2024 Alpha-1 National Conference Agenda

Download a PDF of the 2024 In-Person A1F Conference Agenda here.

View the virtual 2024 A1F Conference Agenda here.

A1F Registration 
9:00 am – 5:00 pm 
Registration 

 Exhibit Hall 
12:30 – 5:00 pm 
Symphony 1 
Refreshments available 
Grand Opening 
12:30 pm – 1:30 pm 
A1F Photo Booth 
1:30 – 6:30 pm 
Picasso Foyer 

A1F Theater 
9:00 am – 6:30 pm 
Picasso 
Take a popcorn break and watch A1F
and Alpha-1 videos throughout the conference. 
9:00am

10:00am
Breakfast 
Concerto
10:00 am
– 
10:15 am
A1F Welcome & Day 1 Opening Remarks
Symphony 2-4
Scott Santarella, President & CEO, Alpha-1 Foundation 
Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation 
10:15 am

11:15 am
Alpha Empowerment Hour
Symphony 2-4
11:15 am

11:45 am
Alpha-1 Research Registry & Patient Presentation
Symphony 2-4
11:45 am

12:30 pm
Platinum Sponsor Presentations
Symphony 2-4
AlphaNet | Charlie Strange, MD, Medical Director 
CSL Behring | Tim Kanter, General Manager, CSL Vifor US & Shannen Silvestrini, Director, Marketing-Established Products Group 
Grifols | Chris Healey, President at Grifols Shared Services North America 
Takeda | Dan Spivak, Head of Alpha-1 Franchise 
12:30 pm

1:30 pm
Exhibit Hall Grand Opening
Symphony 1
Enjoy MIAMI inspired sounds and bites! 
1:30 pm

2:30 pm
Lunch
Concerto
Track 1
Symphony 4
Track 2
Symphony 2-3
2:30 pmAlpha-1 Antitrypsin Deficiency 101: Lung
Robert Sandhaus, MD, PhD, FCCP
Clinical Director, Alpha-1 Foundation



The Power is in You:
Programs, Services, &
Get Involved Track  


Come enjoy an ice cream bar and learn how
you can make a difference in the Alpha-1 community. 

Meet Alpha-1 rockstars and volunteers who
have been involved in the community and
make a difference every day. 
3:00 pmAlpha-1 Antitrypsin Deficiency 101: Liver
Jeffrey Teckman, MD 
Professor of Pediatrics and Biochemistry, Saint Louis University 
3:30 pmThe ChiLDReN StudyPublished New Findings
Jeffrey Teckman, MD
4:00 pmQ&A Session
Physician Panel: 
Jeanine D’Armiento, MD, PhD, Medical Liaison,
Alpha-1 Foundation 
Robert Sandhaus, MD, PhD, FCCP 
Jeffrey Teckman, MD 
5:00 pm – 5:30 pmAlpha-1 Kids Room Meet & Greet
We invite Alpha-1 parents to join Alpha-1 Foundation staff and Dr. Jeffrey Teckman for an informal meet & greet.
6:30 pm – 8:30 pm
Symphony 2-4
Dinner Reception & Entertainment
A MIAMI inspired evening with A1F! Enjoy Miami inspired food stations, drinks and a personal appearance by some of Miami’s most famous. 
A1F Registration 
8:00 am – 2:00 pm 
Registration 

Exhibit Hall 
8:00 am – 5:00 pm 
Symphony 1 
Alpha-1 Kids Room 
8:30 am – 12:30 pm 
(closed during lunch) 
2:00 pm – 5:00 pm 
Tenor 
A1F Photo Booth 
2:00 – 7:00 pm 
Picasso Foyer 

A1F Theater 
8:00 am – 7:00 pm 
Picasso 
Take a break and watch A1F
and Alpha-1 videos throughout the conference. 
7:30 am

9:00 am
Breakfast
Concerto
8:00 am

8:45 am
Alpha Angels Memorial Service
Symphony 2-4
9:00 am

9:15 am
Day 2 Opening Remarks
Symphony 2-4
Scott Santarella, President & CEO, Alpha-1 Foundation 
9:15 am

9:30 am
The Alpha-1 Foundation’s Research Agenda
Symphony 2-4
Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation 
9:30 am

10:30 am
Alpha-1 Research Panel
Symphony 2-4
Moderated by: Monica Goldklang, MD 
Michael Campos, MD 
Jeanine D’Armiento, MD, PhD 
Nitika Gupta, MD 
Jeffrey Teckman, MD 
Mike Wells, MD 
Andrew Wilson, MD 
10:30 am

12:30 pm
Emerging Therapies in Alpha-1
Symphony 2-4
Moderated by: Andrew Wilson, MD and Darrell Kotton, MD
10:30 – 10:35 | Introduction
10:35 – 10:50 | Beam Therapeutics
BEAM-302 : Base editing as a potential therapeutic approach for Alpha-1 Antitrypsin Deficiency (Alpha-1) | Nicolas Currier, MD, PhD, Senior Medical Director
10:50 – 11:05 | BioMarin Pharmaceutical
BioMarin’s research program in Alpha-1 Antitrypsin Deficiency (AATD) | Suresh Agarwal, Director, Clinical Pharmacology
11:05 – 11:20 | Inhibrx
INBRX-101: ElevAATing Clinical Development in AATD | Erin Babcock, Director of Clinical Science
11:20 – 11:35 | Korro Bio
KRRO-110, a RNA Editing Modality for the Treatment of Alpha-1 Antitrypsin Deficiency | Kemi Olugemo, MD, FAAN, Chief Medical Officer
11:35 – 11:50 | Takeda
The Redwood Study: Explore a New Path for Alpha-1 Liver Disease | Sylvester Uwumarogie, MD, MSc, Associate Medical Director, Global Medical Affairs-GI New Programs
11:50 – 12:05 | Wave Life Sciences
RNA Editing for the Treatment of Alpha-1 Antitrypsin Deficiency | Amy Donner, PhD. Vice President, Head of Medical Communications
12:05 – 12:30 | Q&A Panel
12:30 pm

2:00 pm
Lunch & Exhibits
Concerto / Symphony 1
Afternoon Breakout Sessions
  Track 1
Symphony 2
  Track 2
Symphony 3
  Track 3
Symphony 4
2:00 pm

2:35 pm
Pre & Post 
Transplant Process 
Juan Salgado, MD 
Associate Professor of Medicine,
Transplant Pulmonologist, Director for
the Lung Transplantation Fellowship,
University of Miami Miller School of Medicine 

MZ Presentation 
Mike Wells, MD 
Critical Care Medicine, Pulmonology,
University of Alabama at Birmingham 
Diagnosed: What Do I Do Now? Series 
Having a Young Child Diagnosed with Alpha-1 
Jean P. Molleston, MD 
Professor of Clinical Pediatrics, Division
Chief, Pediatric Gastroenterology,
Hepatology & Nutrition, Indiana University
School of Medicine 
2:40 pm

3:15 pm
Everyday Living as an Alpha 
Monica Goldklang, MD 
Assistant Professor of Medicine
(in Anesthesiology), Center for LAM
and Rare Lung Diseases 
Navigating Life with Oxygen 
Moderator: 
Skip Scribner 

Patient Panel 
Debbi Webb Howell 
DC Young 
Having an Adolescent Diagnosed with Alpha-1 
Nitika Arora Gupta MD, DCH,
DNB, MRCPCH(UK) FAASLD 
Medical Director, Liver transplant and
Hepatology Director-Liver Transplant Teen
Transition Program, Professor of
Pediatrics, Emory University School of
Medicine, Children’s Healthcare of Atlanta 
3:15 pm

3:35 pm

Break
3:35 pm

4:10 pm
Sleep Apnea 
Kori Ascher, MD 
Assistant Professor of Clinical Medicine,
Division of Pulmonary, Critical Care,
and Sleep Medicine, University of Miami
Health System 
Valve Options 
Moderator: 
D. Kyle Hogarth, MD, FCCP 
Patient Panel 
Craig Hamilton 
Lisa Kosak 
Siobhan Lestina
Transition of Care: 
Adolescent to Adult Alpha 
Nitika Arora Gupta, MD, DCH,
DNB, MRCPH(UK), FAASLD 
4:15 pm

4:50 pm
How to Advocate for
Yourself as an Alpha-1 Patient 
Michael Campos, MD 
Professor of Clinical Medicine, University
of Miami School of Medicine 
Policy & Advocacy 
Moderator: 
Jeanne Kushner 
Patient Panel 
Daniel Grimm 
Jennifer Jopp 
Lisa Kosak 
Alpha-1 Kid Success Stories 
Moderator: 
Jeffrey Teckman, MD 
Patient Panel: 
Bianca Castillo 
Chase Castillo 
Catriona Garry 
7:00 pm

9:00 pm
GLOW PARTY Dinner Reception & Entertainment 
Symphony 2-4 
See you at the GLOW PARTY!
Enjoy downtown Miami fusion inspired food stations, GLOW inspired entertainment, and drinks.
Fun giveaways throughout the evening and the exhibitor passport drawing.
9:00 am

11:00 am
Bring You Back 2025 Beach Bash Brunch
Soundgarden
A farewell breakfast celebration you won’t want to miss!
Bring your conference tote to brunch so you can fill your beach bag for 2025 with fun items.
Take a video at the 360-photo booth, and don’t miss your opportunity to win a trip to Disney!

Return to the main Alpha-1 National Conference page for venue, travel, and accomodation details.