Strengthening international collaboration to improve the lives of those affected by Alpha-1.
With a deep history of international collaboration, the Alpha-1 Foundation (A1F) is proud to collaborate with representatives from over 25 countries who share a drive to improve the lives of Alphas worldwide. From events to grants, A1F’s Global Program works tirelessly with patients and stakeholders to increase awareness, detection, and access to care for Alphas around the world.
Our Impact
A1F recognizes the importance of supporting Alphas worldwide to develop and strengthen advocacy efforts within their own countries
- Global Alliances with Alpha-1 patient advocacy groups in 25+ countries worldwide
- Partnering with local representatives to enhance and support locally-driven efforts
- Supporting education and advancing knowledge on Alpha-1 within local and clinical communities
Global Events
From presenting our own research at different scientific conferences globally, to hosting advocacy and educational events and webinars, the Alpha-1 Foundation aims to ensure Alpha-1 has a presence at every relevant discussion worldwide.
Upcoming Global Events
Mark your calendars for the Alpha-1 Foundation’s 8th Global Research Conference & 11th Patient Congress, taking place in the beautiful city of Madrid, Spain on April 1-3, 2027!
This joint event promises to be a pivotal gathering for researchers, patients, and industry professionals alike, all focused on advancing our understanding and treatment of Alpha-1 Antitrypsin Deficiency.
Don’t miss this opportunity to connect, collaborate, and learn!
A1F Global Research Conference & Patient Congress
This biennial conference hosted by the Alpha-1 Foundation provides an incredible opportunity for Alpha-1 patients, family members, caregivers, researchers, and industry partners around the world to connect and hear updates on current and relevant information about Alpha-1.
Watch presentations from the previous A1F Global Research Conference & Patient Congress using our A1F Video Library.
A1F Supported Regional Events Around the World
European Advocacy at the European Parliament: In collaboration RPP Group, and in partnership with the Alpha-1 Europe Alpha-1 Alliance, A1F continues to engage policymakers across Europe to strive for fair access to plasma derived therapies, and better conditions for all Alpha-1 patients. The Alpha-1 Foundation’s engagement with EU policymaking is core to advocacy efforts in Europe because the European Union sets the overall strategic and regulatory framework for rare diseases in Europe. While health remains a national competence, the EU’s complementary role is indispensable for advancing rare disease care, providing the necessary scale and coordination to overcome challenges such as low prevalence, fragmented expertise, and limited national resources.
South/Central America Education and Advocacy: As access to diagnoses and treatment continues to expand in Latin and Central, A1F is committed to providing support to the growing base of Alpha-1 doctors through in-person and online educational events. While each country faces unique challenges, A1F is united in commitment to ensure that more people across Latin America have access to timely diagnosis, appropriate treatment, and the care they deserve.
For more information about the global program, contact Senior Director of Global Randel Plant at 877-228-7321 ext. 306, or Clinical Research & Global Outreach Manager Nadine Nuchovich at nnuchovich@alpha1.org or 877-228-7321 ext. 245
Supporting Alpha-1 Research Worldwide
Finding a cure also starts with investing in research, and to date, A1F has sponsored a balanced portfolio of basic science and translational research.
- Over $100 Million invested in research and related programs worldwide
- 130 researchers funded
For more information on A1F’s Grant Opportunities, click here.
Have questions? Please contact A1F Grants Administration Manager Vanessa Valencia at 1-877-228-7321, ext. 242, or vvalencia@alpha1.org.
