawksworth, MD, Surgical Director of Adult Liver Transplant, Columbia University | The Big Fat Reference Guide (BFRG) by AlphaNet Charlie Strange, MD – Medical Director, AlphaNet Robert Sandhaus, MD, PhD, FCCP – Executive Vice President and Senior Medical Director, AlphaNet Christine Lanser Yllanes – Vice President of Marketing and Strategic Engagement, AlphaNet Kristen Holm, PhD, MPH – Clinical Research Director, AlphaNet | Alpha-1 Pediatric Liver 101 Rohit Kohli, MBBS, MS Chief, Division of Gastroenterology, Hepatology, and Nutrition Associate Director, The Saban Research Institute and Clinical Scholar and Professor of Pediatrics, Keck School of Medicine of USC |
| 4:15 pm – 4:50 pm | Breathing Life into Policy – Why You Should Engage in Advocacy Miriam O’Day Senior Policy Advisor, Alpha-1 Foundation | Current and New Therapies in Alpha-1 Lung: Asthma, Bronchiectasis, & Emphysema Oliver McElvaney, MD, PhD, MRCPI Division of Pulmonary and Critical Care Medicine, University of Washington | Fatty Liver Disease in Children Rohit Kohli, MBBS, MS Chief, Division of Gastroenterology, Hepatology, and Nutrition, Associate Director, The Saban Research Institute, and Clinical Scholar and Professor of Pediatrics, Keck School of Medicine of USC |
| 7:30 pm – 9:30 pm | Dinner Reception |
| 9:00 am – 10:30 am | Farewell Brunch |
Return to the main Alpha-1 National Conference page for venue, travel, and accomodation details.
