Kenneth Irvine of the Alpha-1 Foundation spoke with Geoff Case of RARE Revolution Magazine about the organization’s research efforts. Kenneth […]
Read More… from Alpha-1: Best practices for testing for this and other late-onset genetic diseases
Donald Helms hosted his first Building Friends for A Cure Event (BFC) Golf Tournament in honor of the one-year anniversary […]
Craig Hazelden, Alpha-1 Kid parent, set out to do an Ironman triathlon in Bolton, England to raise funds for the […]
Read More… from Alpha-1 Parent completes Ironman triathlon in honor of Alpha Son
WASHINGTON, D.C. – Reps. María Elvira Salazar (R-FL) and Chellie Pingree (D-ME) have reintroduced the John W. Walsh Alpha-1 Home Infusion Act. If passed, […]
Your questions answered by Skip Scribner, NREMT-P, President at Advanced Aeromedical, Inc. Q: How do I travel on airplanes […]
The Alpha-1 Foundation recently held the highly anticipated 2023 Alpha-1 National Conference “Blazing the Trail Together for Alpha-1” in Dallas, […]
“One of my primary goals is to bring new, young investigators into the Alpha-1 research community to ensure that we […]
The Alpha-1 Foundation is proud to announce the inaugural recipients of the 2023 Ab Rees Fast Track Grants. Congratulations to […]
Read More… from Announcement of the 2023 Ab Rees Fast Track Grants
Justis Frank a junior at Palmetto Senior High School in Miami, Florida organized a fundraising event to benefit the Alpha-1 […]
ACTION ALERT! May 16, 2023 The debt ceiling could hit as early as June 1, 2023 and there is a […]
Read More… from Your Help is Needed…. Act Now! Debt Ceiling Action Alert
The Alpha-1 Foundation signed on with other member organizations of the All Copays Count Coalition in support for the HELP […]
Now available in the U.S., this free, innovative genetic health risk service lets consumers screen for their risk of alpha1-antitrypsin […]
Every year, Accessia Health works to ensure we are optimizing our program offerings to best serve the needs of our […]
Read More… from Exciting improvements are coming to Accessia Health patient assistance!
Join the Alpha-1 Foundation for a free, live Continuing Medical Education (CME) event in partnership with Cleveland Clinic and Medscape […]
Read More… from Thursday, April 27th: Free CME Livestream on AATD
Clinical trials are an important part of clinical research and at the heart of all medical advances. Without them, we […]
SOUTH HAMILTON – Sheila L. Favazza, 75, of Forest Street, died Saturday, April 15, 2023, in the Brigham and Women’s […]
Read More… from The Alpha-1 Community Mourns the loss of Alpha, Sheila Favazza
FOR IMMEDIATE RELEASE April 6, 2023 – The Alpha-1 Global 5th International Research Conference and the 8th Patient Congress will […]
“Mary has been an incredible role model in our Alpha-1 community, we wish her continued good health in her retirement. […]
Read More… from Alpha, Mary Pierce celebrates 30-year anniversary of lung transplant
The Fiscal Years 2023–2027 NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA) (the Plan) articulates NIH’s commitment to embracing, strengthening, […]
Read More… from NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA)
On this St. Patrick’s Day, we are lucky and grateful for the outstanding commitment of the Alpha-1 community. Over 235 […]
Read More… from Celtic Connection honors Dr. James K. Stoller with Shillelagh Award
We are writing to let you know that there is a nationwide shortage of albuterol. Albuterol is used to treat […]
Read More… from Nationwide Albuterol Shortage: What you need to know
The 14th Annual Celtic Connection will take place this weekend on Saturday, March 11th in Boston, Massachusetts. For the first time […]
Read More… from Get ready for the 2023 Celtic Connection- Saturday, March 11th
Today, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together […]
Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]
Read More… from CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD
