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CSL Behring has reported to the Alpha-1 Foundation that the distribution hold on their inventory has been lifted and they […]
Read More… from UPDATE February 2, 2021: ZEMAIRA® Alpha‐1 Proteinase Inhibitor (Human) Update
PPTA Statement on Immunoglobulin Use to Meet Clinical Need A recent publication explores possible reasons for the increased use of […]
January 29, 2020- The Alpha-1 Foundation is excited to host the two- day virtual 21st Gordon L. Snider Critical Issues […]
Read More… from 21st Gordon L. Snider Critical Issues Workshop “Exacerbations and Comorbidities”
Excessive Phlegm May Be a Sign of Alpha-1 Antitrypsin Deficiency If your body produces an excessive amount of phlegm on […]
Summary of major changes: Beginning two weeks after the second dose of a two dose vaccine, it will not be […]
January 21, 2021- We have become aware today of this voluntary Class II recall from CSL Behring. Please see full […]
Read More… from ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
January 21, 2021 President Joseph Biden 1600 Pennsylvania Ave., NW Washington, DC 20500 Dear President Biden, We, the undersigned patient […]
January 22, 2021 CDC Advisory Committee on Immunization Practices [Docket No. CDC–2021–0002] Federal Register RE: Individuals with Alpha-1 Antitrypsin Deficiency […]
It is with great sadness that we share the news that long-time AlphaNet Coordinator Darrell Nall passed away on Sunday, January 17th […]
Read More… from The Alpha-1 Community Mourns the Loss of Darrell Nall
The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers […]
It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. […]
Read More… from The Alpha-1 Community Mourns the loss of Karen L. Fraser
Shortness of Breath May Be a Sign of Alpha-1 Antitrypsin Deficiency Learn More About Alpha-1: here FB Ad: https://www.alpha1.org/Alpha1/wp-content/uploads/2021/01/FB-Ad.png If […]
https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone […]
December 22, 2020 – The Ad Hoc Group for Medical Research issued the following statement in response to funding included […]
Read More… from Ad Hoc Group Statement on NIH Funding in Year-End Legislation
Monday, December 21 Congress Reaches an Agreement on COVID-19 Relief Bill and Surprise Medical Billing COVID Relief Package Over the weekend, […]
December 12, 2020 The Alpha-1 Foundation hosted the virtual 20th Gordon L. Snider Critical Issues Workshop entitled, The Promise of […]
The CARES (Coronavirus Aid, Relief, and Economic Security) Act is designed to help you, businesses and nonprofits facing economic hardship […]
Workshops, such as today’s 20th Gordon L. Snider Critical Issues Workshop titled “The Promise of Gene-based Interventions of Alpha-1 Antitrypsin […]
November Alpha-1 Awareness month successfully obtained its goal and raised awareness for Alpha-1 Antitrypsin Deficiency around the United States. November […]
Read More… from A Look Back at the 2020 November Virtual Alpha-1 Awareness Month
The Alpha-1 Foundation held its first ever Virtual Alpha-1 Lobby Day on Tuesday, November 17, 2020 in order to bring […]
December 4, 2020 The Honorable Joseph R. Biden, Jr. President-elect 1401 Constitution Ave. NW Washington, DC 20230 Dear President-elect Biden: […]
Read More… from Ad Hoc Group for Medical Research Letter to President-elect Joe Biden
Is Your Chronic Cough Genetic? If you’re experiencing an unexplained, long-term persistent cough, you might have a rare genetic condition […]
FOR IMMEDIATE RELEASE November 19, 2020- After hiking the Continental Divide for the past five months, Jonathan Maidment completes his […]
Medicare Open Enrollment begins on October 15, 2020 and ends on December 7, 2020. During this time, Medicare beneficiaries can […]
