Top Stories

July 31, 2025

Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational

The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]

July 29, 2025

Alpha, Betsy Scher Shares Sweet Support for Alpha-1

Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]

July 29, 2025

The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Kathie Sivesind

It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]

July 22, 2025

Richie Ramirez’s Alpha Story Featured on CBS Mornings

The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]

July 15, 2025

Richie’s Ice Cream for Alpha-1 Raises Over $2,100

At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]

July 10, 2025

Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access

More than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement […]

July 10, 2025

Medical Stories Season Premiere Spotlights Alpha-1

Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can lead to serious lung and liver disease, is featured in the […]

July 9, 2025

June 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

July 3, 2025

Community Parade in Oregon Drives Awareness for Alpha-1

Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]

July 3, 2025

View Photos from 2025 A1F National Conference

The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th thru June 8th in Miami, Florida. This year, A1F […]

June 30, 2025

Alphas, Take Action Today! June 2025 Advocacy Action Alerts

We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]

June 30, 2025

Big Red Alphas Host Second Annual “Ice Cream for Alpha-1” in Omaha, Nearly Doubling Last Year’s Impact

OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]

June 16, 2025

May 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

June 10, 2025

Join the movement to support the need for National Institutes of Health (NIH) funding

Stand Up for Science is circulating a letter aimed at collecting individual signatures to support the need for NIH funding. […]

June 10, 2025

June 2025 Alpha-1 COVID Vaccine Guidance

The medical leadership team at the Alpha-1 Foundation has provided an updated Statement for the Alpha-1 Antitrypsin Deficiency Community: Understanding the […]

June 3, 2025

A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational

On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

May 30, 2025

The 2025 A1F National Conference Celebrates 30 Years

The Alpha-1 Foundation (A1F) is proud to host the 2025 A1f National Conference from June 6th thru June 8th in Miami, Florida. […]

May 23, 2025

A1F recognizes 2025 Grant Award Recipients during ATS

On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco […]

May 23, 2025

Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino

On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]

May 22, 2025

New Protections and paid time off (PTO) for Clinical Trial Participation – What It Means for the Alpha-1 Community

An exciting national effort is making it easier for patients and caregivers to participate in clinical research. The Champions for Change […]

May 9, 2025

A1F Celebrates 30th Anniversary at 2025 ATS

Honoring Three Decades of Research & Collaboration The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]

May 7, 2025

Cruising for a Cure: A Beautiful Night of Purpose and Progress

On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]

May 6, 2025

PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]

May 5, 2025

Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]

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Top Stories

Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational

Alpha, Betsy Scher Shares Sweet Support for Alpha-1

The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Kathie Sivesind

Richie Ramirez’s Alpha Story Featured on CBS Mornings

Richie’s Ice Cream for Alpha-1 Raises Over $2,100

Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access

Medical Stories Season Premiere Spotlights Alpha-1

June 2025 PubMed Articles

Community Parade in Oregon Drives Awareness for Alpha-1

View Photos from 2025 A1F National Conference

Alphas, Take Action Today! June 2025 Advocacy Action Alerts

Big Red Alphas Host Second Annual “Ice Cream for Alpha-1” in Omaha, Nearly Doubling Last Year’s Impact

May 2025 PubMed Articles

Join the movement to support the need for National Institutes of Health (NIH) funding

June 2025 Alpha-1 COVID Vaccine Guidance

A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational

The 2025 A1F National Conference Celebrates 30 Years

A1F recognizes 2025 Grant Award Recipients during ATS

Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino

New Protections and paid time off (PTO) for Clinical Trial Participation – What It Means for the Alpha-1 Community

A1F Celebrates 30th Anniversary at 2025 ATS

Cruising for a Cure: A Beautiful Night of Purpose and Progress

PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

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