Category: Awareness

July 20, 2026

Asociación Latinoamericana de Tórax (ALAT) 19th Congress

From July 8-13, 2026, the Alpha-1 Foundation (A1F) participated in Asociación Latinoamericana de Tórax (ALAT) 19th Congress in Cartagena, Colombia. The ALAT Congress is the […]

July 14, 2026

How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

Dan Coffin shared with Bowling Green Daily News in Kentucky the importance of the SOAR (Supplemental Oxygen Access Reform) Act […]

April 25, 2026

EU Alpha-1 Awareness Day 2026

April 25, 2026 marks the ninth annual European Alpha-1 Awareness Day led by the Alpha-1 Europe Alliance, a date in which those afflicted with […]

March 3, 2026

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]

March 2, 2026

Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation

Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]

December 19, 2025

Alpha-1 Global Meeting held in Argentina

The second Latin American Alfa-1 Meeting titled “Consolidando avances, ampliando horizontes”, (“Consolidating Advances, Expanding Horizons”) was held on December 10, 2025, in Buenos Aires, Argentina. Organized by Alfa1 Argentina and supported by […]

December 3, 2025

Alpha-1 Awareness Month: Week 5 Recap

The 30-day Alpha-1 Awareness Month campaign has been a tremendous success! This year celebrated the Alpha-1 Foundation’s (A1F) 30th anniversary, honoring […]

November 25, 2025

Alpha-1 Awareness Month: Week 4 Recap

This week showcased the heart, dedication, and spirit of the Alpha-1 community as everyone raised awareness; teams and supporters walked, […]

November 25, 2025

Alpha-1 EU Awareness Event

A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]

November 19, 2025

A1F Virtual Walk – Week 3 Recap

Week 3 brought heartfelt stories, new beginnings, and meaningful moments from teams and walkers across the United States. Each walk and […]

November 12, 2025

Alpha-1 Awareness Month: 2025 Week 2 Recap

November continues to raise awareness and funds for Alpha-1. This week focuses on the theme of INNOVATION. A1F is known […]

November 12, 2025

A1F raises awareness at AASLD: The Liver Meeting

The annual American Association for the Study of Liver Diseases (AASLD) The Liver Meeting took place from November 7-11, 2025 […]

November 5, 2025

Alpha-1 Awareness Month: 2025 Week 1 Recap

November 2025 kicked off with incredible energy and creativity from the Alpha-1 community coast to coast! Teams walked, paraded, and […]

October 31, 2025

November is Alpha-1 Awareness Month

November is Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 community to share stories and resources while raising […]

October 30, 2025

3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL

The sun was shining over beautiful Dunedin, Florida, as the Alpha-1 Foundation (A1F) once again joined forces with the American Lung Association (ALA) for […]

October 20, 2025

A1F 28th Gordon L. Snider Critical Issues Workshop

The 28th Gordon L. Snider (GLS) Critical Issues Workshop entitled, “AAT Polymers: Disease Pathogenesis, Detection, and Therapeutic Targeting” took place […]

October 13, 2025

2026 Medicare Open Enrollment Webinar For Alphas

Mark Your Calendars! Medicare Open Enrollment happens from October 15th – December 7th and is the time each year when […]

October 8, 2025

Escape to the Cape 2025

The Alpha-1 Foundation’s (A1F) 30th anniversary was nothing short of inspirational at the American Lung Association’s (ALA) Escape to The […]

Read More… from Escape to the Cape 2025

September 26, 2025

Guidance for Alphas on Adult Seasonal Respiratory Vaccines

It is important for Alphas to be up-to-date on their seasonal vaccines. AlphaNet has provided a chart to keep you […]

September 12, 2025

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]

September 4, 2025

Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary

On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]

July 22, 2025

Richie Ramirez’s Alpha Story Featured on CBS Mornings

The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]

July 15, 2025

Richie’s Ice Cream for Alpha-1 Raises Over $2,100

At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]

July 3, 2025

Community Parade in Oregon Drives Awareness for Alpha-1

Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]

About Alpha-1

Find an Alpha-1 Support Group Near You

Living with Alpha-1

Alpha-1 Education

Alpha-1 Research

Join the Alpha-1 Research Registry

Get Involved

Category: Awareness

Asociación Latinoamericana de Tórax (ALAT) 19th Congress

How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

EU Alpha-1 Awareness Day 2026

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation

Alpha-1 Global Meeting held in Argentina

Alpha-1 Awareness Month: Week 5 Recap

Alpha-1 Awareness Month: Week 4 Recap

Alpha-1 EU Awareness Event

A1F Virtual Walk – Week 3 Recap

Alpha-1 Awareness Month: 2025 Week 2 Recap

A1F raises awareness at AASLD: The Liver Meeting

Alpha-1 Awareness Month: 2025 Week 1 Recap

November is Alpha-1 Awareness Month

3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL

A1F 28th Gordon L. Snider Critical Issues Workshop

2026 Medicare Open Enrollment Webinar For Alphas

Escape to the Cape 2025

Guidance for Alphas on Adult Seasonal Respiratory Vaccines

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Riding for a Reason Kicks-Off September 1: Honoring the Legacy of Fred C. Walsh & Celebrating the Alpha-1 Foundation’s 30th Anniversary

Richie Ramirez’s Alpha Story Featured on CBS Mornings

Richie’s Ice Cream for Alpha-1 Raises Over $2,100

Community Parade in Oregon Drives Awareness for Alpha-1

Newly Diagnosed

Healthcare Providers

About Us

Resources

Contact Us

About Alpha-1

Find an Alpha-1 Support Group Near You

Living with Alpha-1

Alpha-1 Education

Alpha-1 Research

Join the Alpha-1 Research Registry

Get Involved

WEBSITE SPONSORS

Newly Diagnosed

Healthcare Providers

About Us

Resources

Contact Us