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Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, presented “Elevating Rare Disease Voices in Healthcare Policy” at the 2025 […]
Miriam O’Day presented the “Advocacy Update” at the 2024 Indianapolis Alpha-1 Education Day. Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation […]
Alpha-1 Patients: DC Young, Craig Hamilton & Lee Cropper presented the “Alpha-1 Patient Panel” at the 2024 Salt Lake City […]
Jeanne Kushner, Senior Director of Communications at the Alpha-1 Foundation, presented “Policy & Advocacy” at the 2024 Alpha-1 Foundation National […]
Read More… from Saturday, June 8th, 2024 | Track 2: Policy & Advocacy
Dr. Michael Campos presented “How to Advocate for Yourself as an Alpha-1 Patient” at the 2024 Alpha-1 Foundation National Conference. […]
Erin Carr, Dan Grimm, Jessica Brown, and Melissa Hale presented an “Alpha-1 Empowerment Hour” at the 2024 Alpha-1 Foundation National […]
Read More… from Friday, June 7th, 2024: Alpha Empowerment Hour
Dr. Oliver McElvaney moderated a “Doctor-Patient Conversation” at the 2024 Seattle Alpha-1 Education Day. Oliver McElvaney, MD, PHD University of […]
On 19 February 2024 Alpha-1 Global, in cooperation with Alpha-1 Europe Alliance, organised a webinar, which explored the impact of […]
Cathey Henderson, Director of Patient Services, moderated an Alpha-1 Patient Panel at the 2024 Sacramento Alpha-1 Education Day. Alpha-1 Patient […]
Miriam O’Day presented an “Advocacy Update” at the 2024 Sacramento Alpha-1 Education Day. Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation […]
The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the […]
Miriam O’Day presented “Alpha-1 Advocacy and Public Policy: How to Make a Difference” at the 2023 Raleigh Alpha-1 Education Day. […]
Read More… from Alpha-1 Advocacy and Public Policy: How to Make a Difference
“Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate” presented by Dr. Jeanine D’Armiento at the 2023 Denver […]
Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Denver Alpha-1 Education […]
“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research […]
“Alpha-1 Foundation Global Program Update” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]
Saturday: “Opening Remarks and Alpha-1 Foundation Address” presented by Jon Hagstrom, Chair of Board of Directors at the Alpha-1 Foundation, […]
Read More… from Opening Remarks and Alpha-1 Foundation Address – A1NC23
Saturday, Track 2: “Public Policy” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]
Saturday, Track 2: “Oxygen Reform Legislation” presented by Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, at the 2023 […]
Saturday, Track 1: “Alpha-1 Advocacy Access & Reimbursement” moderated by Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation at the 2023 […]
Read More… from Alpha-1 Advocacy Access & Reimbursement – A1NC23
Friday, Track 1: “Conference Orientation for First-Time Attendees” presented by Cathey Horsak Henderson, Director of Community Programs at the Alpha-1 […]
Read More… from Conference Orientation for First-Time Attendees – A1NC23
Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation Board of Directors, at the 2023 […]
Alpha-1 Foundation Update presented by Peg Iverson, Member of the Alpha-1 Foundation Board of Directors, at the 2023 Orlando Alpha-1 […]
Scott Santarella, President & CEO, Alpha-1 Foundation & Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation […]
