November continues to raise awareness and funds for Alpha-1. This week focuses on the theme of INNOVATION. A1F is known for tackling challenges with bold, innovative solutions and INNOVATION is the heart of progress. From pioneering studies on Alpha-1 to cutting-edge trials, the team constantly seeks novel solutions that push boundaries and challenge the status quo. A1F has expanded the Therapeutic Development Network (TDN) and the Alpha-1 Research Registry to prioritize individuals who are willing and able to take part in clinical studies, bringing the Alpha-1 community closer to creating new, accessible treatments and life-changing outcomes.
A1F will be highlighting its INNOVATION throughout all outlets this week including email and social platforms, showcasing INNOVATION throughout A1F programs.
The annual American Association for the Study of Liver Diseases (AASLD) The Liver Meeting took place from November 7-11, 2025 in Washington, D.C. The Alpha-1 Foundation (A1F) was proud to exhibit at the event to the global hepatology community including clinicians, researchers, and allied health providers representing academia, clinical practice and industry. The meeting offered access to the latest breakthroughs in liver disease research, practical tools for patient care, and a powerful network of experts shaping the future of hepatology. The event provided a great opportunity to raise awareness for Alpha-1 Antitrypsin Deficiency (Alpha-1) liver disease.
A1F hosted its annual Grants Awards Reception honoring the grant awardees in the liver space. The Foundation continued to celebrate its 30th anniversary, a milestone that commemorates and honors the legacy of those who have impacted the Alpha-1 community, especially the Alphas and their families whom A1F serves. For three decades, with the insight of the Alpha-1 community, A1F has designed and launched innovative patient-focused programs and services that support Alphas along their journey, including a solid infrastructure to promote pioneering scientific research and the establishment of collaborative partnerships to advance the development of novel therapies. Read more here.
We are so proud of the incredible effort of the Alpha-1 community raising awareness and funds through the A1F Virtual Walks around the country. From Idaho to Maryland, Massachusetts to Georgia, and beyond, the Alpha-1 community continues to walk, celebrate, and share hope. Every event, every mile, and every story moves us closer to a cure for Alpha-1 Antitrypsin Deficiency (Alpha-1).
Utah Rocks for Alpha-1 in Spanish Fork, UT Led by Craig and Melanie Hamilton
The top-fundraising team of the week, Utah Rocks for Alpha-1, continues to raise the bar for creativity, community, and compassion! This year’s event raised over $13,000, following an impressive $15,000 at the 2024 event and $7,500 at the 2023 event, a remarkable three-year total of more than $35,000 in support of Alpha-1 awareness and research.
Led by Craig and Melanie Hamilton, this rock and roll evening was full of energy and heart. Friends, family, and supporters came together for live music from Bobo’s Band, a lively raffle, and a sweet “Ice Cream for Alpha-1” sundae bar filled with homemade goodies and cookies lovingly baked by Donna Thornton. Donna honors her late husband, Kreg Thornton, an Alpha who passed away seven years ago after a double-lung transplant, by continuing to support and inspire the Alpha-1 community each year.
Among the attendees were D.C. Young, co-leader of the Utah Alpha-1 Support Group, his wife Claudia Young along with his family, and fellow Alphas Ken and Julie MacNeil. Together, they walked, celebrated, and shared stories of strength, hope, and perseverance.
“What an amazing night! My friends and family all came out to support us, and it truly felt like one big Alpha family. D.C. and his family joined us, and we had four Alphas in total. Between the music, raffle, and ice cream bar, the night was full of joy and connection — and we’re already seeing donations continue to come in,” exclaimed Craig Hamilton.
Special thanks to the Hamiltons and everyone who helped make Utah Rocks for Alpha-1 another incredible success. Your dedication and spirit keep Alpha-1 awareness alive and growing across Utah and beyond!
Howard County Center for Lung and Sleep Medicine (HCCLSM) Alpha-1 Awareness Walk in Columbia, Maryland
The Howard County Center for Lung and Sleep Medicine (HCCLSM), an Alpha-1 Foundation Clinical Resource Center (CRC), partnered with the Maryland Alphas Support Group to host an Alpha-1 Awareness Walk at the Howard County Health Department. Led by Dr. David Nyanjom & Dr. Khazer Javaid and Karen Fisher-Nguyen on Saturday, November 8th.
More than 20 participants including patients, caregivers, family members, medical professionals, a Grifols representative, two congressional staffers from Congresswoman Sarah Elfreth’s office, and even two dogs enjoyed a beautiful fall morning of awareness and connection.
Dr. Nyanjom opened the walk by sharing updates on Alpha-1 research and hopeful new treatments. Participants then walked the route together before gathering to share personal stories. For several, it was their first time meeting another Alpha face-to-face.
Karen Fisher-Nguyen spoke about the John W. Walsh Alpha-1 Home Infusion Act (H.R. 2343), inviting attendees to sign a poster encouraging Congresswoman Elfreth to cosponsor the legislation to later be delivered to her staff on-site.
Team Steve in West Monroe, LA led Team Captain Memory Whitlock
This year marked the 10th anniversary of Team Steve’s participation in the A1F Virtual Walk honoring a decade of love, remembrance, and unwavering commitment to raising awareness for Alpha-1 and remembering her late husband, Steve..
Family and friends gathered in West Monroe, Louisiana, to celebrate Steve’s life and legacy. The event was filled with warmth and joy as three generations came together to walk, share memories, and continue what Memory describes as her promise to Steve to bring their family together each year in his honor and raise funds for Alpha-1 research.
“I know Steve is so proud and smiling down on us! My people listen and pay attention, “said Memory Whitelock.
Longtime supporters Diana Patterson and Annette Slayter joined the group, sharing powerful words about living with Alpha-1 and the importance of giving back. Their stories reminded everyone why this cause continues to unite the community year after year.
As Memory reflected, seeing her children and grandchildren walking alongside her this year made the milestone especially meaningful a beautiful reminder that Steve’s spirit continues to inspire hope, love, and togetherness through every step they take.
Richie Rocks Alpha-1 in Brooklyn, NY led by Team Captain Melissa Ramirez
This year’s walk was extra special for Richie Rocks Alpha-1 as Richie celebrated his 5th liver transplant anniversary on November 3, 2025. Diagnosed with Alpha-1 Antitrypsin Deficiency at two years old, Richie required a liver transplant at just four years old and today he continues to inspire his family, friends, and classmates with his courage and joy.
To mark the occasion, St. Ephrem Catholic Academy in Brooklyn, led by Principal Phillips, hosted a Purple Dress-Down Day. Students and staff proudly wore purple to raise awareness and funds for the Alpha-1 Foundation. The celebration extended beyond school as family, friends, and colleagues joined in from across the community, sharing photos and messages of support.
“Seeing everyone dressed in purple for Richie truly took our breath away,” Melissa shared, “It reminded us how far we’ve come and how much love surrounds us.”
The day was filled with smiles, learning, and gratitude, a perfect reflection of Richie’s journey and the strength of their local community.
Georgia Alphas in Macon, GA led by Team Captains Larraine Potter and Lauren Foundation
More than 30 participants enjoyed a beautiful fall walk filled with conversation and connection. Alphas Marylin Bailey and Bob Webster were among those in attendance, helping raise awareness throughout the Georgia area.
Big Red Alphas held in Omaha, NE led by Team Captains Chelsea Boring and Nora Kemmerer
It was a great day for Big Red Alphas! More than 35 people came together in true Alpha spirit to raise awareness and celebrate those affected by Alpha-1. The day was filled with energy, smiles, and plenty of “Go Big Red” pride!
A special thank-you to Congressman Don Bacon for stopping by and showing his continued support for Alpha-1 awareness and research. His presence meant so much to our team and families.
From the morning walk to the final cheers, the Big Red Alphas once again showed what it means to lead with heart, community, and purpose.
Team Mitch in Lakeville, MA led by Team Captain Lori Mitcheroney
Seventeen members of Team Mitch gathered at Castle Island in South Boston, Massachusetts to raise awareness and funds for Alpha-1. Three generations walked together in unity and hope.
During the walk, Lori met a couple who recognized the Alpha-1 Foundation name from the obituary of their late friend Liam Lynch, who lived with Alpha-1 for over 30 years. Their heartfelt exchange highlighted the importance of continued outreach and education within our communities.
Alpha Dawgs on Long Island, NY led by Team Captain Lynn Soriano
Lynn Soriano and her husband Bob proudly represented the Alpha Dawgs, walking in North Carolina this week as part of the nationwide effort to raise awareness for Alpha-1.
There is still time to register for the A1F Virtual Walk. Click here to register today!
For more information, please contact Irene Calderon, Development Manager at icalderon@alpha1.org
