Download a PDF of the 2024 A1F Conference Agenda here.
| A1F Registration 9:00 am – 5:00 pm Registration Exhibit Hall 12:30 – 5:00 pm Symphony 1 Refreshments available Grand Opening 12:30 pm – 1:30 pm | A1F Photo Booth 1:30 – 6:30 pm Picasso Foyer A1F Theater 9:00 am – 6:30 pm Picasso Take a popcorn break and watch A1F and Alpha-1 videos throughout the conference. | ||
| 9:00am – 10:00am | Breakfast Concerto | ||
| 10:00 am – 10:15 am | A1F Welcome & Day 1 Opening Remarks Symphony 2-4 Scott Santarella, President & CEO, Alpha-1 Foundation Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation | ||
| 10:15 am – 11:15 am | Alpha Empowerment Hour Symphony 2-4 | ||
| 11:15 am – 11:45 am | Alpha-1 Research Registry & Patient Presentation Symphony 2-4 | ||
| 11:45 am – 12:30 pm | Platinum Sponsor Presentations Symphony 2-4 AlphaNet | Charlie Strange, MD, Medical Director CSL Behring | Tim Kanter, General Manager, CSL Vifor US & Shannen Silvestrini, Director, Marketing-Established Products Group Grifols | Chris Healey, President at Grifols Shared Services North America Takeda | Dan Spivak, Head of Alpha-1 Franchise | ||
| 12:30 pm – 1:30 pm | Exhibit Hall Grand Opening Symphony 1 Enjoy MIAMI inspired sounds and bites! | ||
| 1:30 pm – 2:30 pm | Lunch Concerto | ||
| Track 1 Symphony 4 | Track 2 Symphony 2-3 | ||
| 2:30 pm | Alpha-1 Antitrypsin Deficiency 101: Lung Robert Sandhaus, MD, PhD, FCCP Clinical Director, Alpha-1 Foundation | The Power is in You: Programs, Services, & Get Involved Track Come enjoy an ice cream bar and learn how you can make a difference in the Alpha-1 community. Meet Alpha-1 rockstars and volunteers who have been involved in the community and make a difference every day. | |
| 3:00 pm | Alpha-1 Antitrypsin Deficiency 101: Liver Jeffrey Teckman, MD Professor of Pediatrics and Biochemistry, Saint Louis University | ||
| 3:30 pm | The ChiLDReN StudyPublished New Findings Jeffrey Teckman, MD | ||
| 4:00 pm | Q&A Session Physician Panel: Jeanine D’Armiento, MD, PhD, Medical Liaison, Alpha-1 Foundation Robert Sandhaus, MD, PhD, FCCP Jeffrey Teckman, MD | ||
| 5:00 pm – 5:30 pm | Alpha-1 Kids Room Meet & Greet We invite Alpha-1 parents to join Alpha-1 Foundation staff and Dr. Jeffrey Teckman for an informal meet & greet. | ||
| 6:30 pm – 8:30 pm Symphony 2-4 | Dinner Reception & Entertainment A MIAMI inspired evening with A1F! Enjoy Miami inspired food stations, drinks and a personal appearance by some of Miami’s most famous. | ||
| A1F Registration 8:00 am – 2:00 pm Registration Exhibit Hall 8:00 am – 5:00 pm Symphony 1 | Alpha-1 Kids Room 8:30 am – 12:30 pm (closed during lunch) 2:00 pm – 5:00 pm Tenor | A1F Photo Booth 2:00 – 7:00 pm Picasso Foyer A1F Theater 8:00 am – 7:00 pm Picasso Take a break and watch A1F and Alpha-1 videos throughout the conference. | |
| 7:30 am – 9:00 am | Breakfast Concerto | ||
| 8:00 am – 8:45 am | Alpha Angels Memorial Service Symphony 2-4 | ||
| 9:00 am – 9:15 am | Day 2 Opening Remarks Symphony 2-4 Scott Santarella, President & CEO, Alpha-1 Foundation | ||
| 9:15 am – 9:30 am | The Alpha-1 Foundation’s Research Agenda Symphony 2-4 Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation | ||
| 9:30 am – 10:30 am | Alpha-1 Research Panel Symphony 2-4 Moderated by: Monica Goldklang, MD Michael Campos, MD Jeanine D’Armiento, MD, PhD Nitika Gupta, MD Jeffrey Teckman, MD Mike Wells, MD Andrew Wilson, MD | ||
| 10:30 am – 12:30 pm | Emerging Therapies in Alpha-1 Symphony 2-4 Moderated by: Andrew Wilson, MD and Darrell Kotton, MD 10:30 – 10:35 | Introduction 10:35 – 10:50 | Beam Therapeutics Update to Beam’s clinical development program using base editing as a potential therapeutic approach to Alpha-1 Antitrypsin Deficiency | Nicolas Currier, MD, PhD, Senior Medical Director 10:50 – 11:05 | BioMarin Pharmaceutical BioMarin’s research program in Alpha-1 Antitrypsin Deficiency (AATD) | Suresh Agarwal, Director, Clinical Pharmacology 11:05 – 11:20 | Inhibrx INBRX-101: ElevAATing Clinical Development in AATD | Erin Babcock, Director of Clinical Science 11:20 – 11:35 | Korro Bio KRRO-110, a RNA Editing Modality for the Treatment of Alpha-1 Antitrypsin Deficiency | Kemi Olugemo, MD, FAAN, Chief Medical Officer 11:35 – 11:50 | Takeda The Redwood Study: Explore a New Path for Alpha-1 Liver Disease | Sylvester Uwumarogie, MD, MSc, Associate Medical Director, Global Medical Affairs-GI New Programs 11:50 – 12:05 | Wave Life Sciences RNA Editing for the Treatment of Alpha-1 Antitrypsin Deficiency | Amy Donner, PhD. Vice President, Head of Medical Communications 12:05 – 12:30 | Q&A Panel | ||
| 12:30 pm – 2:00 pm | Lunch & Exhibits Concerto / Symphony 1 | ||
| Afternoon Breakout Sessions | |||
| Track 1 Symphony 2 | Track 2 Symphony 3 | Track 3 Symphony 4 | |
| 2:00 pm – 2:35 pm | Pre & Post Transplant Process Juan Salgado, MD Associate Professor of Medicine, Transplant Pulmonologist, Director for the Lung Transplantation Fellowship, University of Miami Miller School of Medicine | MZ Presentation Mike Wells, MD Critical Care Medicine, Pulmonology, University of Alabama at Birmingham | Diagnosed: What Do I Do Now? Series Having a Young Child Diagnosed with Alpha-1 Jean P. Molleston, MD Professor of Clinical Pediatrics, Division Chief, Pediatric Gastroenterology, Hepatology & Nutrition, Indiana University School of Medicine |
| 2:40 pm – 3:15 pm | Everyday Living as an Alpha Monica Goldklang, MD Assistant Professor of Medicine (in Anesthesiology), Center for LAM and Rare Lung Diseases | Navigating Life with Oxygen Moderator: Skip Scribner Patient Panel Debbi Webb Howell DC Young | Having an Adolescent Diagnosed with Alpha-1 Nitika Arora Gupta MD, DCH, DNB, MRCPCH(UK) FAASLD Medical Director, Liver transplant and Hepatology Director-Liver Transplant Teen Transition Program, Professor of Pediatrics, Emory University School of Medicine, Children’s Healthcare of Atlanta |
| 3:15 pm – 3:35 pm | Break | ||
| 3:35 pm – 4:10 pm | Sleep Apnea Kori Ascher, MD Assistant Professor of Clinical Medicine, Division of Pulmonary, Critical Care, and Sleep Medicine, University of Miami Health System | Valve Options Moderator: D. Kyle Hogarth, MD, FCCP Patient Panel Craig Hamilton Lisa Kosak | Transition of Care: Adolescent to Adult Alpha Nitika Arora Gupta, MD, DCH, DNB, MRCPH(UK), FAASLD |
| 4:15 pm – 4:50 pm | How to Advocate for Yourself as an Alpha-1 Patient Michael Campos, MD Professor of Clinical Medicine, University of Miami School of Medicine | Policy & Advocacy Moderator: Jeanne Kushner Patient Panel Daniel Grimm Jennifer Jopp Lisa Kosak | Alpha-1 Kid Success Stories Moderator: Jeffrey Teckman, MD Patient Panel: Bianca Castillo Chase Castillo Catriona Garry |
| 7:00 pm – 9:00 pm | GLOW PARTY Dinner Reception & Entertainment Symphony 2-4 See you at the GLOW PARTY! Enjoy downtown Miami fusion inspired food stations, GLOW inspired entertainment, and drinks. Fun giveaways throughout the evening and the exhibitor passport raffle. | ||
| 9:00 am – 11:00 am | Bring You Back 2025 Beach Bash Brunch Soundgarden |
| A farewell breakfast celebration you won’t want to miss! Bring your conference tote to brunch so you can fill your beach bag for 2025 with fun items. Take a video at the 360-photo booth, and don’t miss your opportunity to win a trip to Disney! |
Return to the main Alpha-1 National Conference page for venue, travel, and accomodation details.
