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The Alpha-1 Foundation recently held the highly anticipated 2023 Alpha-1 National Conference “Blazing the Trail Together for Alpha-1” in Dallas, […]
“One of my primary goals is to bring new, young investigators into the Alpha-1 research community to ensure that we […]
The Alpha-1 Foundation is proud to announce the inaugural recipients of the 2023 Ab Rees Fast Track Grants. Congratulations to […]
Read More… from Announcement of the 2023 Ab Rees Fast Track Grants
Justis Frank a junior at Palmetto Senior High School in Miami, Florida organized a fundraising event to benefit the Alpha-1 […]
ACTION ALERT! May 16, 2023 The debt ceiling could hit as early as June 1, 2023 and there is a […]
Read More… from Your Help is Needed…. Act Now! Debt Ceiling Action Alert
The Alpha-1 Foundation signed on with other member organizations of the All Copays Count Coalition in support for the HELP […]
Now available in the U.S., this free, innovative genetic health risk service lets consumers screen for their risk of alpha1-antitrypsin […]
Every year, Accessia Health works to ensure we are optimizing our program offerings to best serve the needs of our […]
Read More… from Exciting improvements are coming to Accessia Health patient assistance!
Join the Alpha-1 Foundation for a free, live Continuing Medical Education (CME) event in partnership with Cleveland Clinic and Medscape […]
Read More… from Thursday, April 27th: Free CME Livestream on AATD
Clinical trials are an important part of clinical research and at the heart of all medical advances. Without them, we […]
SOUTH HAMILTON – Sheila L. Favazza, 75, of Forest Street, died Saturday, April 15, 2023, in the Brigham and Women’s […]
Read More… from The Alpha-1 Community Mourns the loss of Alpha, Sheila Favazza
FOR IMMEDIATE RELEASE April 6, 2023 – The Alpha-1 Global 5th International Research Conference and the 8th Patient Congress will […]
“Mary has been an incredible role model in our Alpha-1 community, we wish her continued good health in her retirement. […]
Read More… from Alpha, Mary Pierce celebrates 30-year anniversary of lung transplant
The Fiscal Years 2023–2027 NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA) (the Plan) articulates NIH’s commitment to embracing, strengthening, […]
Read More… from NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA)
On this St. Patrick’s Day, we are lucky and grateful for the outstanding commitment of the Alpha-1 community. Over 235 […]
Read More… from Celtic Connection honors Dr. James K. Stoller with Shillelagh Award
We are writing to let you know that there is a nationwide shortage of albuterol. Albuterol is used to treat […]
Read More… from Nationwide Albuterol Shortage: What you need to know
The 14th Annual Celtic Connection will take place this weekend on Saturday, March 11th in Boston, Massachusetts. For the first time […]
Read More… from Get ready for the 2023 Celtic Connection- Saturday, March 11th
Today, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together […]
Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]
Read More… from CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from Increase Alpha-1 Awareness on Rare Disease Day 2023
February 13, 2021 The Honorable Charles Schumer […]
Read More… from Patient Community Healthcare Priorities for the 118th Congress
Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices […]
NHLBI funded research shows alpha-1-antitrypsin deficient (AATD) individuals with normal lung function have lower respiratory tract mild inflammation. More research […]
James E. Gadek, 76, passed away on January 24, 2023. He was born in Elizabeth, New Jersey on September 23, […]
Read More… from The Alpha-1 Foundation mourns the loss of Dr. James Gadek
