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The annual A1F Grant Awards Reception took place last night in Orlando, FL during the American Thoracic Society (ATS) International […]
The 3rd Annual Walk in Memory of Lorraine Cimino to benefit the Alpha-1 Foundation (A1F), held on Sunday, May 17, 2026, in Brooklyn, New York, brought […]
The sponsorship helps expand proven strategies to consistently detect a genetic, irreversible, and progressive condition in patients with liver and/or […]
Read More… from Wave Life Sciences Supports AlphaDetect to Accelerate Detection of Alpha-1
The sponsorship helps expand proven strategies to consistently detect a genetic, irreversible, and progressive condition in patients with liver and/or […]
Read More… from Beam Therapeutics Supports AlphaDetect to Accelerate Detection of Alpha-1
The sponsorship helps expand proven Alpha-1 detection strategies, which will enable earlier patient identification Durham, NC – May 6, 2026 […]
Read More… from Sanofi Supports AlphaDetect to Accelerate Detection of Alpha-1
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
On Friday, April 17, 2026, the Alpha-1 Foundation (A1F) hosted the 29th Gordon L. Snider Critical Issues (GLS) Workshop: “Alpha-1 Foundation […]
What Is the Purpose of EU Alpha-1 Awareness Day? April 25, 2026 marks the ninth annual European Alpha-1 Awareness Day led by […]
The Alpha-1 Foundation (A1F) joined the 95 undersigned organizations, including patient advocacy groups, professional scientific and medical societies are profoundly […]
Read More… from A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud
Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]
Read More… from A1F Building Friends for a Cure Training: A Weekend of Growing Together
FOR IMMEDIATE RELEASE: Beam Therapeutics announced compelling updated clinical data from the ongoing Phase 1/2 trial of BEAM-302 in Alpha-1 […]
Read More… from Beam Therapeutics Announces Update on BEAM-302
Happy St. Patrick’s Day! The Alpha-1 Foundation has been celebrating St. Patrick’s Day as a community since 2008. Over 300 guests joined together […]
Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]
Read More… from Alpha-1 antitrypsin deficiency: A persistently underrecognized condition
A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]
Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]
Read More… from Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
Read More… from Medicare Drug Price Negotiation Program Engagement Opportunities
“The continuation of achieving our goals hinges on detecting, testing, finding and helping every Alpha. We have increased our efforts […]
FDA NEWS RELEASE How Is the FDA Accelerating Development for Ultra-Rare Therapies? The U.S. Food and Drug Administration today issued […]
Read More… from FDA Accelerated Development Framework for Rare Diseases | Alpha-1 Foundation
“We are thrilled with Wave Life Sciences commitment to the Alpha-1 patient community. Their acceleration of regulatory engagement of the […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
