Category: Advocacy

August 25, 2026

Living with Alpha-1 and Supplemental Oxygen: Why We Need the SOAR Act

Debbi Webb-Howells, an A1F Support Group Leader, wrote an article published in the Richmond Times-Dispatch highlighting the importance of supplemental […]

July 14, 2026

How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

Dan Coffin shared with Bowling Green Daily News in Kentucky the importance of the SOAR (Supplemental Oxygen Access Reform) Act […]

April 17, 2026

A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH

The Alpha-1 Foundation (A1F) joined the 95 undersigned organizations, including patient advocacy groups, professional scientific and medical societies are profoundly […]

March 3, 2026

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]

March 2, 2026

Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation

Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]

September 26, 2025

Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

Early September, Alpha-1 Foundation (A1F) advocates from across the country gathered in Washington, DC, for a Lobby Day bringing the […]

September 25, 2025

A1F Endorses Safe Step Act Patient Protection Bill

The Alpha-1 Foundation proudly joins the broad coalition of more than 200 organizations endorsing the Safe Step Act and stand […]

September 12, 2025

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]

June 30, 2025

Alphas, Take Action Today! June 2025 Advocacy Action Alerts

We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]

November 13, 2024

2025 Medicare Parts A & B Premiums and Deductibles

On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]

October 17, 2024

Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]

June 24, 2024

Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]

February 29, 2024

Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]

October 25, 2023

How You Can Donate Plasma and Save a Life

Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]

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Category: Advocacy

Living with Alpha-1 and Supplemental Oxygen: Why We Need the SOAR Act

How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin

A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH

Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency

Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation

Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

A1F Endorses Safe Step Act Patient Protection Bill

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Alphas, Take Action Today! June 2025 Advocacy Action Alerts

2025 Medicare Parts A & B Premiums and Deductibles

Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

How You Can Donate Plasma and Save a Life

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