Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Community Parade in Oregon Drives Awareness for Alpha-1

Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]

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July 3, 2025
View Photos from 2025 A1F National Conference

The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th thru June 8th in Miami, Florida. This year, A1F […]

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July 3, 2025
Alphas, Take Action Today! June 2025 Advocacy Action Alerts

We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]

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June 30, 2025
May 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

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June 16, 2025
Join the movement to support the need for National Institutes of Health (NIH) funding

Stand Up for Science is circulating a letter aimed at collecting individual signatures to support the need for NIH funding. […]

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June 10, 2025
June 2025 Alpha-1 COVID Vaccine Guidance

The medical leadership team at the Alpha-1 Foundation has provided an updated Statement for the Alpha-1 Antitrypsin Deficiency Community: Understanding the […]

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June 10, 2025
A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational  

On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

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June 3, 2025
The 2025 A1F National Conference Celebrates 30 Years

The Alpha-1 Foundation (A1F) is proud to host the 2025 A1f National Conference from June 6th thru June 8th in Miami, Florida. […]

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May 30, 2025
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SPOTLIGHT

Ice Cream for Alpha-1

Ice Cream for Alpha-1 is a fun and impactful way to raise awareness and support for Alpha-1 Antitrypsin Deficiency (Alpha-1) this summer. From backyard get-togethers to park celebrations and neighborhood socials, these events bring communities together for a sweet and meaningful cause.

In Omaha, NE, Nora Kemmerer and Chelsea Boring are leading the way with their 2nd Annual event on June 28, showing how a simple scoop can spark connection, fuel research, and inspire hope.

With National Ice Cream Day coming up on July 20, now is the perfect time to plan your own event and be part of the movement, one scoop at a time!

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