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The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
Full letter below: Dear Ms. Duran: We are writing to underscore the importance of the Centers for Medicare & Medicaid […]
Read More… from Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D
December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]
Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]
Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop
In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]
Read More… from 2024 Alpha-1 Awareness Month: Week 4 Highlights
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]
Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]
Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel
“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights
On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]
Read More… from 2025 Medicare Parts A & B Premiums and Deductibles
The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]
“The Power to Connect” has already joined the community for Alpha-1 Awareness in the first week in November! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 1 Highlights
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
November 1, 2024 Vaccines remain the best public health measure to protect people from COVID-19; slow transmission; and reduce the likelihood of […]
Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]
Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month!
Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]
Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1
Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]
The Alpha-1 Foundation was proud to partner for the 28th year with the American Lung Association (ALA) at the 40th […]
Michael Allen, Alpha and Support Group Co-Leader from Schenectady, New York continues his virtual fundraising campaign in 2024. The Alpha-1 […]
Photo (left to right): Judy Thomas, Karin Pittsley, Liz Chase, Lori Mitcheroney, Liz Reid, Joyce Croci, Michaela Perry On Saturday, […]
Read More… from MassAlpha Support Group Thanks Plasma Donors
