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Category: Press Release

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May 9, 2025

A1F Celebrates 30th Anniversary at 2025 ATS

Honoring Three Decades of Research & Collaboration  The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]

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May 5, 2025

Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

FOR IMMEDIATE RELEASE  MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]

Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

March 27, 2025

Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease

On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of […]

Read More… from Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease

January 31, 2025

The Alpha-1 Foundation Commemorates its 30th Anniversary

The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]

Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary

December 2, 2024

AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]

Read More… from AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

October 31, 2024

“The Power to Connect”: November is Alpha-1 Awareness Month! 

Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]

Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month! 

August 6, 2024

C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]

Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

April 29, 2024

Grifols Celebrates 50th Anniversary of its Flagship Site

On April 18th, the Alpha-1 Foundation was proud to celebrate Grifols 50th anniversary of its flagship site in Clayton, NC.  Grifols […]

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February 20, 2024

Celtic Connection 2024

Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser

Saturday, March 9, 2024 / 7:00 pm- 11:00 PM

Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]

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November 7, 2023

GLASSIA® (Takeda) Augmentation Therapy Added to the Canadian Blood Services’ Formulary

November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]

Read More… from GLASSIA® (Takeda) Augmentation Therapy Added to the Canadian Blood Services’ Formulary

November 10, 2022

Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director

FOR IMMEDIATE RELEASE November 10, 2022- The Alpha-1 Foundation announces the appointment of Andrew A. Wilson, MD as its new […]

Read More… from Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director

April 1, 2022

Introduction of H.R. 7346: John W. Walsh Home Infusion Act in the House of Representatives

FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]

Read More… from Introduction of H.R. 7346: John W. Walsh Home Infusion Act in the House of Representatives

October 14, 2021

INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

“The update shared this week by Inhibrx on their Recombinant Alpha-1-antitrypsin (INBRX-101) is exciting news for the Alpha-1 Community. The […]

Read More… from INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

October 8, 2021

CSL Behring announcement on their product Zemaira

Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for […]

Read More… from CSL Behring announcement on their product Zemaira

September 30, 2021

The Alpha-1 Foundation selects new President and Chief Executive Officer

FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Scott Santarella as the new President and Chief Executive […]

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August 20, 2021

COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

A company that profits from the sale of tobacco products that cause COPD should not profit from the sale of […]

Read More… from COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

June 9, 2021

The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference

June 9, 2021- FOR IMMEDIATE RELEASE The 2021 Virtual Alpha-1 National Conference will take place from June 10th– June 12th, […]

Read More… from The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference

November 10, 2020

AlphaNet Honors Joe Zuraw with Donation to John W. Walsh Translational Research Fund and Annual National Conference Travel Fund for Alphas

“Joe Zuraw has been a friend to the Alpha-1 Community for more than 20 years, he has worked tirelessly on […]

Read More… from AlphaNet Honors Joe Zuraw with Donation to John W. Walsh Translational Research Fund and Annual National Conference Travel Fund for Alphas

November 2, 2020

Announcing the Establishment of the Alpha-1 Foundation Therapeutic Development Network (TDN)

FOR IMMEDIATE RELEASE November 2, 2020- The Alpha-1 Foundation is proud to announce the establishment of the Alpha-1 Foundation Therapeutic […]

Read More… from Announcing the Establishment of the Alpha-1 Foundation Therapeutic Development Network (TDN)

October 30, 2020

Get excited for November Alpha-1 Awareness Month!

Miami, October 30, 2020 – Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise […]

Read More… from Get excited for November Alpha-1 Awareness Month!

August 19, 2020

NIH Awards Multicenter Rare Disease Grant to Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease

August 18, 2020 The National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI) has announced the award […]

Read More… from NIH Awards Multicenter Rare Disease Grant to Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease

April 1, 2020

Centers for Medicare & Medicaid Services Announcement on Home Infusions During COVID-19

For Immediate Release   April 1, 2020 -Alphas on Medicare have a new Choice! The Centers for Medicare and Medicaid […]

Read More… from Centers for Medicare & Medicaid Services Announcement on Home Infusions During COVID-19

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