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Topic: Advocacy

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August 21, 2023

Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate!

“Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate” presented by Dr. Jeanine D’Armiento at the 2023 Denver […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Denver Alpha-1 Education […]

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Patient Involvement in Advocacy & Policy

“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research […]

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Alpha-1 Foundation Global Program Update

“Alpha-1 Foundation Global Program Update” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

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Opening Remarks and Alpha-1 Foundation Address – A1NC23

Saturday: “Opening Remarks and Alpha-1 Foundation Address” presented by Jon Hagstrom, Chair of Board of Directors at the Alpha-1 Foundation, […]

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Public Policy – A1NC23

Saturday, Track 2: “Public Policy” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

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Oxygen Reform Legislation – A1NC23

Saturday, Track 2: “Oxygen Reform Legislation” presented by Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, at the 2023 […]

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Alpha-1 Advocacy Access & Reimbursement – A1NC23

Saturday, Track 1: “Alpha-1 Advocacy Access & Reimbursement” moderated by Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation at the 2023 […]

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Conference Orientation for First-Time Attendees – A1NC23

Friday, Track 1: “Conference Orientation for First-Time Attendees” presented by Cathey Horsak Henderson, Director of Community Programs at the Alpha-1 […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation Board of Directors, at the 2023 […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Peg Iverson, Member of the Alpha-1 Foundation Board of Directors, at the 2023 Orlando Alpha-1 […]

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2023 Alpha-1 State of the Union

Scott Santarella, President & CEO, Alpha-1 Foundation & Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation […]

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State of Alpha-1 Advocacy, Scott Santarella

State of Alpha-1 Advocacy presented by President & CEO of the Alpha-1 Foundation Scott Santarella at the 2023 Virtual Alpha-1 […]

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Welcome & Alpha-1 Foundation Update

Scott Santarella, President & CEO, Alpha-1 Foundation Bethesda Alpha-1 Education Day November 13, 2022 […]

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Advocacy – Open Enrollment 2022

Leslie Martinez, Program Manager, Montgomery County Health Connection, Montgomery County Department of Health and Human Services Bethesda Alpha-1 Education Day […]

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Alpha-1 Foundation Welcome & Update.mp4

Jon Hagstrom, Chair of the Board of the Alpha-1 Foundation, welcomed the attendees of the Los Angeles Alpha-1 Education Day […]

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How to Advocate for Yourself as an Alpha or a Carrier

2022 Hybrid Alpha-1 National Conference Saturday, June 11, 2022 Speaker: D. Kyle Hogarth, MD […]

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Your Voice Matters, Advocating for your Priorities to Further Our Mission

Miriam O’Day, Senior Public Policy Advisor, and James Romano, Legislative Advisor, presented on the Alpha-1 Foundation’s advocacy efforts during the […]

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COVID-19 Update

Dr. Jeanine D’Armiento, Chair of the Board of Directors for the Alpha-1 Foundation, gave a an update on COVID-19 during […]

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Alpha-1 Foundation Update

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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Alpha-1 Foundation Update

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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Alpha-1 Foundation Update – February 12, 2022

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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COVID-19 Update

Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation provided the Alpha-1 community with a COVID-19 update […]

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Alpha-1 Foundation Update

Miriam O’Day gives the Alpha-1 Foundation Update during the Los Angeles Alpha-1 Education day on Saturday, February 29, 2020. […]

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