Skip to content

Secondary Navigation

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
  • Alpha-1 Research Registry
  • Calendar
  • Subscribe

Main Navigation

Alpha-1 Foundation logo
  • About Alpha-1
        • About Alpha-1

        • What is Alpha-1?
        • Symptoms
        • Causes
        • Testing & Diagnosis
        • Treatment
        • Lung Disease
        • Liver Disease
        • Panniculitis
        • Excessive Phlegm
        • Find an Alpha-1 Support Group Near You

          Get Started
  • Living with Alpha-1
        • Living with Alpha-1

        • Managing Alpha-1
          • Healthy Lifestyle Choices
          • Alpha-1 Kids
          • Mental Health
          • Caregivers
          • Supplemental Oxygen
          • Insurance
        • Find Care
          • Find an Alpha-1 Specialist
        • Get Support
          • Patient Information Line
          • Find a Support Group
          • Peer Guide Program
          • Genetic Counseling
          • Alpha-1 Educational Scholarships
  • Education
        • Alpha-1 Education

        • Education Events
          • National Conference
          • Education Days
        • Resources
          • Video Library
          • Resource Library
          • Alpha-1-to-One Magazine
          • Alpha-1 Glossary of Terms 
        • Continuing Medical Education
          • Continuing Medical Education (CME) Credits
          • Continuing Respiratory Care Education (CRCEs)
  • Research
        • Alpha-1 Research

        • Participate in Research
          • Join the Alpha-1 Research Registry
          • Clinical Trials 101
          • Current Clinical Trial Opportunities
        • Grants
          • Grant Opportunities
          • Grantees
        • Research Initiatives
          • Alpha-1 Biomarkers Consortium (A1BC) Study
          • Therapeutic Development Network (TDN)
          • The Alpha-1 Project (TAP)
        • Research Resources
          • DNA and Tissue Bank
          • Biomaterials Exchange
        • Scientific Meetings and Conferences
          • Annual Meetings
        • Join the Alpha-1 Research Registry

          Get Started
  • Get Involved
        • Get Involved

        • Give
          • Ways to Donate
          • Tribute Giving
          • Planned Giving
          • Tax-Smart Ways to Give
          • Alpha-1 Legacy Society
          • Workplace Giving
        • Fundraise
          • Building Friends for a Cure (BFC)
          • Annual A1F Fundraisers
          • A1F Calendar – Events & Awareness Initiatives
        • Advocate
          • Become an A1F Advocate
          • Advocacy Toolkit
        • Raise Awareness
          • Alpha-1 Awareness Month
          • Rare Disease Day
  • Donate

Topic: Living with Alpha-1

Filter:

February 8, 2024

2024 State of Alpha-1 Research

The 2024 State of Alpha-1 Research was presented by Dr. Andrew Wilson at the 2024 Virtual Alpha-1 Education Day. Additionally, […]

Read More… from 2024 State of Alpha-1 Research

2024 State of Alpha-1 Care & Pediatrics

The 2024 State of Alpha-1 Care & Pediatrics was presented by Dr. Michael Wells and Dr. Nitika Gupta at the […]

Read More… from 2024 State of Alpha-1 Care & Pediatrics

2024 State of the Union

The 2024 State of the Union was presented by President & CEO of the Alpha-1 Foundation, Scott Santarella, at the […]

Read More… from 2024 State of the Union

Pulmonary Function Tests (PFTs): What You Should Know

Dr. Barbara LeVarge presented “Pulmonary Function Tests (PFTs): What You Should Know” at the 2023 Raleigh Alpha-1 Education Day. Barbara […]

Read More… from Pulmonary Function Tests (PFTs): What You Should Know

Alpha-1 Foundation Welcome and Update

Scott Santarella presented “Alpha-1 Foundation Welcome and Update” at the 2023 Raleigh Alpha-1 Education Day. Scott Santarella Raleigh Alpha-1 Education […]

Read More… from Alpha-1 Foundation Welcome and Update

The Role of Pulmonary Rehabilitation in Alpha-1 Disease Management

Dr. M. Bradley Drummond presented “The Role of Pulmonary Rehabilitation in Alpha-1 Disease Management” at the 2023 Raleigh Alpha-1 Education […]

Read More… from The Role of Pulmonary Rehabilitation in Alpha-1 Disease Management

Alpha-1 Lung Disease

Dr. Hector Sanchez and Dr. M. Doug Lee presented “Alpha-1 Lung Disease” at the 2023 Raleigh Alpha-1 Education Day. Hector […]

Read More… from Alpha-1 Lung Disease

Alpha-1 Liver Disease

Dr. Charlie Strange presented “Alpha-1 Liver Disease” at the 2023 Raleigh Alpha-1 Education Day. Charlie Strange, MD Raleigh Alpha-1 Education […]

Read More… from Alpha-1 Liver Disease

Understanding Pulmonary Function Tests

Dr. Joseph Kaserman presented “Understanding Pulmonary Function Tests” at the 2023 Boston Alpha-1 Education Day. Joseph Kaserman, MD Boston Alpha-1 […]

Read More… from Understanding Pulmonary Function Tests

Alpha-1 Lung Disease

Alpha-1 Lung Disease presented by Dr. Andrew Wilson at the 2023 Boston Alpha-1 Education Day. Andrew Wilson, MD Boston Alpha-1 […]

Read More… from Alpha-1 Lung Disease

Open Q&A with Physicians

An open Q&A with Physicians presented by Dr. Robert A. Sandhaus and Dr. Karina Serban at the 2023 Denver Alpha-1 […]

Read More… from Open Q&A with Physicians

Alpha-1 Lung & Liver Disease

Alpha-1 Lung & Liver Disease presented by Dr. Robert A. Sandhaus at the 2023 Denver Alpha-1 Education Day. Robert A. […]

Read More… from Alpha-1 Lung & Liver Disease

The Augmentation Therapy Journey in Canada, Belgium, and Denmark

“The Augmentation Therapy Journey in Canada, Belgium, and Denmark” presented by a panel of speakers at the 2023 Alpha-1 Global […]

Read More… from The Augmentation Therapy Journey in Canada, Belgium, and Denmark

Upcoming Research

“Upcoming Research” presented by Dr. Andrew Wilson and Dr. Mark Brantly at the 2023 Alpha-1 Global 5th Research Conference. Andrew […]

Read More… from Upcoming Research

Tips for Stress and Coping

“Tips for Stress and Coping” presented by Dr. Frank Doyle at the 2023 Alpha-1 Global 5th Research Conference. Frank Doyle, […]

Read More… from Tips for Stress and Coping

Research Panel Q & A

“Research Panel Q&A” presented by a panel of renowned physicians at the 2023 Alpha-1 Global 5th Research Conference. Andrew Wilson, […]

Read More… from Research Panel Q & A

Patient Reported Outcomes

“Patient Reported Outcomes” presented by Dr. Charlie Strange at the 2023 Alpha-1 Global 5th Research Conference. Charlie Strange, MD 2023 […]

Read More… from Patient Reported Outcomes

Patient Involvement in Advocacy & Policy

“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research […]

Read More… from Patient Involvement in Advocacy & Policy

Panel: Living with Alpha-1

“Panel: Living with Alpha-1” presented by a panel of Alpha-1 patients at the 2023 Alpha-1 Global 5th Research Conference. Marion […]

Read More… from Panel: Living with Alpha-1

Alpha-1 Foundation Global Program Update

“Alpha-1 Foundation Global Program Update” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

Read More… from Alpha-1 Foundation Global Program Update

EU Alpha-1 Patient Organization

“EU Alpha-1 Patient Organization” presented by Marion Wilkins and Veronica Lopez Gousset at the 2023 Alpha-1 Global 5th Research Conference. […]

Read More… from EU Alpha-1 Patient Organization

Pros and Cons of Inhaled Therapeutics

“Pros and Cons of Inhaled Therapeutics” presented by Dr. Rob Stockley at the 2023 Alpha-1 Global 5th Research Conference. Rob […]

Read More… from Pros and Cons of Inhaled Therapeutics

Fazirsiran for Liver Disease Associated with Alpha-1 Antitrypsin Deficiency: Presentation of Published Work

“Fazirsiran for Liver Disease Associated with Alpha-1 Antitrypsin Deficiency: Presentation of Published Work” presented by Dr. Jeffrey Teckman and Dr. […]

Read More… from Fazirsiran for Liver Disease Associated with Alpha-1 Antitrypsin Deficiency: Presentation of Published Work

Detection in South America

“Detection in South America” presented by Dr. Mariano Fernández Acquier at the 2023 Alpha-1 Global 5th Research Conference. Mariano Fernández […]

Read More… from Detection in South America

Page navigation
  • Previous
  • 3 of 7
  • Next

WEBSITE SPONSORS

AlphaNet AlphaNet
Grifols Grifols
Takeda Takeda
We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.OKPrivacy policy
Newly Diagnosed
  • What is Alpha-1?
  • Living with Alpha-1
  • Alpha-1 Research Registry
Healthcare Providers
  • Clinical Resource Centers (CRCs)
  • Clinical Practice Guidelines
  • ATS/ERS Standards
  • Healthcare Provider’s Guide
  • Continuing Medical Education (CME) Credits
About Us
  • About A1F
  • Staff
  • Board of Directors
  • Volunteer Leadership
  • Financial Statements
Resources
  • Top Stories
  • Patient Information Line
  • Find an Alpha-1 Specialist
  • Find a Support Group
  • Get Tested
  • Alpha Angels – Supporting the Alpha-1 Community
Contact Us

3300 Ponce de Leon Blvd.
Coral Gables, Florida 33134

Main: (305) 567-9888
Toll Free: (877) 2-CURE-A1
or (877) 228-7321

Email: info@alpha1.org

Candid 2024
NORD 2024 Member

EIN: 65-0585415

  • Terms of Use
  • Privacy Policy
  • Facebook
  • Twitter
  • Instagram
  • Linkedin