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FOR IMMEDIATE RELEASE: Beam Therapeutics announced compelling updated clinical data from the ongoing Phase 1/2 trial of BEAM-302 in Alpha-1 […]
Read More… from Beam Therapeutics Announces Update on BEAM-302
FDA NEWS RELEASE The U.S. Food and Drug Administration today issued draft guidance for sponsors seeking approval for targeted individualized […]
“We are thrilled with Wave Life Sciences commitment to the Alpha-1 patient community. Their acceleration of regulatory engagement of the […]
PRESS RELEASE SOMERVILLE, Mass., January 12, 2026 /GLOBE NEWSWIRE/ Tessera Therapeutics, the biotechnology company pioneering a new approach in genetic […]
“Thank you to the Alpha-1 patients that participated in this important clinical trial, InnovAATe. It is because of the dedication of patients […]
Read More… from Kamada Announces Discontinuation of its Phase 3 Inhaled AAT Clinical Trial
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
Honoring Three Decades of Research & Collaboration The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of […]
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]
Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month!
Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]
Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium
On April 18th, the Alpha-1 Foundation was proud to celebrate Grifols 50th anniversary of its flagship site in Clayton, NC. Grifols […]
Read More… from Grifols Celebrates 50th Anniversary of its Flagship Site
Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser
Saturday, March 9, 2024 / 7:00 pm- 11:00 PM
Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]
November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]
FOR IMMEDIATE RELEASE November 10, 2022- The Alpha-1 Foundation announces the appointment of Andrew A. Wilson, MD as its new […]
Read More… from Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director
FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]
“The update shared this week by Inhibrx on their Recombinant Alpha-1-antitrypsin (INBRX-101) is exciting news for the Alpha-1 Community. The […]
Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for […]
Read More… from CSL Behring announcement on their product Zemaira
FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Scott Santarella as the new President and Chief Executive […]
Read More… from The Alpha-1 Foundation selects new President and Chief Executive Officer
A company that profits from the sale of tobacco products that cause COPD should not profit from the sale of […]
Read More… from COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company
June 9, 2021- FOR IMMEDIATE RELEASE The 2021 Virtual Alpha-1 National Conference will take place from June 10th– June 12th, […]
Read More… from The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference
“Joe Zuraw has been a friend to the Alpha-1 Community for more than 20 years, he has worked tirelessly on […]
