Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested more than $92 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$92M

in research funded

129

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Rare Disease Day: Reasons for Action

CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]

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February 20, 2024
Celtic Connection 2024

Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser

Saturday, March 9, 2024 / 7:00 pm- 11:00 PM

Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]

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February 20, 2024
January 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

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February 14, 2024
Sanofi wades into AATD in bid for Inhibrx’s rare disease drug

“The acquisition of Inhibrx by Sanofi represents an exciting moment for the Alpha-1 community. Sanofi is a leading expert in […]

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January 29, 2024
2023 Alpha-1 Awareness Month: Week 4 Highlights

November Alpha-1 Awareness Month was a huge success. The Alpha-1 Community has officially reached and surpassed its 2023 fundraising goal. […]

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December 4, 2023
2023 Alpha-1 Awareness Month: Week 3 Highlights

As we approach the last week of Alpha-1 Awareness Month, we are inspired by the Alpha-1 community and their dedication […]

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November 21, 2023
2023 Alpha-1 Awareness Month: Week 2 Highlights

Week 2 of the 2023 Alpha-1 Awareness Month was a huge success! The Alpha-1 Virtual Walks are off to an […]

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November 16, 2023
2023 Alpha-1 Awareness Month: Week 1 Highlights

“Make your Move” into the journey of Alpha-1 Awareness Month with our Week 1 Recap! The enthusiasm and commitment of […]

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November 8, 2023
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SPOTLIGHT

Advocates in Action

Advocating for patients across the nation for access to care is one of Daniel Grimm’s passions and he has been very successful in helping secure co-sponsors for the H.R 4438: John W. Walsh Home Infusion Bill to date totaling 41 co-sponsors.

Join Dan in raising awareness of the challenges faced by Alpha-1 patients and become an Alpha-1 Advocate today!

Become an Alpha-1 Advocate

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two children in Alpha-1 Foundation branded shirts wearing medals around their necks and posing for a photo