
2026 A1F National Conference Agenda
| 10:00 am – 5:00 pm | Early Conference Registration (closed for lunch from 12:30 to 2 pm) |
| 7:30 pm – 8:00 pm | Alpha Angels Reception |
| 8:00 pm – 9:00 pm | Alpha Angels Memorial Service |
| 8:30 am – 10:00 am | Breakfast & Exhibit Hall Grand Opening |
| 8:30 am – 5:00 pm | Registration |
| 10:15 am – 10:40 am | A1F Conference Kickoff: A1F Welcome & Opening Remarks Scott Santarella, President & CEO, Alpha-1 Foundation |
| 10:40 am – 11:40 am | Alpha Empowerment Hour Hosted by the A1F Fred C. Walsh Speaker Bureau Moderated by: Lisa Sideris Detection & Getting Tested | Richard Lovrich & Joe Masnack Alpha-1 Liver and Transplant | Robin Diamant & Catriona Garry A1F CRCs and Clinical Trials | Mary Ryan, DNP, APRN, FNP-C & Betsy Scher Finding your A1F Family | Brian Hodges & Patty Tew Thriving with Alpha-1 | Lianne McLean-Schaaf & Carol Segal, PhD |
| 11:40 am – 12:10 pm | Alpha-1 Research Registry and the A1F Therapeutic Development Network (TDN) Alison Keaveny, Director of Clinical Research, Alpha-1 Foundation Nadine Nuchovich, Clinical Research & Global Manager, Alpha-1 Foundation Michael Campos, MD, Professor of Clinical Medicine at the University of Miami School of Medicine |
| 12:10 pm – 1:00 pm | Platinum Sponsor Presentations AlphaNet | Robert Sandhaus, MD, PhD, FCCP, Executive Vice President and Senior Medical Director CSL | Larry Silva, CSL Director, Established Products Group Grifols | Chris Healey, Senior Vice President of Corporate Affairs Sanofi | Kara McManus Bogart, Head of Marketing – U.S. Rare Disease & Kelly Ranallo, US Lead Public Affairs and Patient Advocacy – Rare Diseases Takeda | Aja Rich, Head of Alpha-1 Franchise |
| 1:00 pm – 2:00 pm | Lunch |
| 2:00 pm – 2:40 pm | Alpha-1 Antitrypsin Deficiency 101: Liver Alyson Fox, MD, Medical Director, Adult Liver Transplant, Columbia University |
| 2:45 pm – 3:25 pm | Alpha-1 Antitrypsin Deficiency 101: Lung Brooks Kuhn, MD, University of California, Davis Medical Center, Sacramento, CA |
| 3:30 pm – 4:10 pm | Advances in Genetic Testing & Understanding the Genetic Risk for Alpha-1 Victor Ortega, MD, PhD, Pulmonary Disease Specialist & Genetic Epidemiologist, Mayo Clinic, Phoenix, AZ |
| 5:30 pm – 6:00 pm | Alpha-1 Parents Meet & Greet We invite Alpha-1 parents to join Alpha-1 Foundation staff and meet other Alpha-1 parents attending the conference. |
| 7:00 pm – 9:30 pm | Dinner Reception: Piano Bar Glam Think classic, elevated style with a touch of sparkle and sophistication. Take inspiration ranging from sleek black outfits and satin finishes to statement accessories, bold lipstick, or a hint of vintage flair. Whether you go full glam or keep it simple with polished elegance, the goal is to have fun and enjoy a stylish night “out” with the community. |
| 7:30 am – 9:00 am | Breakfast |
| 8:00 am – 2:00 pm | Registration |
| 9:00 am – 9:45 am | The Future of Alpha-1 Detection Scott Santarella, President & CEO, Alpha-1 Foundation James Stoller, MD, MS, Board Member, Alpha-1 Foundation and AlphaDetect Julie Murray, President & CEO, AlphaDetect |
| 9:45 am – 10:45 am | Alpha-1 Research Panel Moderated by: Brad Drummond, MD, Associate Professor of Medicine, Director, Alpha-1 Clinic at the University of North Carolina at Chapel Hill Igor Barjaktarevic, MD, PhD, Medical Director, COPD Program, David Geffen School of Medicine at University of California, Los Angeles (UCLA) Arpan Mohanty, MD, MSc, Director of Clinical Research, Boston Medical Center Jeffrey Teckman, MD, Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital J. Michael Wells, MD, Medical Director UAB, Alpha-1 Pulmonary CRC, Associate Professor, Division of Pulmonary, Allergy, and Critical Care Medicine Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation |
| 10:45 am – 11:05 am | Research & Clinical Trials 101 Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation |
| 11:05 am – 11:20 am | Break |
| 11:20 am – 12:50 pm | Emerging Therapies in Alpha-1 Introduced by: Jon Hagstrom, Board Chair, Alpha-1 Foundation Moderated by: Andrew Wilson, MD, Scientific Director, Alpha-1 Foundation AIRNA | Jacob Elkins, MD, Chief Medical Officer – “AIR-001: An Optimized RNA Editing Approach for AATD” Beam Therapeutics | Nic Currier, MD, Senior Medical Director, Clinical Development – Update on BEAM-302: A potential base editing therapeutic for alpha-1 antitrypsin deficiency (Alpha-1) Prime Medicine | Mohammed Asmal, MD, PhD, Chief Medical Officer Sanofi | Nathan Thibault, PharmD, Global Medical Lead, AATD – “Efdoralprin alfa clinical program: Assessing normalization of AAT levels in Alpha-1 patients, the ElevAATe Study” Takeda | Tami Nussbaum, MD, MBA, Sr. Medical Director, GI Pipeline – “Overview of REDWOOD Study – Explore a new path for Alpha-1 liver disease” Tessera Therapeutics | David Davidson, Chief Medical and Development Officer Wave Life Sciences | Cynthia Caracta, Executive Director, Global Program Lead for 006 – From Z to M: RNA Editing for the Treatment of AATD |
| 1:00 pm – 2:00 pm | Lunch & Exhibits |
| Time | Track 1 | Track 2 | Track 3 |
| 2:00 pm – 2:35 pm | The Benefits of Pulmonary Rehab, Practical Breathing Tools, and PFT Insights Rajat Suri, MD Professor of medicine in the Division of Pulmonary, Critical Care, Sleep Medicine, and Physiology at UC San Diego School of Medicine | What’s New in Alpha-1 Research? Charlie Strange, MD Professor of Pulmonary & Critical Care Medicine, Medical University of South Carolina | Alpha-1 Pediatric Research – What’s New and What’s on the Horizon Jeffrey Teckman, MD Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital |
| 2:40 pm – 3:15 pm | Advanced Lung Disease and Preparing for a Lung Transplant Rajat Walia, MD Division Chief of the Pulmonary and Critical Care Section, the Division Chief of Pulmonary Medicine, Division Chief, Pulmonary Disease, and the Medical Director of Lung Transplantation at Norton Thoracic Institute, St. Joseph’s Hospital and Medical Center | Understanding the Importance of Clinical Trials Alice Turner, MBChB, PhD, Board Member, Alpha-1 Foundation | Ask The Expert: Alpha-1 Pediatric Liver Q&A Jeffrey Teckman, MD Professor of Pediatrics & Biochemistry, Saint Louis University; Pediatric Gastroenterology and Hepatology, Cardinal Glennon Children’s Hospital |
| 3:15 pm – 3:35 pm | Break | ||
| 3:35 pm – 4:10 pm | Alpha-1 Liver Transplant: Basics, Latest Techniques, and What You Need to Know Jason Hawksworth, MD, Surgical Director of Adult Liver Transplant, Columbia University | The Big Fat Reference Guide (BFRG) by AlphaNet Charlie Strange, MD, Medical Director, AlphaNet Robert Sandhaus, MD, PhD, FCCP, Executive Vice President and Senior Medical Director, AlphaNet Christine Lanser Yllanes, Vice President of Marketing and Strategic Engagement, AlphaNet Kristen Holm, PhD, MPH, Clinical Research Director, AlphaNet | Alpha-1 Pediatric Liver 101 Rohit Kohli, MBBS, MS Chief, Division of Gastroenterology, Hepatology, and Nutrition Associate Director, The Saban Research Institute and Clinical Scholar and Professor of Pediatrics, Keck School of Medicine of USC |
| 4:15 pm – 4:50 pm | Breathing Life into Policy – Why You Should Engage in Advocacy Miriam O’Day Senior Policy Advisor, Alpha-1 Foundation | Current and New Therapies in Alpha-1 Lung: Asthma, Bronchiectasis, & Emphysema Oliver McElvaney, MD, PhD, MRCPI Division of Pulmonary and Critical Care Medicine, University of Washington | Fatty Liver Disease in Children Rohit Kohli, MBBS, MS Chief, Division of Gastroenterology, Hepatology, and Nutrition, Associate Director, The Saban Research Institute, and Clinical Scholar and Professor of Pediatrics, Keck School of Medicine of USC |
| 7:30 pm – 9:30 pm | Dinner Reception: Elegance in Purple We’re celebrating the signature Alpha-1 color PURPLE and invite you to wear it all day long. Keep it going into the evening by wearing elegant purple attire to dinner as well! Fair warning: you may not be allowed in without your PURPLE on. |
| 9:00 am – 10:30 am | Farewell Brunch |
Additional Information & Resources
Conference Venue:
San Diego Sheraton Resort
1380 Harbor Island Dr, San Diego, CA 92101
Airport
San Diego International Airport (SAN)
Transportation
Airport Shuttle
Complimentary airport shuttle service to and from San Diego International airport runs daily every 30-40 minutes from 4:45 AM – 12:00 AM. Confirm next available time with the front desk at at 619-291-2900.
Shuttle Pick-Up Locations at SAN Airport:
- Terminal 1: Cross the Sky Bridge, walk back towards the airport, and look for the “Hotel Courtesy Shuttles” sign on the third island.
- Terminal 2: From baggage claim, cross the street to the second island and look for the “Hotel Courtesy Shuttles” sign.
Key Details:
- Hours: 4:45 AM – 12:00 AM daily.
- Frequency: Every 15-20 minutes.
- Marking: Shuttles are marked with the “Sheraton San Diego Hotel & Marina” logo.
Self-parking and valet parking are available at the hotel.
There is a 20% discount for self-parking in the hotel parking lot. Please pull up to the gate to receive a ticket and then proceed to park. There is no discount for valet parking.
Additional parking is available in a lot across the street for $10 a day.
Conference Registration Desk Hours of Operation
Please stop by A1F Conference Registration in the Seascape Foyer on the Ballroom Level to pick up your conference name badge, registration bag and materials.
Thursday, June 4th: 10:00 am to 5:00 pm (closed for lunch from 12:30 to 2:00 pm)
Friday, June 5th: 8:30 am to 5:00 pm
Saturday, June 6th: 8:00 am to 2:00 pm
Exhibit Hall Hours
Grand Opening – Friday, June 5th – 8:30 am to 10:00 am
Friday, June 5th: 8:30 am to 5:00 pm
Saturday, June 6th: 8:00 am to 5:00 pm
Conference attire throughout the day is casual and comfortable. Comfortable shoes are encouraged for moving between sessions and activities.
Meeting rooms are often kept cool, so we strongly recommend bringing a sweater, jacket, or light layers to stay comfortable.
Please avoid wearing perfumes, colognes or other scented items. This can trigger a serious asthma attack for some Alphas.
Friday Dinner: Piano Bar Glam
For Friday evening, we invite you to embrace our Piano Bar Glam theme. Think classic, elevated style with a touch of sparkle and sophistication. Take inspiration ranging from sleek black outfits and satin finishes to statement accessories, bold lipstick, or a hint of vintage flair. Whether you go full glam or keep it simple with polished elegance, the goal is to have fun and enjoy a stylish night “out” with the Alpha-1 community.
Saturday: PURPLE
On Saturday, we’re celebrating the signature Alpha-1 color PURPLE and invite you to wear it all day long. Think elegant purple, whether that’s a full purple outfit, or a purple shirt, purple dress, sharp purple blazer, or even purple shoes. You can go all in or keep it simple; every touch of purple shows support for the Alpha-1 community. From subtle purple touches to full monochrome looks, we’re aiming for a sea of purple throughout the hotel.
Saturday Dinner: Elegance in Purple
On Saturday, we’re celebrating the signature Alpha-1 color PURPLE and invite you to wear it all day long. Keep it going into the evening by wearing elegant purple attire to dinner as well! Fair warning: you may not be allowed in without your PURPLE on.
Thursday, June 4th
Alpha Angels Reception & Memorial
Join us for light bites and refreshments as we remember and honor our Alpha Angels.
Friday, June 5th
Exhibit Hall Grand Opening
Enjoy breakfast and explore the Exhibit Hall for the first time this weekend!
Dinner Reception: Piano Bar Glam
For Friday evening, we invite you to embrace our Piano Bar Glam theme. Think classic, elevated style with a touch of sparkle and sophistication. Take inspiration ranging from sleek black outfits and satin finishes to statement accessories, bold lipstick, or a hint of vintage flair. Whether you go full glam or keep it simple with polished elegance, the goal is to have fun and enjoy a stylish night “out” with the Alpha-1 community.
Saturday, June 6th
Dinner Reception: Elegance in Purple
On Saturday, we’re celebrating the signature Alpha-1 color PURPLE and invite you to wear it all day long. Think elegant purple, whether that’s a full purple outfit, or a purple shirt, purple dress, sharp purple blazer, or even purple shoes. You can go all in or keep it simple; every touch of purple shows support for the Alpha-1 community. Keep it going into the evening by wearing elegant purple attire to dinner as well! Fair warning: you may not be allowed in without PURPLE on. From subtle purple touches to full monochrome looks, we’re aiming for a sea of purple throughout the hotel.
Sunday, June 7th
Farewell Brunch
Join us for brunch from 9:00 AM to 10:30 AM with the community as we say goodbye to the 2026 A1F National Conference!
COVID-19 Safety Acknowledgement
For those planning to attend in person, please read the COVID-19 Safety Acknowledgment – Event Liability Waiver and Release of Claims.
Official Conference Name Badges
All official conference name badges MUST be worn at all times while in the conference areas. Please be advised that A1F National Conference name badges must be worn at all times in order to enter the exhibit hall, attend sessions and meals. Anyone not wearing an official conference name badge will be asked to leave the conference area.
Patient Confidentiality
Due to the sensitivity of health information, we encourage you to make an informed choice about whether or not to provide your personal information to the organizations exhibiting and participating at this conference.
Photography
Please be advised that the Alpha-1 Foundation (A1F) is taking photos and video throughout the conference. All photos and video taken by the official photographer and videographer may be used in A1F publications or reproduced to be used for newsletters, promotional materials, inclusion on websites or any other purpose. You release A1F from any liability connected with the taking of photographs and video. If you do not wish to have your picture used in any publication, please let A1F know in writing.
Conference Guidelines and Disclaimers
Please note that all A1F National Conference attendees, including but not limited to, healthcare professionals, researchers, industry representatives, exhibitors, patients, caregivers, and community members, are not permitted to recruit participants for studies or clinical trials, or otherwise solicit or collect patient data or information from attendees for any research, business, or commercial purposes. Only research studies, clinical trials, and related materials that are pre-approved by A1F may be disseminated at the A1F National Conference. The Alpha-1 Research Registry and the AATD-Liver Scan (FibroScan) Study are the only programs approved to recruit participants during the A1F National Conference.
The content provided at the A1F National Conference is for learning and informational purposes, not for self-diagnosis or treatment. Please contact your physician with any questions regarding your personal health or diagnosis.
All educational content, materials, and presentations are the intellectual property of the Alpha-1 Foundation (A1F). No part of this educational conference may be recorded, reproduced, distributed, or transmitted in any form without prior authorization from A1F. The content is intended solely for educational and informational purposes.
Special Dietary Requests
The conference can reasonably accommodate special dietary needs including vegetarian, vegan and gluten free. Please indicate if you will need a special accommodation at the time of registration.
The hotel will clearly indicate allergens at buffets, if applicable. Meals provided with your registration may contain certain allergens. During plated meals, it is the responsibility of the attendee to ask hotel staff if there is a question about any ingredients.
Participants who have made a special dietary request will have it noted on their name badge in the bottom right hand corner. Please make sure to let the banquet server know that you need a special meal and show them your name badge.
Cell Phones/Electronics
Please silence cell phones and other electronic communication devices during the general and breakout sessions.
Will the educational sessions be recorded and available for later viewing?
Yes, sessions will be recorded and available to view on-demand on the virtual environment (VE) for one month following the conference. The VE will close one month after the close of the conference. Educational sessions will be available to watch in the A1F Video Library on ALPHA1.ORG by Monday, one month following the conference.
Alpha-1 Kids Room
This year, the Alpha-1 Kids Room will not be available, as no children have been registered for the National Conference. We remain committed to offering this space when needed and look forward to providing it at future events.
For general questions about the Alpha-1 Foundation National Conference, email
nationalconference@alpha1.org.
For questions about conference registration:
Kim Caraballo, Patient Outreach Manager
1-877-228-7321, Ext. 323
kcaraballo@alpha1.org
Thank you to our 2026 A1F National Conference Sponsors!
Platinum Sponsors
AlphaNet | CSL | Grifols | Sanofi | Takeda
Gold Sponsors
Advanced Infusion Care | AvevoRX | CSI Pharmacy | Evernorth Health Services – Accredo Specialty Pharmacy
Emerging Therapies in Alpha-1 Sponsors
AIRNA | Beam Therapeutics | Prime Medicine | Sanofi | Takeda | Tessera Therapeutics | Wave Life Sciences
2026 A1F National Conference Exhibitors
Advanced Aeromedical
Advanced Infusion Care
Alpha-1 Coded Testing (ACT) Study
Alpha-1 Foundation
Alpha-1 Research Registry
AlphaNet and REACH
AvevoRX
CSI Pharmacy
CSL
Evernorth Health Services – Accredo Specialty Pharmacy
Grifols
Plasma Protein Therapeutics Association (PPTA)
Takeda




