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Top Stories

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May 23, 2025

Alpha-1 Foundation recognizes 2025 Grant Award Recipients during ATS 

On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco […]

Read More… from Alpha-1 Foundation recognizes 2025 Grant Award Recipients during ATS 

May 23, 2025

Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino  

On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]

Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino  

May 22, 2025

New Protections and paid time off (PTO) for Clinical Trial Participation – What It Means for the Alpha-1 Community

An exciting national effort is making it easier for patients and caregivers to participate in clinical research. The Champions for Change […]

Read More… from New Protections and paid time off (PTO) for Clinical Trial Participation – What It Means for the Alpha-1 Community

May 9, 2025

A1F Celebrates 30th Anniversary at 2025 ATS

Honoring Three Decades of Research & Collaboration  The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]

Read More… from A1F Celebrates 30th Anniversary at 2025 ATS

May 7, 2025

Cruising for a Cure: A Beautiful Night of Purpose and Progress  

On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]

Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress  

May 6, 2025

PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]

Read More… from PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion

May 5, 2025

Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

FOR IMMEDIATE RELEASE  MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]

Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For

May 2, 2025

April 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from April 2025 PubMed Articles

May 1, 2025

Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1

FOR IMMEDIATE RELEASE  MAY 1, 2025- “I scream, you scream, we all scream for Ice Cream for Alpha-1”. The Alpha-1 […]

Read More… from Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1

April 25, 2025

A1F signs-on urging Congress to cosponsor the SOAR Act

The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]

Read More… from A1F signs-on urging Congress to cosponsor the SOAR Act

April 15, 2025

March 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from March 2025 PubMed Articles

April 15, 2025

February 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from February 2025 PubMed Articles

April 4, 2025

A1F proudly convenes the 7th Global Research Conference & 10th Patient Congress in Lisbon, Portugal 

The Alpha-1 Foundation’s (A1F) 7th Global Research Conference & 10th Patient Congress kicks off today in Lisbon, Portugal. With a […]

Read More… from A1F proudly convenes the 7th Global Research Conference & 10th Patient Congress in Lisbon, Portugal 

March 27, 2025

Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease

On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of […]

Read More… from Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease

March 19, 2025

Korro Bio provides update on progress made: KRRO-110

Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]

Read More… from Korro Bio provides update on progress made: KRRO-110

March 17, 2025

The Celtic Connection honors St. Patrick’s Day and the Legacy of Fred C. Walsh  

Today, St. Patrick’s Day is celebrated annually on March 17. Today, people of all backgrounds celebrate St. Patrick’s Day, especially […]

Read More… from The Celtic Connection honors St. Patrick’s Day and the Legacy of Fred C. Walsh  

March 13, 2025

Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients

This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]

Read More… from Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients

March 12, 2025

Nature Genetics: Alpha-1 Research Publication March 2025

Selection for somatic escape variants in SERPINA1 in the liver of patients with alpha-1 antitrypsin deficiency “This exciting study provides evidence of […]

Read More… from Nature Genetics: Alpha-1 Research Publication March 2025

March 11, 2025

Mutated DNA Restored to Normal in Gene Therapy Advance

Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]

Read More… from Mutated DNA Restored to Normal in Gene Therapy Advance

March 5, 2025

A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action

On Friday, February 28th, 2025, the Alpha-1 Foundation (A1F) celebrated Rare Disease Day, bringing the entire community together in various […]

Read More… from A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action

February 24, 2025

The Celtic Connection is coming up… Get out your green attire! 

The 17th Annual Celtic Connection will take place on Saturday, March 8, 2025, at the Newton Marriott in Boston, Massachusetts. The […]

Read More… from The Celtic Connection is coming up… Get out your green attire! 

February 20, 2025

Letter to the Honorable Pam Bondi, Attorney General of the United States

Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi.  February 20, […]

Read More… from Letter to the Honorable Pam Bondi, Attorney General of the United States

February 18, 2025

January 2025 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from January 2025 PubMed Articles

February 10, 2025

Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD

In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]

Read More… from Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD

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