Finding a cure for Alpha-1 and improving the lives of those affected
FEATURES
Find an Alpha‑1 Specialist
Browse our database to find a doctor specializing in Alpha‑1. Filter by location or area of expertise to narrow down your search.
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OUR IMPACT
We’ve invested over $100 million into Alpha‑1 research and related programs
From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.
$100M
in research funded
130
researchers funded
10X
the clinical trials within a decade
SPOTLIGHT
Amplifying Alpha-1 Voices
When Brian and Kara Hodges learned that their daughter, Malia, had Alpha‑1, their lives changed immediately. What began as a search for medical answers quickly became a journey defined by determination, community support, and a commitment to securing the best future for their daughter. From their home in League City, Texas, they entered an unfamiliar world of genetic testing, new relationships, and a growing network of families and clinicians who would become essential to their support system.
Today, they are not only parents managing a rare condition, but also active advocates for other families facing the same challenges.
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Help us end Alpha‑1 for everyone.
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