Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested more than $92 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$92M

in research funded

128

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Step Forward for Alpha-1 Denver Walk & Picnic

Alphas, friends, and family came together on August 6, 2023 for the Step Forward for Alpha-1 Colorado Walk and Picnic. […]

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September 7, 2023
Fraughen Blue Paper Published in the latest issue of the American Journal of Respiratory and Critical Care Medicine

Augmentation Therapy For Severe Alpha-1 Antitrypsin Deficiency Improves Survival And Is Decoupled From Spirometric Decline- A Multi-National Registry Analysis Authors: […]

Read More… from Fraughen Blue Paper Published in the latest issue of the American Journal of Respiratory and Critical Care Medicine

August 31, 2023
Alpha-1: Best practices for testing for this and other late-onset genetic diseases

Kenneth Irvine of the Alpha-1 Foundation spoke with Geoff Case of RARE Revolution Magazine about the organization’s research efforts. Kenneth […]

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August 31, 2023
Alpha-1 Parent completes Ironman triathlon in honor of Alpha Son

Craig Hazelden, Alpha-1 Kid parent, set out to do an Ironman triathlon in Bolton, England to raise funds for the […]

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August 7, 2023
Salazar Introduces Legislation to Expand Home Infusions for Medicare Beneficiaries with Alpha-1

WASHINGTON, D.C. – Reps. María Elvira Salazar (R-FL) and Chellie Pingree (D-ME) have reintroduced the John W. Walsh Alpha-1 Home Infusion Act. If passed, […]

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August 3, 2023
Traveling as an Alpha

Your questions answered by Skip Scribner, NREMT-P, President at Advanced Aeromedical, Inc.   Q: How do I travel on airplanes […]

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June 26, 2023
2023 Alpha-1 National Conference Recap

The Alpha-1 Foundation recently held the highly anticipated 2023 Alpha-1 National Conference “Blazing the Trail Together for Alpha-1” in Dallas, […]

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June 22, 2023
2023 Alpha-1 Grant Awards Reception

“One of my primary goals is to bring new, young investigators into the Alpha-1 research community to ensure that we […]

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May 26, 2023
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SPOTLIGHT

Scientific Director Dr. Wilson's 10th Escape to the Cape with his Boston University (BU) team

This year, he will captain his largest team with over 20 investigators focusing on Alpha-1 research. Alpha and patient Karin Pittsley is joining the team, returning for her 2nd year as a volunteer.

Karin says, “This year, I am honored to be part of Dr. Wilson’s team at BU. He and his team are leading research and working toward finding a cure for Alpha-1. While a few promising and less invasive treatments are on the horizon, the current treatment continues to be weekly infusions. Your donation will help support research to find a cure.” You can join Team Alpha-1 virtually by participating in Riding for a Reason during September.

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