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Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi. February 20, […]
Read More… from Letter to the Honorable Pam Bondi, Attorney General of the United States
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]
Read More… from Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD
As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]
Read More… from Sharing Her Rare Disease Story: Betrice Coleman-Sweet
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
Full letter below: Dear Ms. Duran: We are writing to underscore the importance of the Centers for Medicare & Medicaid […]
Read More… from Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D
December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]
Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]
Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop
In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]
Read More… from 2024 Alpha-1 Awareness Month: Week 4 Highlights
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]
Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]
Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel
“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights
On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]
Read More… from 2025 Medicare Parts A & B Premiums and Deductibles
The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]
“The Power to Connect” has already joined the community for Alpha-1 Awareness in the first week in November! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 1 Highlights
