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Category: Awareness

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December 3, 2025

Alpha-1 Awareness Month: Week 5 Recap 

The 30-day Alpha-1 Awareness Month campaign has been a tremendous success!  This year celebrated the Alpha-1 Foundation’s (A1F) 30th anniversary, honoring […]

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November 25, 2025

Alpha-1 Awareness Month: Week 4 Recap  

This week showcased the heart, dedication, and spirit of the Alpha-1 community as everyone raised awareness; teams and supporters walked, […]

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November 25, 2025

Alpha-1 EU Awareness Event 

A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]

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November 19, 2025

A1F Virtual Walk – Week 3 Recap 

Week 3 brought heartfelt stories, new beginnings, and meaningful moments from teams and walkers across the United States. Each walk and […]

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November 12, 2025

Alpha-1 Awareness Month: 2025 Week 2 Recap 

November continues to raise awareness and funds for Alpha-1. This week focuses on the theme of INNOVATION. A1F is known […]

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November 12, 2025

A1F raises awareness at AASLD: The Liver Meeting

The annual American Association for the Study of Liver Diseases (AASLD) The Liver Meeting took place from November 7-11, 2025 […]

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November 5, 2025

Alpha-1 Awareness Month: 2025 Week 1 Recap

November 2025 kicked off with incredible energy and creativity from the Alpha-1 community coast to coast! Teams walked, paraded, and […]

Read More… from Alpha-1 Awareness Month: 2025 Week 1 Recap

October 31, 2025

November is Alpha-1 Awareness Month 

November is Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 community to share stories and resources while raising […]

Read More… from November is Alpha-1 Awareness Month 

October 30, 2025

3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL 

The sun was shining over beautiful Dunedin, Florida, as the Alpha-1 Foundation (A1F) once again joined forces with the American Lung Association (ALA) for […]

Read More… from 3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL 

October 20, 2025

A1F 28th Gordon L. Snider Critical Issues Workshop

The 28th Gordon L. Snider (GLS) Critical Issues Workshop entitled, “AAT Polymers: Disease Pathogenesis, Detection, and Therapeutic Targeting” took place […]

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October 13, 2025

2026 Medicare Open Enrollment Webinar For Alphas

Mark Your Calendars! Medicare Open Enrollment happens from October 15th – December 7th and is the time each year when […]

Read More… from 2026 Medicare Open Enrollment Webinar For Alphas

October 8, 2025

Escape to the Cape 2025 

The Alpha-1 Foundation’s (A1F) 30th anniversary was nothing short of inspirational at the American Lung Association’s (ALA) Escape to The […]

Read More… from Escape to the Cape 2025 

September 26, 2025

Guidance for Alphas on Adult Seasonal Respiratory Vaccines

It is important for Alphas to be up-to-date on their seasonal vaccines. AlphaNet has provided a chart to keep you […]

Read More… from Guidance for Alphas on Adult Seasonal Respiratory Vaccines

September 12, 2025

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]

Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

September 4, 2025

Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary 

On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]

Read More… from Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary 

July 22, 2025

Richie Ramirez’s Alpha Story Featured on CBS Mornings

The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]

Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings

July 15, 2025

Richie’s Ice Cream for Alpha-1 Raises Over $2,100

At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]

Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100

July 3, 2025

Community Parade in Oregon Drives Awareness for Alpha-1

Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]

Read More… from Community Parade in Oregon Drives Awareness for Alpha-1

June 30, 2025

Big Red Alphas Host Second Annual “Ice Cream for Alpha-1” in Omaha, Nearly Doubling Last Year’s Impact 

OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]

Read More… from Big Red Alphas Host Second Annual “Ice Cream for Alpha-1” in Omaha, Nearly Doubling Last Year’s Impact 

June 3, 2025

A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational  

On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

Read More… from A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational  

May 23, 2025

Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino  

On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]

Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino  

May 7, 2025

Cruising for a Cure: A Beautiful Night of Purpose and Progress  

On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]

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May 6, 2025

PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]

Read More… from PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

March 13, 2025

Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients

This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]

Read More… from Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients

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