Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access

More than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement […]

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July 10, 2025
Medical Stories Season Premiere Spotlights Alpha-1 

Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can lead to serious lung and liver disease, is featured in the […]

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July 10, 2025
June 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from June 2025 PubMed Articles

July 9, 2025
Community Parade in Oregon Drives Awareness for Alpha-1

Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]

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July 3, 2025
View Photos from 2025 A1F National Conference

The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th thru June 8th in Miami, Florida. This year, A1F […]

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July 3, 2025
Alphas, Take Action Today! June 2025 Advocacy Action Alerts

We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]

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June 30, 2025
May 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from May 2025 PubMed Articles

June 16, 2025
Join the movement to support the need for National Institutes of Health (NIH) funding

Stand Up for Science is circulating a letter aimed at collecting individual signatures to support the need for NIH funding. […]

Read More… from Join the movement to support the need for National Institutes of Health (NIH) funding

June 10, 2025
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SPOTLIGHT

Ice Cream for Alpha-1

Ice Cream for Alpha-1 is a fun and impactful way to raise awareness and support for Alpha-1 Antitrypsin Deficiency (Alpha-1) this summer. From backyard get-togethers to park celebrations and neighborhood socials, these events bring communities together for a sweet and meaningful cause.

In Omaha, NE, Nora Kemmerer and Chelsea Boring are leading the way with their 2nd Annual event on June 28, showing how a simple scoop can spark connection, fuel research, and inspire hope.

With National Ice Cream Day coming up on July 20, now is the perfect time to plan your own event and be part of the movement, one scoop at a time!

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