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Top Stories

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December 20, 2021

Updated COVID-19 Guidance & Recommendations for Alphas regarding the Omicron Variant

Emergence of Omicron CDC has been collaborating with global public health and industry partners to learn about Omicron, as we […]

Read More… from Updated COVID-19 Guidance & Recommendations for Alphas regarding the Omicron Variant

December 15, 2021

60+ Organizations Sign-On to Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

On behalf of the estimated 50 million Americans with autoimmune and immune-mediated diseases, the undersigned 64 organizations write to you […]

Read More… from 60+ Organizations Sign-On to Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease

December 8, 2021

Matsui Introduces Bipartisan Legislation to Support Access to Evidence-based Care for Rare Disease Patients

The Alpha-1 Foundation congratulates Haystack Project for their success in getting the Access to Rare Indications Act introduced yesterday, led […]

Read More… from Matsui Introduces Bipartisan Legislation to Support Access to Evidence-based Care for Rare Disease Patients

December 6, 2021

Organizations Submit Comments on Surprise Medical Billing

December 6, 2021 The Honorable Janet Yellen Secretary U.S. Department of the Treasury 1500 Pennsylvania Ave, NW Washington, DC 20220 […]

Read More… from Organizations Submit Comments on Surprise Medical Billing

December 6, 2021

Letter in Support of HR 5801

November 29, 2021 The Honorable A. Donald McEachin (D-VA) House of Representatives Washington, DC 20515 The Honorable Rodney Davis (R-IL) […]

Read More… from Letter in Support of HR 5801

December 1, 2021

Alpha-1 Awareness Month Recap: Week 4

November 30th marked the last day of Alpha-1 Awareness Month and this year was the most successful to date! WHAT A […]

Read More… from Alpha-1 Awareness Month Recap: Week 4

November 24, 2021

23rd Gordon L. Snider Critical Issues Workshop

The Alpha-1 Foundation hosted the virtual 23rd Gordon L. Snider Critical Issues Workshop entitled Liver Biomarkers and the Path to […]

Read More… from 23rd Gordon L. Snider Critical Issues Workshop

November 23, 2021

ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update

November 23, 2021- To stabilize future ZEMAIRA supply, CSL Behring has been evaluating long-term enhancements to our manufacturing capabilities including […]

Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update

November 23, 2021

Alpha-1 Awareness Month Recap: Week 3

As Thanksgiving quickly approaches, family and friends are gathering from across the country to support one cause: Alpha-1! The Alpha-1 […]

Read More… from Alpha-1 Awareness Month Recap: Week 3

November 16, 2021

Alpha-1 Awareness Month Recap: Week 2

November 15th marked the halfway point of 2021 Alpha-1 Awareness Month and this year’s campaign shows no signs of slowing […]

Read More… from Alpha-1 Awareness Month Recap: Week 2

November 15, 2021

2021 Fall Virtual Alpha-1 Lobby

The Alpha-1 Foundation convened the third Virtual Alpha-1 Lobby Day on Wednesday, November 10, 2021 during the annual Alpha-1 Awareness […]

Read More… from 2021 Fall Virtual Alpha-1 Lobby

November 9, 2021

Alpha-1 Awareness Month Recap: Week 1

November is finally here and with its arrival comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On […]

Read More… from Alpha-1 Awareness Month Recap: Week 1

November 1, 2021

Grab your sneakers… it’s time for the Alpha-1 Virtual Walk 2021!

November 1, 2021- The Alpha-1 Foundation Virtual Walk 2021 kicks off today and is off an amazing start! With over […]

Read More… from Grab your sneakers… it’s time for the Alpha-1 Virtual Walk 2021!

October 22, 2021

Coronavirus (COVID-19) Update: FDA Takes Additional Actions on the Use of a Booster Dose for COVID-19 Vaccines

For Immediate Release: October 20, 2021 Today, the U.S. Food and Drug Administration took action to expand the use of […]

Read More… from Coronavirus (COVID-19) Update: FDA Takes Additional Actions on the Use of a Booster Dose for COVID-19 Vaccines

October 22, 2021

CDC Expands Eligibility for COVID-19 Booster Shots

Today, CDC Director Rochelle P. Walensky, M.D., M.P.H., endorsed the CDC Advisory Committee on Immunization Practices’ (ACIP) recommendation for a […]

Read More… from CDC Expands Eligibility for COVID-19 Booster Shots

October 20, 2021

Alpha-1 Foundation stands with ATS regarding FDA Authorization of E-cigarette Product

“The Alpha-1 Foundation strongly agrees with the American Thoracic Society (ATS) position objecting to the FDA’s authorization of the tobacco-flavored […]

Read More… from Alpha-1 Foundation stands with ATS regarding FDA Authorization of E-cigarette Product

October 14, 2021

INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

“The update shared this week by Inhibrx on their Recombinant Alpha-1-antitrypsin (INBRX-101) is exciting news for the Alpha-1 Community. The […]

Read More… from INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

October 8, 2021

CSL Behring announcement on their product Zemaira

Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for […]

Read More… from CSL Behring announcement on their product Zemaira

September 30, 2021

The Alpha-1 Foundation selects new President and Chief Executive Officer

FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Scott Santarella as the new President and Chief Executive […]

Read More… from The Alpha-1 Foundation selects new President and Chief Executive Officer

September 24, 2021

FOR IMMEDIATE RELEASE: Celebrating 25 Years of Riding for Team Alpha-1: “Then and Now”

Through the eyes of Joe Reidy, Alpha and Participant for 25 years: First Autumn Escape to the Cape Bike Trek […]

Read More… from FOR IMMEDIATE RELEASE: Celebrating 25 Years of Riding for Team Alpha-1: “Then and Now”

September 24, 2021

FDA Authorizes Booster Dose of Pfizer-BioNTech COVID-19 Vaccine for Certain Populations

September 22, 2021- Today, the U.S. Food and Drug Administration amended the emergency use authorization (EUA) for the Pfizer-BioNTech COVID-19 […]

Read More… from FDA Authorizes Booster Dose of Pfizer-BioNTech COVID-19 Vaccine for Certain Populations

August 23, 2021

FDA Approves First COVID-19 Vaccine: Approval Signifies Key Achievement for Public Health

“We are pleased to hear that the Pfizer-BioNTech COVID-19 Vaccine has received full FDA approval.  We strongly recommend that everyone receive […]

Read More… from FDA Approves First COVID-19 Vaccine: Approval Signifies Key Achievement for Public Health

August 20, 2021

COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

A company that profits from the sale of tobacco products that cause COPD should not profit from the sale of […]

Read More… from COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

August 13, 2021

Coronavirus (COVID-19) Update: FDA Authorizes Additional Vaccine Dose for Certain Immunocompromised Individuals

Today, the U.S. Food and Drug Administration amended the emergency use authorizations (EUAs) for both the Pfizer-BioNTech COVID-19 Vaccine and […]

Read More… from Coronavirus (COVID-19) Update: FDA Authorizes Additional Vaccine Dose for Certain Immunocompromised Individuals

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