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Topic: Getting Involved

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August 21, 2023

Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate!

“Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate” presented by Dr. Jeanine D’Armiento at the 2023 Denver […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Denver Alpha-1 Education […]

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Research Panel: Alpha-1 Clinical Trials & Drug Development – European Landscape

“Research Panel: Alpha-1 Clinical Trials & Drug Development – European Landscape” presented by a panel of physicians at the 2023 […]

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Research Panel: Alpha-1 Registries & Participating in Clinical Trials – EARCO Ireland and the Alpha-1 Foundation

“Research Panel: Alpha-1 Registries & Participating in Clinical Trials – EARCO Ireland and the Alpha-1 Foundation” presented by a panel […]

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Patient Involvement in Advocacy & Policy

“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research […]

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Public Policy – A1NC23

Saturday, Track 2: “Public Policy” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

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Oxygen Reform Legislation – A1NC23

Saturday, Track 2: “Oxygen Reform Legislation” presented by Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, at the 2023 […]

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Alpha-1 Advocacy Access & Reimbursement – A1NC23

Saturday, Track 1: “Alpha-1 Advocacy Access & Reimbursement” moderated by Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation at the 2023 […]

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Conference Orientation for First-Time Attendees – A1NC23

Friday, Track 1: “Conference Orientation for First-Time Attendees” presented by Cathey Horsak Henderson, Director of Community Programs at the Alpha-1 […]

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2023 Alpha-1 State of the Union

Scott Santarella, President & CEO, Alpha-1 Foundation & Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation […]

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Welcome & Alpha-1 Foundation Update

Scott Santarella, President & CEO, Alpha-1 Foundation Bethesda Alpha-1 Education Day November 13, 2022 […]

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Alpha-1 Foundation Welcome & Update.mp4

Jon Hagstrom, Chair of the Board of the Alpha-1 Foundation, welcomed the attendees of the Los Angeles Alpha-1 Education Day […]

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Alpha-1 Foundation Welcome and Introduction

Jeanine D’Armiento, MD, PhD, provided a warm welcome to the new President & CEO of the Alpha-1 Foundation, Scott Santarella, […]

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Alpha-1 Advocacy and Public Policy

2021 Virtual Alpha-1 National Conference Friday, June 11, 2021 Speakers: Miriam O’Day & Jim Romano, MPA, MBA […]

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What the Alpha-1 Foundation is Doing to Work Toward a Cure

2021 Virtual Alpha-1 National Conference Friday, June 11, 2021 Moderator: Mark Brantly, MD Panelists: Jeanine D’Armiento, MD, PhD, Martin Zamora, […]

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A View From the Front Lines of COVID-19 – Q&A

March 20, 2020 A question and answer session with: Robert A. Sandhaus, MD, PhD, FCCP, Clinical Director, Alpha-1 Foundation & […]

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COVID-19 Community Update from Alpha-1 Foundation & AlphaNet Leadership Webinar

March 13, 2020 […]

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Support Group Leader Training Pt. 2

27th Annual National Education Conference – San Francisco – July 1st, 2018 Speaker: Mark Gibbons, Senior Director of External Programs, […]

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Support Group Leader Training Pt. 1

27th Annual National Education Conference – San Francisco, CA – July 1st, 2018 Speaker: Mark Gibbons, Senior Director of External […]

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Track 3 – Access & Reimbursement Panel of Experts

27th Annual National Education Conference – San Francisco – June 30th, 2018 Panel: Johanna Gray (Moderator); Barbee Bennington; Angela Merkens […]

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