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November is Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 community to share stories and resources while raising […]
The sun was shining over beautiful Dunedin, Florida, as the Alpha-1 Foundation (A1F) once again joined forces with the American Lung Association (ALA) for […]
Read More… from 3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL
It is with deep sadness that we share the news that AlphaNet Coordinator Lisa Riddle passed away on Monday, October […]
Read More… from Alpha-1 Community Mourns the loss of Lisa Riddle
October 22, 2025- The Alpha-1 Foundation (A1F) is proud to share the news that Sanofi’s efdoralprin alfa has met all […]
Read More… from Positive results from Sanofi’s Phase 2 Investigational Drug
The 28th Gordon L. Snider (GLS) Critical Issues Workshop entitled, “AAT Polymers: Disease Pathogenesis, Detection, and Therapeutic Targeting” took place […]
Read More… from A1F 28th Gordon L. Snider Critical Issues Workshop
Mark Your Calendars! Medicare Open Enrollment happens from October 15th – December 7th and is the time each year when […]
Read More… from 2026 Medicare Open Enrollment Webinar For Alphas
The Alpha-1 Foundation’s (A1F) 30th anniversary was nothing short of inspirational at the American Lung Association’s (ALA) Escape to The […]
It is important for Alphas to be up-to-date on their seasonal vaccines. AlphaNet has provided a chart to keep you […]
Read More… from Guidance for Alphas on Adult Seasonal Respiratory Vaccines
Early September, Alpha-1 Foundation (A1F) advocates from across the country gathered in Washington, DC, for a Lobby Day bringing the […]
Read More… from Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access
The Alpha-1 Foundation proudly joins the broad coalition of more than 200 organizations endorsing the Safe Step Act and stand […]
Read More… from A1F Endorses Safe Step Act Patient Protection Bill
Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]
Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program
On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]
Read More… from Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational
Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]
Read More… from Alpha, Betsy Scher Shares Sweet Support for Alpha-1
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]
The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
More than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement […]
Read More… from Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access
Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can lead to serious lung and liver disease, is featured in the […]
Read More… from Medical Stories Season Premiere Spotlights Alpha-1
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th through June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
