Category: Advocacy

Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]

Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy,  On behalf of the […]

Read More… from Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]

Read More… from Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]

Read More… from How You Can Donate Plasma and Save a Life