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The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]
On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Read More… from A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational
On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]
Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino
On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]
Read More… from Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients
On Friday, February 28th, 2025, the Alpha-1 Foundation (A1F) celebrated Rare Disease Day, bringing the entire community together in various […]
Read More… from A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action
In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]
Read More… from Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD
As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]
Read More… from Sharing Her Rare Disease Story: Betrice Coleman-Sweet
In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]
Read More… from 2024 Alpha-1 Awareness Month: Week 4 Highlights
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]
Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel
“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights
The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]
Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]
Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month!
Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]
