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Dan Coffin shared with Bowling Green Daily News in Kentucky the importance of the SOAR (Supplemental Oxygen Access Reform) Act […]
Read More… from How my Alpha-1 Diagnosis Led Me to SOAR Act Advocacy by Dan Coffin
The Alpha-1 Foundation (A1F) joined the 95 undersigned organizations, including patient advocacy groups, professional scientific and medical societies are profoundly […]
Read More… from A1F joins Research Community in Strongly Opposing Proposed Cuts to NIH
A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]
Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]
Read More… from Rare Disease Day 2026: Advocacy & Awareness | Alpha-1 Foundation
Early September, Alpha-1 Foundation (A1F) advocates from across the country gathered in Washington, DC, for a Lobby Day bringing the […]
Read More… from Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access
The Alpha-1 Foundation proudly joins the broad coalition of more than 200 organizations endorsing the Safe Step Act and stand […]
Read More… from A1F Endorses Safe Step Act Patient Protection Bill
Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]
Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program
We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]
Read More… from Alphas, Take Action Today! June 2025 Advocacy Action Alerts
On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]
Read More… from 2025 Medicare Parts A & B Premiums and Deductibles
Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]
Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1
Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]
WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]
Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]
