Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Living with Alpha-1 and Supplemental Oxygen: Why We Need the SOAR Act 

Debbi Webb-Howells, an A1F Support Group Leader, wrote an article published in the Richmond Times-Dispatch highlighting the importance of supplemental […]

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August 25, 2026
How the SOAR Act Can Help Patients Breathe Easier

Karin Pittsley, an Alpha-1 advocate for the Alpha-1 Foundation, wrote an article published in Reporter Today highlighting the importance of […]

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August 25, 2026
In Honor of Her Father: Kristen Mehan Climbs 29,029 Feet for the Alpha-1 Community 

For Kristen Mehan of Eagle County, Colorado, the impact of Alpha-1 Antitrypsin Deficiency (Alpha-1) is deeply personal. After watching someone […]

Read More… from In Honor of Her Father: Kristen Mehan Climbs 29,029 Feet for the Alpha-1 Community 

August 25, 2026
The Alpha-1 Community Remembers Arran Strong

It is with great sadness that we remember Arran, a member of the Alpha-1 Global community (and Alpha-1 advocate), whose life […]

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August 6, 2026
Ice Cream for Alpha-1 2026 Summer Fundraisers 

Behind every Ice Cream for Alpha-1 fundraiser there is a story of hope, resilience, and community. While each participant’s journey is unique, […]

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August 6, 2026
July 2026 PubMed Articles

The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]

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August 3, 2026
Asociación Latinoamericana de Tórax (ALAT) 19th Congress

From July 8-13, 2026, the Alpha-1 Foundation (A1F) participated in Asociación Latinoamericana de Tórax (ALAT) 19th Congress in Cartagena, Colombia. The ALAT Congress is the […]

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July 20, 2026
Highlighting Pulmonary Manifestations among Patients with Liver-Affected Alpha-1 Antitrypsin Deficiency in the USA

The Alpha-1 Foundation (A1F) is proud to announce that its abstract review titled “Alpha-1 Foundation Research Registry: Highlighting Pulmonary Manifestations among Patients […]

Read More… from Highlighting Pulmonary Manifestations among Patients with Liver-Affected Alpha-1 Antitrypsin Deficiency in the USA

July 16, 2026
How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

Dan Coffin shared with Bowling Green Daily News in Kentucky the importance of the SOAR (Supplemental Oxygen Access Reform) Act […]

Read More… from How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

July 14, 2026
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SPOTLIGHT

Investing in the future of the Alpha-1 community

The Alpha-1 Foundation is proud to recognize Lucas Johnson, a political science major at Santa Fe College entering his freshman year, as one of the recipients of the 2026 Alpha-1 Educational Scholarships. He was awarded the John Walsh III Scholarship.

Diagnosed with Alpha-1 at just three months old, Lucas has met the challenges of the condition with resilience and determination. He credits his family as the source of his strength and was inspired by his parents, who served as A1F Support Group Leaders and longtime supporters of the Alpha-1 Foundation. Today, Lucas gives back by supporting the Alpha-1 community and helping raise awareness of Alpha-1.

Learn More about the Alpha-1 Educational Scholarships

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