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Category: Awareness

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May 7, 2025

Cruising for a Cure: A Beautiful Night of Purpose and Progress  

On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]

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May 6, 2025

PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]

Read More… from PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

March 13, 2025

Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients

This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]

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March 5, 2025

A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action

On Friday, February 28th, 2025, the Alpha-1 Foundation (A1F) celebrated Rare Disease Day, bringing the entire community together in various […]

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February 10, 2025

Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD

In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]

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February 5, 2025

Sharing Her Rare Disease Story: Betrice Coleman-Sweet

As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]

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December 4, 2024

2024 Alpha-1 Awareness Month: Week 4 Highlights

In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]

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November 20, 2024

2024 Alpha-1 Awareness Month: Week 3 Highlights

Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]

Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights

November 19, 2024

Patty Tew shares her Alpha-1 story in the Orlando Sentinel

Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]

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November 13, 2024

2024 Alpha-1 Awareness Month: Week 2 Highlights

“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]

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November 11, 2024

Alpha-1 Gulf Coast Bike Trek 2024 

The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]

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October 31, 2024

“The Power to Connect”: November is Alpha-1 Awareness Month! 

Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]

Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month! 

July 10, 2024

Raising Alpha-1 Awareness in Oregon

Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]

Read More… from Raising Alpha-1 Awareness in Oregon

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