Alpha-1 Kids

The Alpha-1 Kids Program provides information and resources for families of Alpha infants, children, and teens, as well as young adults transitioning to independent care. 

• Alpha-1 Foundation Patient Information Line is available Monday–Friday, from 9 AM to 5 PM ET, to help parents find Alpha-1 experts, locate resources, and answer Alpha-1-related questions. Call 1-800-245-6809

• Alpha-1 Foundation Peer Guide Program links parents of newly diagnosed Alphas with other parents of Alphas, who can help them navigate life with the condition 

• The Parents of Alpha-1 Kids Virtual Support Group brings together families with Alpha-1 to share experiences and offer support. For more information about this support group, contact one of the following leaders:
  • Chelsea Boring: 1-402-570-0702, or chelseaboring1@hotmail.com
  • Erin Carr: 1-336-455-1400, or erincarr627@gmail.com
  • Nora Kemmerer: 1-402-575-8774, or norakemmerer@hotmail.com

• A certified genetic counselor through the Alpha-1 Foundation’s Genetic Counseling Program can answer all questions regarding Alpha-1, its genetic implications, and considerations for additional family testing. Call 1-855-476-1227

• The Robert Seigman Memorial Scholarship Fund provides travel scholarships to families attending the Alpha-1 Foundation’s annual Alpha-1 National Conference. To apply for a scholarship, email Cathey Henderson at chenderson@alpha1.org