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STATEMENT UPDATED: May 26, 2021 Please note, this statement is specific to the United States. If you are an individual […]
Read More… from Updated COVID-19 Guidance & Recommendations for Alphas
TO: Alpha-1 Community FROM: Alpha-1 Foundation Board of Directors RE: Leadership Transition Announcement DATE: 5/21/2021 We are writing to announce […]
Read More… from Alpha-1 Foundation Leadership Transition Announcement
1020 First Avenue • King of Prussia, PA 19406-0901 CSL.com CSLBehring.com May 21, 2021 ANNOUNCEMENT RECEIVED FROM CSL BEHRING CSL […]
Read More… from Announcement: ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
(MIAMI, FL) – The Alpha-1 Foundation is excited to announce our guest speaker, Sally Struthers, for the “All in for […]
May 6, 2021, WASHINGTON, D.C. – 32 organizations representing millions of people with pre-existing conditions urge Congress and the Administration […]
“The Arrowhead Pharmaceuticals Inc. interim study results from the open label phase 2 clinical ARO-AAT, a RNAi therapy, provide proof […]
We are excited to announce that Senators Amy Klobuchar (D-MN) and Roger Wicker (R-MS) introduced the Plasma Donation Awareness Act […]
Updated COVID-19 Guidance for Alphas STATEMENT UPDATED: April 16, 2021 Please note, this statement is specific to the United States. […]
Read More… from Updated COVID-19 Guidance for Alphas: April 16, 2021
The US COPD Coalition (USCC) has announced their next webinar, which will feature Allison Cihla, MD, Medical Director of Intensive […]
Read More… from Benefits of Pulmonary Rehabilitation in COPD Webinar: A Review of Recent Literature
The Alpha-1 Foundation hosted the virtual 22nd Gordon L. Snider Critical Issues Workshop entitled, CT Lung Density Estimates in Alpha-1 […]
Read More… from 22nd Gordon L. Snider Critical Issues Workshop
Over 16 million people in the US have COPD1 and up to 60% of COPD cases go undiagnosed. According to […]
Read More… from National Pulmonary Rehabilitation Wellness Day on Wednesday, April 7th
The Alpha-1 Foundation has received the following correspondence from Grifols on March 26, 2021: March 26, 2021 RE: Voluntary […]
Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462
March 24, 2021 President Joe Biden The White House 1600 Pennsylvania Avenue, N.W. Washington, D.C. 20500 Dear President Biden: On […]
Read More… from Sign-On Letter to President Biden on the RISE Act
March 25, 2021- The Alpha-1 Foundation received this Patient Notification System from Grifols Therapeutics LLC PNS Notification from Stericycle […]
March 22, 2021 The Honorable Frank Pallone Chairman Committee on Energy and Commerce 2125 Rayburn House Office Building Washington, DC […]
Read More… from “Building on the ACA: Legislation to Expand Health Coverage and Lower Costs
Readers discuss equity issues in U.S. eligibility and the decision to send some of the U.S. stockpile to other countries. […]
The Alpha-1 Foundation is proud to share this correspondence from our membership organization. Statement of Confirmation of Secretary Becerra and […]
Happy St. Patrick’s Day from the Alpha-1 Foundation St. Patrick’s Day is celebrated annually on March 17, the anniversary of […]
Read More… from Happy St. Patrick’s Day from The Alpha-1 Foundation
Announcing the 2021 Celtic Connection Shillelagh Award: Dedicated to our COVID-19 Researchers and Frontline Workers The 13th Annual Celtic Connection […]
The Alpha-1 Foundation received the following correspondence from the National Organization for Rare Disorder’s policy team on March 12th, 2021: […]
Read More… from What does the COVID relief bill mean for rare disease patients?
It is with great sadness that we share the news that veteran AlphaNet Coordinator Gayle Allison Tipper passed away on […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Veteran Coordinator Gayle Tipper
The Alpha-1 Foundation has received the following correspondence from the EveryLife Foundation regarding the introduction of the STAT Act: I […]
The Alpha-1 Foundation received the following correspondence from Grifols on March 10, 2021: As part of our ongoing commitment to […]
Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A1GLE01532, A1GLE01542 & A4GLE01482
Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact […]
Read More… from Professor Gerry McElvaney wins HRB Impact Award 2021
