Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud 

It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]

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April 3, 2026
A1F Building Friends for a Cure Training: A Weekend of Growing Together

Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]

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March 27, 2026
Beam Therapeutics Announces Update on BEAM-302

FOR IMMEDIATE RELEASE: Beam Therapeutics announced compelling updated clinical data from the ongoing Phase 1/2 trial of BEAM-302 in Alpha-1 […]

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March 25, 2026
The Celtic Connection 2026 

Happy St. Patrick’s Day! The Alpha-1 Foundation has been celebrating St. Patrick’s Day as a community since 2008. Over 300 guests joined together […]

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March 17, 2026
2025 Alpha-1 Educational Scholarships

Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]

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March 13, 2026
Alpha-1 antitrypsin deficiency: A persistently underrecognized condition

Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]

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March 3, 2026
RARE DISEASE DAY 2026 

Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]

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March 2, 2026
February 2026 PubMed Articles

The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]

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March 2, 2026
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SPOTLIGHT

The Alpha-1 Journey for Alpha-1 Kids

The Kemmerer family’s Alpha-1 journey began in 2017, when their daughter Quinn was diagnosed as a ZZ Alpha just weeks after birth, following liver complications. Through the Alpha-1 Foundation, they attended the A1F National Conference in 2018, where they connected with others in the community and became involved in A1F Support Groups.

Today, Quinn’s mother, Nora, serves as a co-leader of the Nebraska Big Red Alphas Support Group and played a key role in developing the virtual Parents and Kids (PAK) support group. She shares that being part of the Alpha-1 community has provided her with knowledge, confidence, and hope for Quinn’s future.

Learn more about the Alpha-1 Kids Program

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