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It is with great sadness that we share the news that veteran AlphaNet Coordinator Gayle Allison Tipper passed away on […]

Read More… from The Alpha-1 Foundation Mourns the Loss of Veteran Coordinator Gayle Tipper

The Alpha-1 Foundation has received the following correspondence from the EveryLife Foundation regarding the introduction of the STAT Act: I […]

Read More… from Congress Introduces STAT Act

The Alpha-1 Foundation received the following correspondence from Grifols on March 10, 2021: As part of our ongoing commitment to […]

Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A1GLE01532, A1GLE01542 & A4GLE01482

Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact […]

Read More… from Professor Gerry McElvaney wins HRB Impact Award 2021

The annual Celtic Connection will take place virtually on ZOOM on Saturday, March 13, 2021. The evening will begin at […]

Read More… from Join us for the 2021 Celtic Connection from home!

The Alpha-1 Foundation hosted the virtual 21st Gordon L. Snider Critical Issues Workshop entitled, Exacerbations and Pulmonary Comorbidities on Friday, […]

Read More… from Alpha-1 Foundation Hosted 21st Gordon L. Snider Critical Issues Workshop

CSL Behring has reported to the Alpha-1 Foundation that the distribution hold on their inventory has been lifted and they […]

Read More… from UPDATE February 2, 2021: ZEMAIRA® Alpha‐1 Proteinase Inhibitor (Human) Update

PPTA Statement on Immunoglobulin Use to Meet Clinical Need A recent publication explores possible reasons for the increased use of […]

Read More… from Plasma Protein Therapeutics Association (PPTA): Statement on Immunoglobulin Use to Meet Clinical Need

January 29, 2020- The Alpha-1 Foundation is excited to host the two- day virtual 21st Gordon L. Snider Critical Issues […]

Read More… from 21st Gordon L. Snider Critical Issues Workshop “Exacerbations and Comorbidities”

Summary of major changes: Beginning two weeks after the second dose of a two dose vaccine, it will not be […]

Read More… from CDC Updated Post Vaccine Guidance

January 21, 2021- We have become aware today of this voluntary Class II recall from CSL Behring. Please see full […]

Read More… from ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update

January 21, 2021 President Joseph Biden 1600 Pennsylvania Ave., NW Washington, DC 20500 Dear President Biden, We, the undersigned patient […]

Read More… from Alpha-1 Foundation Joins Coalition of Patient Organizations in Congratulating Dr. Janet Woodcock, Acting Commissioner of the Food and Drug Administration

January 22, 2021 CDC Advisory Committee on Immunization Practices [Docket No. CDC–2021–0002] Federal Register RE: Individuals with Alpha-1 Antitrypsin Deficiency […]

Read More… from Vaccine Allocation Letter to the CDC Advisory Committee on Immunization Practices (ACIP)

It is with great sadness that we share the news that long-time AlphaNet Coordinator Darrell Nall passed away on Sunday, January 17th […]

Read More… from The Alpha-1 Community Mourns the Loss of Darrell Nall

The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers […]

Read More… from Vaccine Letter for Alpha-1 Patients

It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. […]

Read More… from The Alpha-1 Community Mourns the loss of Karen L. Fraser

Shortness of Breath May Be a Sign of Alpha-1 Antitrypsin Deficiency Learn More About Alpha-1: here FB Ad: https://www.alpha1.org/Alpha1/wp-content/uploads/2021/01/FB-Ad.png If […]

Read More… from Shortness of Breath

https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone […]

Read More… from NBC Connecticut Coverage- Hiking for a Cure: Bolton’s Jonathan Maidment Completes the ‘Triple Crown’

December 22, 2020 – The Ad Hoc Group for Medical Research issued the following statement in response to funding included […]

Read More… from Ad Hoc Group Statement on NIH Funding in Year-End Legislation

Monday, December 21 Congress Reaches an Agreement on COVID-19 Relief Bill and Surprise Medical Billing  COVID Relief Package  Over the weekend, […]

Read More… from COVID-19 Legislative Update

December 12, 2020 The Alpha-1 Foundation hosted the virtual 20th Gordon L. Snider Critical Issues Workshop entitled, The Promise of […]

Read More… from 20th Gordon L. Snider Critical Issues Workshop: The Promise of Gene-based Interventions in Alpha-1 Antitrypsin Deficiency

The CARES (Coronavirus Aid, Relief, and Economic Security) Act is designed to help you, businesses and nonprofits facing economic hardship […]

Read More… from Tax Benefits of the CARES Act

Workshops, such as today’s 20th Gordon L. Snider Critical Issues Workshop titled “The Promise of Gene-based Interventions of Alpha-1 Antitrypsin […]

Read More… from Intellia Therapeutics Achieves Normal Human Alpha-1 Antitrypsin Protein Levels in Non-Human Primates Through Targeted Gene Insertion for the Treatment of AAT Deficiency