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February 28, 2023

Today is Rare Disease Day!

Today, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together […]

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February 17, 2023

CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD

Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]

Read More… from CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD

February 13, 2023

Increase Alpha-1 Awareness on Rare Disease Day 2023

Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]

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February 13, 2023

Patient Community Healthcare Priorities for the 118th Congress

February 13, 2021 The Honorable Charles Schumer                            […]

Read More… from Patient Community Healthcare Priorities for the 118th Congress

February 10, 2023

Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program

Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices […]

Read More… from Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program

February 7, 2023

Respiratory Research Volume 24 Article No. 40: Lung Inflammation in alpha-1-antitrypsin deficient individuals with normal lung function

NHLBI funded research shows alpha-1-antitrypsin deficient (AATD) individuals with normal lung function have lower respiratory tract mild inflammation. More research […]

Read More… from Respiratory Research Volume 24 Article No. 40: Lung Inflammation in alpha-1-antitrypsin deficient individuals with normal lung function

February 6, 2023

The Alpha-1 Foundation mourns the loss of Dr. James Gadek

James E. Gadek, 76, passed away on January 24, 2023. He was born in Elizabeth, New Jersey on September 23, […]

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January 19, 2023

Protect Yourself Against Health Insurance Fraud

The Alpha-1 Foundation wants you to have the knowledge to protect yourself and your family against health insurance fraud and […]

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January 12, 2023

Alpha-1 Foundation partners with The Cleveland Clinic on New Continuing Medical Education Series

Designed to advance the knowledge and improve the diagnostic and treatment competence of healthcare providers caring for patients with Alpha-1. […]

Read More… from Alpha-1 Foundation partners with The Cleveland Clinic on New Continuing Medical Education Series

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January 11, 2023

Dr. Jeffrey Teckman’s Liver Research Video Feature

The Science of Healing: Alpha-1 Antitrypsin Deficiency Alpha-1 Foundation research grant funding has supported his work to better understand the […]

Read More… from Dr. Jeffrey Teckman’s Liver Research Video Feature

January 9, 2023

Winter Wellness by Dr. Robert Sandhaus

Winter Wellness by Dr. Robert A. Sandhaus Featured in Alpha-1-to-One Magazine: Ask the Alpha Doc Winter 2022 Q: Should I […]

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January 4, 2023

Conference of Deputy Ministers of Health authorized Canadian Blood Services to issue a request for proposals (RFP) for Health Canada-approved A1-PI products

On December 23, 2022, Alpha-1 Canada was informed that the Conference of Deputy Ministers of Health authorized Canadian Blood Services […]

Read More… from Conference of Deputy Ministers of Health authorized Canadian Blood Services to issue a request for proposals (RFP) for Health Canada-approved A1-PI products

December 21, 2022

CSL Behring: Looking Back at 2022

CSL Behring asked leaders in patient advocacy to share examples of creativity and innovation in 2022. Learn what they’re most […]

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December 19, 2022

Wave Life Sciences and GSK Announce Collaboration to Drive Discovery and Development of Oligonucleotide Therapeutics Focusing on Novel Genetic Targets

Wave Life Sciences recently hosted Alpha Dan Coffin and his wife Kathi at their offices to speak with employees about […]

Read More… from Wave Life Sciences and GSK Announce Collaboration to Drive Discovery and Development of Oligonucleotide Therapeutics Focusing on Novel Genetic Targets

December 7, 2022

Study finds mutations that could contribute to increased liver disease in patient populations

“This model gives us the ability to study injury to liver cells resulting from both MZ and ZZ genotypes. This […]

Read More… from Study finds mutations that could contribute to increased liver disease in patient populations

November 30, 2022

November Alpha-1 Awareness Month: Week 4 Recap

Week #4 of the Virtual Walk has come to an end… and the feeling of THANKFULNESS for the Alpha-1 community […]

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November 28, 2022

The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Doug Turley

It is with great sadness that we share the news that AlphaNet Coordinator Doug Turley passed away on November 22, […]

Read More… from The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Doug Turley

November 22, 2022

Week 3 Recap: Awareness Month Continues!

Week 3 for the Virtual Walk was a huge success! We had many individual walkers from across the country out […]

Read More… from Week 3 Recap: Awareness Month Continues!

four people in A1F-branded bicycle gear smiling for a photo together
November 22, 2022

Alpha Athletes-Part of the Pack

Congratulations to Rob Ploke who submitted Kangchenjunga the third-highest mountain in the world at 28,169 feet. Rob, a longtimefriend of […]

Read More… from Alpha Athletes-Part of the Pack

November 17, 2022

Week 2 Recap: Let’s Cure It! Alpha-1 Awareness Month

The second week of the Alpha-1 Virtual Walks was a huge success! We are officially at the halfway mark of […]

Read More… from Week 2 Recap: Let’s Cure It! Alpha-1 Awareness Month

November 10, 2022

Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director

FOR IMMEDIATE RELEASE November 10, 2022- The Alpha-1 Foundation announces the appointment of Andrew A. Wilson, MD as its new […]

Read More… from Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director

November 9, 2022

Week 1 Recap: Alpha-1 Awareness Month 2022

November is finally here and with it comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On November […]

Read More… from Week 1 Recap: Alpha-1 Awareness Month 2022

November 3, 2022

Grifols receives FDA clearance for AlphaID™ At Home

Grifols receives FDA clearance for AlphaID™ At Home, the first free service for U.S. consumers to determine their risk for […]

Read More… from Grifols receives FDA clearance for AlphaID™ At Home

October 14, 2022

Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency

– Initiates first-in-human trial of next-wave AAT corrector, VX-634 – Phase 2 study evaluating the impact of longer-term treatment with VX-864 to […]

Read More… from Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency

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