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November is Alpha-1 Awareness Month, and supporters across the country are already taking action to raise awareness, support research, advocate […]
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
Researchers from institutions across the United States, United Kingdom, Ireland, and Australia gathered this October for the 2026 Alpha-1 Foundation […]
Read More… from International Researchers Gather for Alpha-1 Foundation Investigators’ Meeting
The Alpha-1 Foundation (A1F) is proud to recognize November as Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 […]
Read More… from November Is Alpha-1 Awareness Month: The Future of Alpha-1 Is You
The U.S. Food and Drug Administration, a division within the U.S. Department of Health and Human Services (HHS), today announced […]
Read More… from FDA Launches Initiative to Advance Rare Disease Drug Development
For the third consecutive year, Team Alpha-1 joined the American Lung Association (ALA) Gulf Coast Bike Trek, in Dunedin, Florida […]
Creating viable permanent cures for genetic disease has proved challenging, but some promising treatments are coming. By Gary Sernovitz Three years […]
From September 25–27, riders and volunteers joined the Alpha-1 Foundation’s (A1F) Team Alpha-1 and the American Lung Association (ALA) in […]
Read More… from A1F Riding for a Reason 2026: Community, Commitment, and Resilience on Cape Cod
Behind every plasma-derived therapy are hundreds of generous donors. A person with Alpha-1 Antitrypsin Deficiency (Alpha-1) needs about 900 plasma […]
Read More… from A1F honors International Plasma Awareness Week 2026
The Alpha-1 Foundation (A1F) welcomed researchers, clinicians, Alpha-1 Support Group Leaders, and A1F leadership to Miami, Florida, for the biennial […]
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
The Alpha-1 Foundation (A1F) hosted the 30th Gordon L. Snider (GLS) Critical Issues Workshop on September 10th in Barcelona, Spain. […]
Read More… from A1F Hosts the 30th Gordon L. Snider Critical Issues Workshop in Barcelona
There is something powerful about patient advocates coming together with a shared purpose. On September 15th, Alpha-1 Foundation (A1F) advocates brought their Alpha-1 […]
Read More… from A1F Advocacy in Action: A Successful Day on Capitol Hill
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
Debbi Webb-Howells, an A1F Support Group Leader, wrote an article published in the Richmond Times-Dispatch highlighting the importance of supplemental […]
Read More… from Living with Alpha-1 and Supplemental Oxygen: Why We Need the SOAR Act
Karin Pittsley, an Alpha-1 advocate for the Alpha-1 Foundation, wrote an article published in Reporter Today highlighting the importance of […]
Read More… from How the SOAR Act Can Help Patients Breathe Easier
For Kristen Mehan of Eagle County, Colorado, the impact of Alpha-1 Antitrypsin Deficiency (Alpha-1) is deeply personal. After watching someone […]
Read More… from In Honor of Her Father: Kristen Mehan Climbs 29,029 Feet for the Alpha-1 Community
It is with great sadness that we remember Arran, a member of the Alpha-1 Global community (and Alpha-1 advocate), whose life […]
Read More… from The Alpha-1 Community Remembers Arran Strong
Behind every Ice Cream for Alpha-1 fundraiser there is a story of hope, resilience, and community. While each participant’s journey is unique, […]
Read More… from Ice Cream for Alpha-1 2026 Summer Fundraisers
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
From July 8-13, 2026, the Alpha-1 Foundation (A1F) participated in Asociación Latinoamericana de Tórax (ALAT) 19th Congress in Cartagena, Colombia. The ALAT Congress is the […]
Read More… from Asociación Latinoamericana de Tórax (ALAT) 19th Congress
The Alpha-1 Foundation (A1F) is proud to announce that its abstract review titled “Alpha-1 Foundation Research Registry: Highlighting Pulmonary Manifestations among Patients […]
Dan Coffin shared with Bowling Green Daily News in Kentucky the importance of the SOAR (Supplemental Oxygen Access Reform) Act […]
Read More… from How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin
The third annual Big Red Alphas Ice Cream for Alpha-1 annual fundraiser brought the community together on Saturday, June 27, at the Natural Resources Center within the Chalco Hills […]
Read More… from Big Red Alphas Ice Cream Fundraiser for Alpha-1 | A1F
