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Top Stories

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November 18, 2025

Dr. Virginia Clark findings from comparison of VCTE FibroScan to Liver Biopsy 

Clark reviews findings from a 3-year longitudinal study comparing VCTE to liver biopsy for staging F2/F3 fibrosis in patients with […]

Read More… from Dr. Virginia Clark findings from comparison of VCTE FibroScan to Liver Biopsy 

researchers wearing mask and gloves collaborating in laboratory beside computer screen
November 18, 2025

October PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from October PubMed Articles

November 18, 2025

September PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from September PubMed Articles

November 18, 2025

August PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from August PubMed Articles

November 13, 2025

NORD Webinar: Open Enrollment Essentials for Rare Disease Families

Health insurance is changing …are you ready? Join us on Nov. 19 at 2 p.m. ET for a Zoom webinar […]

Read More… from NORD Webinar: Open Enrollment Essentials for Rare Disease Families

November 13, 2025

Fazirsiran and the Future of RNA Therapy in AATD Liver Disease, With Pavel Strnad, MD

Strnad emphasizes the promise offered by RNA therapeutics in liver disease and what potential fazirsiran may hold for AATD liver […]

Read More… from Fazirsiran and the Future of RNA Therapy in AATD Liver Disease, With Pavel Strnad, MD

November 12, 2025

Alpha-1 Awareness Month: 2025 Week 2 Recap 

November continues to raise awareness and funds for Alpha-1. This week focuses on the theme of INNOVATION. A1F is known […]

Read More… from Alpha-1 Awareness Month: 2025 Week 2 Recap 

November 12, 2025

A1F raises awareness at AASLD: The Liver Meeting

The annual American Association for the Study of Liver Diseases (AASLD) The Liver Meeting took place from November 7-11, 2025 […]

Read More… from A1F raises awareness at AASLD: The Liver Meeting

November 12, 2025

Important things to know about telehealth as the government shutdown is ending

During COVID-19, Congress temporarily allowed Medicare to pay for telehealth visits much more broadly including visits at home, in cities […]

Read More… from Important things to know about telehealth as the government shutdown is ending

November 10, 2025

Important Medicare Update for 2026 – Please Read!

If you or someone you know has Medicare Advantage (MA) coverage, please take a few minutes to check what’s changing for 2026. […]

Read More… from Important Medicare Update for 2026 – Please Read!

November 5, 2025

Alpha-1 Awareness Month: 2025 Week 1 Recap

November 2025 kicked off with incredible energy and creativity from the Alpha-1 community coast to coast! Teams walked, paraded, and […]

Read More… from Alpha-1 Awareness Month: 2025 Week 1 Recap

October 31, 2025

November is Alpha-1 Awareness Month 

November is Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 community to share stories and resources while raising […]

Read More… from November is Alpha-1 Awareness Month 

October 30, 2025

3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL 

The sun was shining over beautiful Dunedin, Florida, as the Alpha-1 Foundation (A1F) once again joined forces with the American Lung Association (ALA) for […]

Read More… from 3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL 

October 30, 2025

Alpha-1 Community Mourns the loss of Lisa Riddle

It is with deep sadness that we share the news that AlphaNet Coordinator Lisa Riddle passed away on Monday, October […]

Read More… from Alpha-1 Community Mourns the loss of Lisa Riddle

October 23, 2025

Positive results from Sanofi’s Phase 2 Investigational Drug 

October 22, 2025- The Alpha-1 Foundation (A1F) is proud to share the news that Sanofi’s efdoralprin alfa has met all […]

Read More… from Positive results from Sanofi’s Phase 2 Investigational Drug 

October 20, 2025

A1F 28th Gordon L. Snider Critical Issues Workshop

The 28th Gordon L. Snider (GLS) Critical Issues Workshop entitled, “AAT Polymers: Disease Pathogenesis, Detection, and Therapeutic Targeting” took place […]

Read More… from A1F 28th Gordon L. Snider Critical Issues Workshop

October 13, 2025

2026 Medicare Open Enrollment Webinar For Alphas

Mark Your Calendars! Medicare Open Enrollment happens from October 15th – December 7th and is the time each year when […]

Read More… from 2026 Medicare Open Enrollment Webinar For Alphas

October 8, 2025

Escape to the Cape 2025 

The Alpha-1 Foundation’s (A1F) 30th anniversary was nothing short of inspirational at the American Lung Association’s (ALA) Escape to The […]

Read More… from Escape to the Cape 2025 

September 26, 2025

Guidance for Alphas on Adult Seasonal Respiratory Vaccines

It is important for Alphas to be up-to-date on their seasonal vaccines. AlphaNet has provided a chart to keep you […]

Read More… from Guidance for Alphas on Adult Seasonal Respiratory Vaccines

September 26, 2025

Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

Early September, Alpha-1 Foundation (A1F) advocates from across the country gathered in Washington, DC, for a Lobby Day bringing the […]

Read More… from Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

September 25, 2025

A1F Endorses Safe Step Act Patient Protection Bill

The Alpha-1 Foundation proudly joins the broad coalition of more than 200 organizations endorsing the Safe Step Act and stand […]

Read More… from A1F Endorses Safe Step Act Patient Protection Bill

September 12, 2025

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]

Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

September 4, 2025

Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary 

On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]

Read More… from Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary 

August 20, 2025

Alpha-1 Foundation Launches Innovative New Model for Centralized Detection

The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]

Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection

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