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Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]
Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1
Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]
The Alpha-1 Foundation was proud to partner for the 28th year with the American Lung Association (ALA) at the 40th […]
Michael Allen, Alpha and Support Group Co-Leader from Schenectady, New York continues his virtual fundraising campaign in 2024. The Alpha-1 […]
Photo (left to right): Judy Thomas, Karin Pittsley, Liz Chase, Lori Mitcheroney, Liz Reid, Joyce Croci, Michaela Perry On Saturday, […]
Read More… from MassAlpha Support Group Thanks Plasma Donors
It is with great sadness that we share the news that Alpha-1 community leader Fred Walsh passed away peacefully on […]
Read More… from In memory of Fred Walsh, beloved Alpha and Friend
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
World Oxygen Day celebrates everyone who benefits from oxygen therapy. From babies to adults, millions of people rely on oxygen […]
Read More… from Recognizing World Oxygen Day, October 2, 2024
Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]
Read More… from Alpha-1 Foundation Mourns the Loss of Fred Walsh
Medicare patients in the Part D prescription drug program often face significant out-of-pocket costs early in the year while trying […]
Read More… from New Medicare Prescription Payment Plan – A Patient’s Guide
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The ERS International Congress 2024 is happening in Vienna, Austria, hosted by The European Respiratory Society (ERS). This is the largest […]
Celebrating 40 Years of the American Lung Association’s (ALA) Escape to the Cape and 28 Years of Partnership with the […]
Daniel Grimm spent decades as a certified professional driver of tractor-trailers, hauling loads up and down the East Coast. It […]
Read More… from Living well with Alpha-1: One man’s journey from truck driving to advocacy
Mark Brantly1, James Stocks2, Jorge Lascano1, Tammy Flagg1, Ann M. Jeffers2, Shuzi Z. Owens2, Torry A. Tucker2, Megan Devine2 Noga […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]
Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium
“For many years we have known that most kids with ZZ Alpha-1 do fine, but a few get very sick […]
Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]
Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article. Thank you to […]
Read More… from Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations
Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]
On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]
On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]
