On 19 February 2024 Alpha-1 Global, in cooperation with Alpha-1 Europe Alliance, organised a webinar, which explored the impact of the EU Substances of Human origin (SoHO) Regulation on the lives of European Alphas. The speakers included:
• Scott Santarella (CEO of Alpha-1 Global)
• Dr. Heinz Stutzenberger, (Vice-President of the board of Alpha-1 Europe alliance)
• Sebastian Rhode, (Founder of RPP)
• Kinga Wojtowicz (Head of Office and Senior Account Director at RPP)
• Anton Stoyanov (Consultant at RPP)
Dr. Carroll Cross presented “Understanding our Past to Inform the Future: The History of Alpha-1 Antitrypsin Deficiency Treatment” at the 2024 Sacramento Alpha-1 Education Day.
Carroll Cross, MD
Sacramento Alpha-1 Education Day
March 2, 2024
Topic: Advocacy, Getting Involved, Living with Alpha-1
The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2024 Virtual Alpha-1 Education Day. Additionally, Jason Medeiros, Alpha-1 Support Group Leader and Advocate, presented an introduction.
Introduction:
Jason Medeiros, Alpha-1 Support Group Leader and Advocate
Presentation:
Scott Santarella, President & CEO, Alpha-1 Foundation
The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation at the 2024 Virtual Alpha-1 Education Day. Additionally, Catherine Vernon, Member of the Board of Directors at the Alpha-1 Foundation presented an introduction.
Introduction:
Catherine Vernon, Member of the Board of Directors, Alpha-1 Foundation
Presentation:
Scott Santarella, President & CEO, Alpha-1 Foundation
The 2024 State of Alpha-1 Research was presented by Dr. Andrew Wilson at the 2024 Virtual Alpha-1 Education Day. Additionally, Jena Frye, Alpha Mom, MASAC Member, presented an introduction.
Introduction:
Jena Frye, Alpha Mom, MASAC Member
Presentation:
Dr. Andrew Wilson, Scientific Director, Alpha-1 Foundation
The 2024 State of Alpha-1 Care & Pediatrics was presented by Dr. Michael Wells and Dr. Nitika Gupta at the 2024 Virtual Alpha-1 Education Day. Additionally, an introduction was presented by Erin Carr, Alpha Mom, Parents of Alpha-1 Kids (PAK), Alpha-1 Support Group Leader.
Introduction:
Erin Carr, Alpha Mom, Parents of Alpha-1 Kids (PAK),
Alpha-1 Support Group Leader
Presentations:
State of Alpha-1 Care – Dr. Mike Wells
State of Alpha-1 Pediatrics – Dr. Nitika Gupta
Topic: Living with Alpha-1, Lung, Pulmonary Rehab & Excercise
Dr. Joseph Kaserman presented “Understanding Pulmonary Function Tests” at the 2023 Boston Alpha-1 Education Day.
Joseph Kaserman, MD
Boston Alpha-1 Education Day
November 11, 2023
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