Top Stories

May 14, 2026

Beam Therapeutics Supports AlphaDetect to Accelerate Detection of Alpha-1

The sponsorship helps expand proven strategies to consistently detect a genetic, irreversible, and progressive condition in patients with liver and/or […]

May 8, 2026

Sanofi Supports AlphaDetect to Accelerate Detection of Alpha-1

The sponsorship helps expand proven Alpha-1 detection strategies, which will enable earlier patient identification Durham, NC – May 6, 2026 […]

May 5, 2026

April 2026 PubMed Articles

The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]

April 27, 2026

29th Gordon L. Snider Critical Issues Workshop: “Alpha-1 Foundation Research Infrastructure: Building for the Future.”

On Friday, April 17, 2026, the Alpha-1 Foundation (A1F) hosted the 29th Gordon L. Snider Critical Issues (GLS) Workshop: “Alpha-1 Foundation […]

April 25, 2026

EU Alpha-1 Awareness Day 2026

April 25, 2026 marks the ninth annual European Alpha-1 Awareness Day led by the Alpha-1 Europe Alliance, a date in which those afflicted with […]

April 17, 2026

A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH

The Alpha-1 Foundation (A1F) joined the 95 undersigned organizations, including patient advocacy groups, professional scientific and medical societies are profoundly […]

April 7, 2026

March 2026 PubMed Articles

The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]

April 3, 2026

The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud

It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]

March 27, 2026

A1F Building Friends for a Cure Training: A Weekend of Growing Together

Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]

March 25, 2026

Beam Therapeutics Announces Update on BEAM-302

FOR IMMEDIATE RELEASE: Beam Therapeutics announced compelling updated clinical data from the ongoing Phase 1/2 trial of BEAM-302 in Alpha-1 […]

March 17, 2026

The Celtic Connection 2026

Happy St. Patrick’s Day! The Alpha-1 Foundation has been celebrating St. Patrick’s Day as a community since 2008. Over 300 guests joined together […]

March 13, 2026

2025 Alpha-1 Educational Scholarships

Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]

March 3, 2026

Alpha-1 antitrypsin deficiency: A persistently underrecognized condition

Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]

March 3, 2026

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]

March 2, 2026

RARE DISEASE DAY 2026

Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]

February 2026 PubMed Articles

The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]

February 27, 2026

Medicare Drug Price Negotiation Program Engagement Opportunities

As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]

February 26, 2026

‘Substantially underdiagnosed’: Expert consensus moves to redefine rare liver disease

“The continuation of achieving our goals hinges on detecting, testing, finding and helping every Alpha. We have increased our efforts […]

February 23, 2026

FDA Launches Framework for Accelerating Development of Individualized Therapies for Ultra-Rare Diseases

FDA NEWS RELEASE The U.S. Food and Drug Administration today issued draft guidance for sponsors seeking approval for targeted individualized […]

February 3, 2026

Wave Life Sciences Announces Plans to Accelerate Regulatory Engagement with Full Control of WVE-006 for Alpha-1 Antitrypsin Deficiency

“We are thrilled with Wave Life Sciences commitment to the Alpha-1 patient community. Their acceleration of regulatory engagement of the […]

February 2, 2026

January 2026 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

January 16, 2026

Tessera Therapeutics Announces FDA Clearance of IND Application for its Lead In Vivo Gene Editing Program TSRA-196 for AATD

PRESS RELEASE SOMERVILLE, Mass., January 12, 2026 /GLOBE NEWSWIRE/ Tessera Therapeutics, the biotechnology company pioneering a new approach in genetic […]

January 7, 2026

December 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

December 19, 2025

Alpha-1 Global Meeting held in Argentina

The second Latin American Alfa-1 Meeting titled “Consolidando avances, ampliando horizontes”, (“Consolidating Advances, Expanding Horizons”) was held on December 10, 2025, in Buenos Aires, Argentina. Organized by Alfa1 Argentina and supported by […]

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Top Stories

Beam Therapeutics Supports AlphaDetect to Accelerate Detection of Alpha-1

Sanofi Supports AlphaDetect to Accelerate Detection of Alpha-1

April 2026 PubMed Articles

29th Gordon L. Snider Critical Issues Workshop: “Alpha-1 Foundation Research Infrastructure: Building for the Future.”

EU Alpha-1 Awareness Day 2026

A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH

March 2026 PubMed Articles

The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud

A1F Building Friends for a Cure Training: A Weekend of Growing Together

Beam Therapeutics Announces Update on BEAM-302

The Celtic Connection 2026

2025 Alpha-1 Educational Scholarships

Alpha-1 antitrypsin deficiency: A persistently underrecognized condition

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

RARE DISEASE DAY 2026

February 2026 PubMed Articles

Medicare Drug Price Negotiation Program Engagement Opportunities

‘Substantially underdiagnosed’: Expert consensus moves to redefine rare liver disease

FDA Launches Framework for Accelerating Development of Individualized Therapies for Ultra-Rare Diseases

Wave Life Sciences Announces Plans to Accelerate Regulatory Engagement with Full Control of WVE-006 for Alpha-1 Antitrypsin Deficiency

January 2026 PubMed Articles

Tessera Therapeutics Announces FDA Clearance of IND Application for its Lead In Vivo Gene Editing Program TSRA-196 for AATD

December 2025 PubMed Articles

Alpha-1 Global Meeting held in Argentina

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