Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

129

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Living well with Alpha-1: One man’s journey from truck driving to advocacy

Daniel Grimm spent decades as a certified professional driver of tractor-trailers, hauling loads up and down the East Coast. It […]

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August 27, 2024
C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]

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August 6, 2024
Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines

Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]

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July 25, 2024
Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations

Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article.  Thank you to […]

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July 23, 2024
Raising Alpha-1 Awareness in Oregon

Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]

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July 10, 2024
Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]

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July 10, 2024
2024 Bettina B. Irvine Invitational Classic

On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

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July 3, 2024
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SPOTLIGHT

Exciting research developments for Alpha-1 Kids

“We are at a new and exciting stage in understanding children with Alpha-1 Antitrypsin Deficiency. For the first time, we are developing tools to predict which kids are at high risk of future severe liver disease. This is thanks to the cooperative studies of the Alpha-1 Foundation and the NIH Childhood Liver Disease Research Network (ChiLDReN). We are now better equipped to help families prepare for the future and to begin to guide high-risk kids into the new generation of liver therapy trials to eventually cure this disease,” stated Dr. Jeffrey Teckman.

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