Video Library

“Research Panel: Alpha-1 Registries & Participating in Clinical Trials – EARCO Ireland and the Alpha-1 Foundation” presented by a panel of physicians at the 2023 Alpha-1 Global 5th Research Conference.

Jeanine D’Armiento, MD, PhD
Marc Miravitlles, MD, FERS
Tomas Carroll, MD
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“Patient Reported Outcomes” presented by Dr. Charlie Strange at the 2023 Alpha-1 Global 5th Research Conference.

Charlie Strange, MD
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research Conference.

Kinga Wojtowicz and Anton Stoyanov
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“Panel: Living with Alpha-1” presented by a panel of Alpha-1 patients at the 2023 Alpha-1 Global 5th Research Conference.

Marion Wilkens Elena Goyanes
Shane Fitch
Carlos Cambon
Cristina Barbiero
Geraldine Kelly
Cathey Henderson
Frank Willersinn
Steve Knowles
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“Alpha-1 Foundation Global Program Update” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 Global 5th Research Conference.

Scott Santarella, President & CEO of the Alpha-1 Foundation
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“EU Alpha-1 Patient Organization” presented by Marion Wilkins and Veronica Lopez Gousset at the 2023 Alpha-1 Global 5th Research Conference.

Marion Wilkins and Veronica Lopez Gousset, MPH
2023 Alpha-1 Global 5th Research Conference
April 15, 2023

“Pros and Cons of Inhaled Therapeutics” presented by Dr. Rob Stockley at the 2023 Alpha-1 Global 5th Research Conference.

Rob Stockley, MD
2023 Alpha-1 Global 5th Research Conference
April 14, 2023

“Fazirsiran for Liver Disease Associated with Alpha-1 Antitrypsin Deficiency: Presentation of Published Work” presented by Dr. Jeffrey Teckman and Dr. Pavel Strnad at the 2023 Alpha-1 Global 5th Research Conference.

Jeffrey Teckman, MD
Pavel Strnad, MD
2023 Alpha-1 Global 5th Research Conference
April 14, 2023

“Detection in South America” presented by Dr. Mariano Fernández Acquier at the 2023 Alpha-1 Global 5th Research Conference.

Mariano Fernández Acquier, MD
2023 Alpha-1 Global 5th Research Conference
April 14, 2023

“Critical Path Institute” presented by Gina Smith at the 2023 Alpha-1 Global 5th Research Conference.

Gina Smith, MPH, BSN, RN
2023 Alpha-1 Global 5th Research Conference
April 14, 2023

“Specific Treatment Modalities for AATD – Associated Lung Disease” presented by Dr. Andrew Wilson at the 2023 Alpha-1 Global 5th Research Conference.

Andrew Wilson, MD
2023 Alpha-1 Global 5th Research Conference
April 14, 2023

Friday, Track 2: “Lung Imaging” presented by Dr. Mike Wells at the 2023 Alpha-1 National Conference.

Mike Wells, MD
Alpha-1 National Conference
June 9th, 2023

Friday, Track 2: “Liver Imaging” presented by Dr. Virginia Clark at the 2023 Alpha-1 National Conference.

Virginia Clark, MD
Alpha-1 National Conference
June 9th, 2023

Saturday: “Alpha-1 Research Panel” moderated by Dr. Andrew Wilson at the 2023 Alpha-1 National Conference.

Andrew Wilson, MD
Virginia Clark, MD
Jeanine D’Armiento, MD
Darrell N. Kotton, MD
Robert A. Sandhaus, MD
Jeffrey Teckman, MD
Alpha-1 National Conference
June 10th, 2023

Saturday: “Opening Remarks and Alpha-1 Foundation Address” presented by Jon Hagstrom, Chair of Board of Directors at the Alpha-1 Foundation, and Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 National Conference.

Jon Hagstrom
Scott Santarella
Alpha-1 National Conference
June 10th, 2023

Saturday: “Alpha Empowerment Hour” moderated by Angela McBride, Senior Director of Corporate Relations and Community Engagement at the Alpha-1 Foundation, at the 2023 Alpha-1 National Conference.

Angela McBride
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 3: “Coping with a Chronic Illness as a Parent of an Alpha-1 Kid | Alpha -1 Parents Panel” moderated by Dr. Dana Goldner at the 2023 Alpha-1 National Conference.

Dana Goldner, MD
Erin Carr, Alpha-1 Parent
Pam VanScoy, Alpha-1 Parent
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 2: “Regenerative Medicine: The State of the Science & Tissue Regeneration” presented by Dr. Darrell Kotton at the 2023 Alpha-1 National Conference.

Darrell N. Kotton, MD
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 3: “Transplants for Alpha-1 Children” presented by Dr. Nitika Arora Gupta at the 2023 Alpha-1 National Conference.

Nitika Arora Gupta, MD
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 3: “Long Term Health and Wellness for Alpha-1 Kids” presented by Dr. Dana Goldner at the 2023 Alpha-1 National Conference.

Dana Goldner, MD
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 3: “Genetics, Family Testing, & Phenotypes” presented by Dr. Monica Goldklang at the 2023 Alpha-1 National Conference.

Monica Goldklang, MD
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 2: “Public Policy” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 National Conference.

Scott Santarella, President & CEO, Alpha-1 Foundation
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 2: “Oxygen Reform Legislation” presented by Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, at the 2023 Alpha-1 National Conference.

Miriam O’ Day, Senior Policy Advisor, Alpha-1 Foundation
Alpha-1 National Conference
June 10th, 2023

Saturday, Track 2: “General Patient Care & Treatment as an Alpha: Questions to Ask Your Doctor” presented by Dr. Robert Sandhaus at the 2023 Alpha-1 National Conference.

Robert A. Sandhaus, MD
Alpha-1 National Conference
June 10th, 2023