Calendar

We invite all Alphas, family members, caregivers, friends, and healthcare providers, such as infusion nurses, doctors, and respiratory therapists, to attend this event on the latest Alpha-1 topics. Learn about Alpha-1 lung and liver disease, new and upcoming research, and more.

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Agenda:

2:00 pm ET – 2:30 pm ET
Regional Meet and Greets in the Auditorium

2:30 pm ET – 2:40 pm ET
State of the Union
Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation
Scott Santarella, President & CEO, Alpha-1 Foundation

2:40 pm ET – 3:50 pm ET
State of Alpha-1 Care & Pediatrics
Erin Carr, Alpha Mom, Parents of Alpha-1 Kids (PAK) & Alpha-1 Support Group Leader
State of Alpha-1 Care - Dr. Mike Wells
State of Alpha-1 Pediatrics - Dr. Nitika Gupta

3:50 pm ET – 4:10 pm ET
General Alpha-1 Q&A - Dr. Jeanine D'Armiento, Dr. Nitika Gupta

4:10 pm ET – 4:15 pm ET
Break

4:15 pm ET – 4:40 pm ET
State of Alpha-1 Research
Jenna Frye, Alpha Mom, Medical and Scientific Advisory Committee (MASAC) Member
Dr. Andrew Wilson, Scientific Director, Alpha-1 Foundation

4:40 pm ET – 5:05 pm ET
State of Alpha-1 Programs
Catherine Vernon, Member of the Board of Directors, Alpha-1 Foundation
Scott Santarella, President & CEO, Alpha-1 Foundation

5:05 pm ET – 5:15 pm ET
State of Alpha-1 Advocacy
Jason Medeiros, Alpha-1 Support Group Leader and Advocate
Scott Santarella, President & CEO, Alpha-1 Foundation

5:15 pm ET – 5:30 pm ET
Alpha-1 Research and Programs Q&A - Scott Santarella, Dr. Andrew Wilson

Respiratory Therapists

This learning activity has been approved by the American Association for Respiratory Care (AARC) for 4 hours of Continuing Respiratory Care Education (CRCE). To request your CRCE certificate after attending the event, please email Kim Caraballo at kcaraballo@alpha1.org. Please include your AARC number in the email if you have one; no other licenses are needed. All requests must be submitted within 2 weeks of attending the event. Certificates will be emailed to you within 3 weeks of your request.