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Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]
Read More… from Alpha-1 Foundation Mourns the Loss of Fred Walsh
Medicare patients in the Part D prescription drug program often face significant out-of-pocket costs early in the year while trying […]
Read More… from New Medicare Prescription Payment Plan – A Patient’s Guide
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The ERS International Congress 2024 is happening in Vienna, Austria, hosted by The European Respiratory Society (ERS). This is the largest […]
Celebrating 40 Years of the American Lung Association’s (ALA) Escape to the Cape and 28 Years of Partnership with the […]
Daniel Grimm spent decades as a certified professional driver of tractor-trailers, hauling loads up and down the East Coast. It […]
Read More… from Living well with Alpha-1: One man’s journey from truck driving to advocacy
Mark Brantly1, James Stocks2, Jorge Lascano1, Tammy Flagg1, Ann M. Jeffers2, Shuzi Z. Owens2, Torry A. Tucker2, Megan Devine2 Noga […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]
Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium
“For many years we have known that most kids with ZZ Alpha-1 do fine, but a few get very sick […]
Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]
Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article. Thank you to […]
Read More… from Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations
Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]
On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]
On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]
The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]
Read More… from Cones for a Cure: Double Scoop of Fun & Fundraising!
The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]
Read More… from The Alpha-1 Foundation Welcomes New Board Members
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]
Read More… from Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)
Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]
ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Today, Volume 11, Issue 3 of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (JCOPDF) was published online and included Recombinant Alpha-1 […]
Read More… from Recent Publication on INBRX-101 in Journal of the COPD Foundation
On Monday, May 20th over 160 attendees joined together in San Diego, California during the annual ATS International Conference to […]
Read More… from Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception
