Filter:
“We are grateful for Vertex’s expedited and direct communication with the Alpha-1 Community in releasing the attached statement about discontinuing […]
“The announcement today of the collaboration between Takeda and Arrowhead for a licensure deal for ARO-AAT, a phase 2 investigational […]
To look at him, Don Davis seems fine. He has been a part of the Tunkhannock Area School District landscape […]
Dr. Edward N. Krapels, a resident of Andover, MA and Silver Lake, NH passed away on September 25th due to […]
Joyce Mary Joyce Finch, age 83, died early Tuesday, September 22, 2020 at her home in Greenville, Michigan. Joyce was […]
Faith in Public Health Guidance, Vaccine, and Treatment Approval Processes Must be Restored to Overcome the Pandemic WASHINGTON, September 22, […]
PRESS RELEASE Sept. 16, 2020 Arrowhead ARO-AAT Phase 2 Interim Results in Patients with Alpha-1 Liver Disease Demonstrate Improvements in […]
Read More… from Arrowhead ARO-AAT Phase 2 Interim Results in Patients with Alpha-1 Liver Disease
From the Desk of Miriam O’Day, President & CEO of the Alpha-1 Foundation: “It is with extreme disappointment that the […]
Read More… from Statements on Takeda Clinical Trial (TAK-883-3001)
September 8, 2020 The Honorable Cathy McMorris Rodgers U.S. House of Representatives Washington, D.C. 20515 Dear Representative McMorris Rodgers: On […]
Nine CEOs sign historic pledge to continue to make the safety and well-being of vaccinated individuals the top priority in […]
Read More… from BIOPHARMA LEADERS UNITE TO STAND WITH SCIENCE
September 4, 2020 Committee on Equitable Allocation of Vaccine for the Novel Coronavirus; National Academy of Medicine; National Academies of […]
Read More… from Vaccine Allocation NAS Advisory Group Letter
Tucked away under the trees at her Shelocta-area home, there’s a special place where Cathy Gould spends her days, writing […]
August 18, 2020 The National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI) has announced the award […]
Nazli Khodayari, PhD receives the 2020 John W. Walsh Translational Research Award for the research grant entitled “Novel Biomarkers for […]
Read More… from 2020 John W. Walsh Translational Research Award
Dear Secretary Azar: On behalf of the Plasma Protein Therapeutics Association (PPTA), we wish to commend the Department’s efforts to […]
What better way for the Alpha-1 community to thank plasma donors and staff than from the heart! Let them know […]
August 4, 2020– President Trump signed an Executive Order on Improving Rural Health and Telehealth Access. The purpose of the […]
Want to learn how to make your voice heard to change public policy while raising awareness for Alpha-1 Antitrypsin Deficiency? […]
Read More… from Advocacy Webinar Summer Series: Register today, to help change tomorrow for Alphas!
The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Jon Hagstrom. Jon Hagstom was diagnosed […]
Read More… from Alpha-1 Foundation welcomes new Board of Director, Jon Hagstrom
Register now for a great Alpha-1 fundraiser, Saturday, August 1, 2020 at 9:00 AM ET Clarissa (Chris) Riely started practicing […]
Read More… from Join Alpha, Chris Riely for a summer virtual Building Friends for a Cure Yoga Class
On July 17th, the COPD Community lost one of its best friends, Congressman John Lewis. We have all been aware […]
Re: Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening Dear Task Force Members: The Alpha-1 Foundation appreciates the opportunity […]
Read More… from Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening
In the light of the unfolding COVID-19 pandemic, there is urgent need for new therapies, particularly for critically ill patients. […]
Read More… from ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19
Individuals with the genetic disorder alpha-1 antitrypsin deficiency (AATD) are at risk of developing lung and liver disease. Patient induced […]
