Dr. Harry Long has spent a lifetime embracing endurance sports, from running races to completing the 192-mile Pan-Mass Challenge. After being diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) at age 71, his abilities may have changed, but his determination to keep moving has not. Cycling remains an important connection to the active life he has always valued and reflects the resilience and purpose that continue to drive him forward. This year, Dr. Long will once again get on his bike for A1F Riding for a Reason, riding as many miles as he can to raise awareness and critical funds for Alpha-1.
Finding a cure for Alpha-1 and improving the lives of those affected
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OUR IMPACT
We’ve invested over $100 million into Alpha‑1 research and related programs
From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.
$100M
in research funded
130
researchers funded
10X
the clinical trials within a decade
SPOTLIGHT
Dr. Harry Long: A Lifetime of Movement, Resilience, and Dedication to the Alpha-1 Community
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