Top Stories

February 24, 2025

The Celtic Connection is coming up… Get out your green attire!

The 17th Annual Celtic Connection will take place on Saturday, March 8, 2025, at the Newton Marriott in Boston, Massachusetts. The […]

February 20, 2025

Letter to the Honorable Pam Bondi, Attorney General of the United States

Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi. February 20, […]

February 18, 2025

January 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

February 10, 2025

Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD

In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]

February 5, 2025

Sharing Her Rare Disease Story: Betrice Coleman-Sweet

As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]

February 3, 2025

A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day

Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]

January 31, 2025

The Alpha-1 Foundation Commemorates its 30th Anniversary

The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]

January 13, 2025

December 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

January 8, 2025

Create and Keep a Medication List for Your Health

Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]

December 20, 2024

November 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

December 20, 2024

Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease

Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]

December 16, 2024

Biden-Harris Administration Extends December Deadline for January Coverage for Millions of Consumers During Marketplace Open Enrollment

The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]

December 12, 2024

Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D

Full letter below: Dear Ms. Duran: We are writing to underscore the importance of the Centers for Medicare & Medicaid […]

December 6, 2024

Alpha-1 Foundation signs onto community support letter for the Rare Pediatric PRV Program

December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]

December 6, 2024

27th Gordon L. Snider (GLS) Critical Issues Workshop

Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]

December 4, 2024

2024 Alpha-1 Awareness Month: Week 4 Highlights

In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]

December 2, 2024

AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]

November 25, 2024

Foundation for Sarcoidosis Research (FSR) receives confirmation from the Department of Labor (DOL) ensuring patient access to FMLA for participation in clinical trials

FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]

November 21, 2024

Korro Receives Australian HREC Approval and CTN Clearance to Initiate Phase 1/2a Clinical Study (REWRITE) of KRRO-110 for Alpha-1 Antitrypsin Deficiency

Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]

November 20, 2024

2024 Alpha-1 Awareness Month: Week 3 Highlights

Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]

November 19, 2024

Patty Tew shares her Alpha-1 story in the Orlando Sentinel

Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]

November 13, 2024

2024 Alpha-1 Awareness Month: Week 2 Highlights

“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]

November 13, 2024

2025 Medicare Parts A & B Premiums and Deductibles

On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]

November 11, 2024

Alpha-1 Gulf Coast Bike Trek 2024

The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]

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Top Stories

The Celtic Connection is coming up… Get out your green attire!

Letter to the Honorable Pam Bondi, Attorney General of the United States

January 2025 PubMed Articles

Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD

Sharing Her Rare Disease Story: Betrice Coleman-Sweet

A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day

The Alpha-1 Foundation Commemorates its 30th Anniversary

December 2024 PubMed Articles

Create and Keep a Medication List for Your Health

November 2024 PubMed Articles

Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease

Biden-Harris Administration Extends December Deadline for January Coverage for Millions of Consumers During Marketplace Open Enrollment

Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D

Alpha-1 Foundation signs onto community support letter for the Rare Pediatric PRV Program

27th Gordon L. Snider (GLS) Critical Issues Workshop

2024 Alpha-1 Awareness Month: Week 4 Highlights

AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

Foundation for Sarcoidosis Research (FSR) receives confirmation from the Department of Labor (DOL) ensuring patient access to FMLA for participation in clinical trials

Korro Receives Australian HREC Approval and CTN Clearance to Initiate Phase 1/2a Clinical Study (REWRITE) of KRRO-110 for Alpha-1 Antitrypsin Deficiency

2024 Alpha-1 Awareness Month: Week 3 Highlights

Patty Tew shares her Alpha-1 story in the Orlando Sentinel

2024 Alpha-1 Awareness Month: Week 2 Highlights

2025 Medicare Parts A & B Premiums and Deductibles

Alpha-1 Gulf Coast Bike Trek 2024

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