Download a PDF of our most recent Financial Statement, Form 990, Annual Report or 501 (c) (3) IRS Determination.
See the Alpha-1 Foundation’s Conflict of Interest Policy and Whistleblower Policy.
Corporate Relations
The Alpha-1 Foundation operates within a Board of Directors-approved corporate relations policy to ensure that relations with corporate entities are conducted in a manner consistent with its mission, principles, ethics, public positions, policies and standards.
This corporate relations policy stresses independent judgment in all its decision-making and adheres to standards of Consumer Communications, Disclosure, Endorsements, Exclusivity, Advance Review and Approval, Written Agreements, Compliance, and Privacy.
For more information on the Foundation corporate relations policy please click here: Corporate Relations Policy
Funding Sources
AlphaNet
AlphaNet, Inc. is a not-for-profit 501(c)(3) organization founded in 1995 with a mission to provide innovative health management and customized care to individuals with Alpha-1 Antitrypsin Deficiency while funding research for a cure. AlphaNet contributes significant funding to support research activities of the Alpha-1 Foundation.
Corporate Donations
The Alpha-1 Foundation solicits and accepts contributions from industry to support its program activities. The Foundation will always exercise independent judgment in its decision-making, regardless of any financial support received from another organization or entity.
The Foundation receives funding from major industry partners— CSL Behring, EVERSANA, Grifols and Takeda, among others, totaling 36% of annual revenue.
Other Contributions
Other sources of revenue include: special events, major gifts, planned giving, general contributions and family research initiatives.
Accreditations
Recognized for good operating practices, accountability and responsible governance, the Alpha-1 Foundation has received the National Health Council’s Full Compliance Certification and the Charity Seal from the Better Business Bureau’s Wise Giving Alliance. These are the highest accreditations attainable in the not-for-profit and voluntary health sectors. The Foundation has also received an Exceptional 4-Star rating by Charity Navigator, the highest rating given by that organization. GuideStar has also awarded the Platinum Seal of Transparency, their highest level of recognition, to the Alpha-1 Foundation.
