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The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Faron Schonfeld. Faron spent 18 years […]
Read More… from Alpha-1 Foundation welcomes new Board of Director, Faron Schonfeld
Thank you for being part of the 2021 Virtual Alpha-1 National Conference! You, the Alphas, are the center of everything […]
Read More… from Day 3 Recap: Virtual Alpha-1 National Conference
Thank you for participating in DAY TWO of the 2021 Virtual Alpha-1 National Conference. Today was a great day of interaction, […]
Read More… from DAY TWO RECAP: 2021 Virtual Alpha-1 National Conference
Thank you for registering and joining the first day of the 2021 Virtual Alpha-1 National Conference. Today we were joined […]
Read More… from DAY ONE RECAP: 2021 Virtual Alpha-1 National Conference
June 11, 2021 “The Alpha-1 Foundation looks forward to continuing to work with Vertex in their drive to develop primary […]
June 9, 2021- FOR IMMEDIATE RELEASE The 2021 Virtual Alpha-1 National Conference will take place from June 10th– June 12th, […]
Read More… from The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference
Jeanine D’Armiento, MD, PhD, Chair of the Alpha-1 Foundation Board of Directors, has been nominated and selected by the Columbia […]
Read More… from Dr. Jeanine D’Armiento receives distinguished honor at Columbia University
STATEMENT UPDATED: May 26, 2021 Please note, this statement is specific to the United States. If you are an individual […]
Read More… from Updated COVID-19 Guidance & Recommendations for Alphas
TO: Alpha-1 Community FROM: Alpha-1 Foundation Board of Directors RE: Leadership Transition Announcement DATE: 5/21/2021 We are writing to announce […]
Read More… from Alpha-1 Foundation Leadership Transition Announcement
1020 First Avenue • King of Prussia, PA 19406-0901 CSL.com CSLBehring.com May 21, 2021 ANNOUNCEMENT RECEIVED FROM CSL BEHRING CSL […]
Read More… from Announcement: ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
(MIAMI, FL) – The Alpha-1 Foundation is excited to announce our guest speaker, Sally Struthers, for the “All in for […]
May 6, 2021, WASHINGTON, D.C. – 32 organizations representing millions of people with pre-existing conditions urge Congress and the Administration […]
“The Arrowhead Pharmaceuticals Inc. interim study results from the open label phase 2 clinical ARO-AAT, a RNAi therapy, provide proof […]
We are excited to announce that Senators Amy Klobuchar (D-MN) and Roger Wicker (R-MS) introduced the Plasma Donation Awareness Act […]
Updated COVID-19 Guidance for Alphas STATEMENT UPDATED: April 16, 2021 Please note, this statement is specific to the United States. […]
Read More… from Updated COVID-19 Guidance for Alphas: April 16, 2021
The US COPD Coalition (USCC) has announced their next webinar, which will feature Allison Cihla, MD, Medical Director of Intensive […]
Read More… from Benefits of Pulmonary Rehabilitation in COPD Webinar: A Review of Recent Literature
The Alpha-1 Foundation hosted the virtual 22nd Gordon L. Snider Critical Issues Workshop entitled, CT Lung Density Estimates in Alpha-1 […]
Read More… from 22nd Gordon L. Snider Critical Issues Workshop
Over 16 million people in the US have COPD1 and up to 60% of COPD cases go undiagnosed. According to […]
Read More… from National Pulmonary Rehabilitation Wellness Day on Wednesday, April 7th
The Alpha-1 Foundation has received the following correspondence from Grifols on March 26, 2021: March 26, 2021 RE: Voluntary […]
Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462
March 24, 2021 President Joe Biden The White House 1600 Pennsylvania Avenue, N.W. Washington, D.C. 20500 Dear President Biden: On […]
Read More… from Sign-On Letter to President Biden on the RISE Act
March 25, 2021- The Alpha-1 Foundation received this Patient Notification System from Grifols Therapeutics LLC PNS Notification from Stericycle […]
March 22, 2021 The Honorable Frank Pallone Chairman Committee on Energy and Commerce 2125 Rayburn House Office Building Washington, DC […]
Read More… from “Building on the ACA: Legislation to Expand Health Coverage and Lower Costs
Readers discuss equity issues in U.S. eligibility and the decision to send some of the U.S. stockpile to other countries. […]
The Alpha-1 Foundation is proud to share this correspondence from our membership organization. Statement of Confirmation of Secretary Becerra and […]
