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Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]
Read More… from Alpha-1 antitrypsin deficiency: A persistently underrecognized condition
A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]
Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
Read More… from Medicare Drug Price Negotiation Program Engagement Opportunities
“The continuation of achieving our goals hinges on detecting, testing, finding and helping every Alpha. We have increased our efforts […]
FDA NEWS RELEASE The U.S. Food and Drug Administration today issued draft guidance for sponsors seeking approval for targeted individualized […]
“We are thrilled with Wave Life Sciences commitment to the Alpha-1 patient community. Their acceleration of regulatory engagement of the […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
PRESS RELEASE SOMERVILLE, Mass., January 12, 2026 /GLOBE NEWSWIRE/ Tessera Therapeutics, the biotechnology company pioneering a new approach in genetic […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The second Latin American Alfa-1 Meeting titled “Consolidando avances, ampliando horizontes”, (“Consolidating Advances, Expanding Horizons”) was held on December 10, 2025, in Buenos Aires, Argentina. Organized by Alfa1 Argentina and supported by […]
Empowering Voices. Inspiring Action. Elevating Patient-Centered Work. […]
Read More… from Launch of the A1F Fred C. Walsh Speaker Bureau
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
Read More… from Alpha-1 Foundation: Rationale for EU Strategic Engagement
“Thank you to the Alpha-1 patients that participated in this important clinical trial, InnovAATe. It is because of the dedication of patients […]
Read More… from Kamada Announces Discontinuation of its Phase 3 Inhaled AAT Clinical Trial
Last month, the University of Kentucky was officially designated as a Clinical Resource Center (CRC) by the Alpha-1 Foundation. Alpha-1 […]
The 30-day Alpha-1 Awareness Month campaign has been a tremendous success! This year celebrated the Alpha-1 Foundation’s (A1F) 30th anniversary, honoring […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Gordon Cadwgan, PhD passed away peacefully on Saturday, November 29, 2025, at 81 years old surrounded by his family. Gordon […]
Read More… from The Alpha-1 community mourns the loss of Gordon E. Cadgwan Jr., PhD
This week showcased the heart, dedication, and spirit of the Alpha-1 community as everyone raised awareness; teams and supporters walked, […]
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
Week 3 brought heartfelt stories, new beginnings, and meaningful moments from teams and walkers across the United States. Each walk and […]
Clark reviews findings from a 3-year longitudinal study comparing VCTE to liver biopsy for staging F2/F3 fibrosis in patients with […]
Read More… from Dr. Virginia Clark findings from comparison of VCTE FibroScan to Liver Biopsy
