During the Month of February, the Alpha-1 Foundation collaborates with the National Organization for Rare Disorders (NORD) to spread awareness of Alpha-1 leading up to Rare Disease Day.
Get Involved
There are lots of ways to participate in Rare Disease Day:
- Spread Awareness: download our Rare Disease Day Digital Toolkit and share official Alpha-1 content on your social media during the month of February @Alpha-1 Foundation #Alpha1Awareness #RareDiseaseDay
- Attend upcoming Alpha-1 education events: the Alpha-1 Foundation hosts Alpha-1 Education Days, both virtually and in person. Explore our calendar to find upcoming events
- Register for Rare Disease Day at NIH: held virtually and in person, this event features panel discussions, rare disease stories, exhibitors, and scientific posters. The event is free and open to the public. Register here
- Share your story: whether you or a loved one has been diagnosed with Alpha-1, we want to hear your story. Share your story and connect with others who may be going through a similar experience on the Alpha-1 Foundation’s Facebook page
