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Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]
Read More… from CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from Increase Alpha-1 Awareness on Rare Disease Day 2023
February 13, 2021 The Honorable Charles Schumer […]
Read More… from Patient Community Healthcare Priorities for the 118th Congress
Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices […]
NHLBI funded research shows alpha-1-antitrypsin deficient (AATD) individuals with normal lung function have lower respiratory tract mild inflammation. More research […]
James E. Gadek, 76, passed away on January 24, 2023. He was born in Elizabeth, New Jersey on September 23, […]
Read More… from The Alpha-1 Foundation mourns the loss of Dr. James Gadek
The Alpha-1 Foundation wants you to have the knowledge to protect yourself and your family against health insurance fraud and […]
Read More… from Protect Yourself Against Health Insurance Fraud
Designed to advance the knowledge and improve the diagnostic and treatment competence of healthcare providers caring for patients with Alpha-1. […]
The Science of Healing: Alpha-1 Antitrypsin Deficiency Alpha-1 Foundation research grant funding has supported his work to better understand the […]
Read More… from Dr. Jeffrey Teckman’s Liver Research Video Feature
Winter Wellness by Dr. Robert A. Sandhaus Featured in Alpha-1-to-One Magazine: Ask the Alpha Doc Winter 2022 Q: Should I […]
On December 23, 2022, Alpha-1 Canada was informed that the Conference of Deputy Ministers of Health authorized Canadian Blood Services […]
CSL Behring asked leaders in patient advocacy to share examples of creativity and innovation in 2022. Learn what they’re most […]
Wave Life Sciences recently hosted Alpha Dan Coffin and his wife Kathi at their offices to speak with employees about […]
“This model gives us the ability to study injury to liver cells resulting from both MZ and ZZ genotypes. This […]
Week #4 of the Virtual Walk has come to an end… and the feeling of THANKFULNESS for the Alpha-1 community […]
Read More… from November Alpha-1 Awareness Month: Week 4 Recap
It is with great sadness that we share the news that AlphaNet Coordinator Doug Turley passed away on November 22, […]
Read More… from The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Doug Turley
Week 3 for the Virtual Walk was a huge success! We had many individual walkers from across the country out […]
Congratulations to Rob Ploke who submitted Kangchenjunga the third-highest mountain in the world at 28,169 feet. Rob, a longtimefriend of […]
The second week of the Alpha-1 Virtual Walks was a huge success! We are officially at the halfway mark of […]
Read More… from Week 2 Recap: Let’s Cure It! Alpha-1 Awareness Month
FOR IMMEDIATE RELEASE November 10, 2022- The Alpha-1 Foundation announces the appointment of Andrew A. Wilson, MD as its new […]
Read More… from Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director
November is finally here and with it comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On November […]
Grifols receives FDA clearance for AlphaID™ At Home, the first free service for U.S. consumers to determine their risk for […]
Read More… from Grifols receives FDA clearance for AlphaID™ At Home
– Initiates first-in-human trial of next-wave AAT corrector, VX-634 – Phase 2 study evaluating the impact of longer-term treatment with VX-864 to […]
Read More… from Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency
TUCSON, Ariz., Oct. 6, 2022 — Critical Path Institute (C-Path) today announced that it has recently launched a pre-consortium collaboration […]
