Filter:
As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]
Read More… from Sharing Her Rare Disease Story: Betrice Coleman-Sweet
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
Full letter below: Dear Ms. Duran: We are writing to underscore the importance of the Centers for Medicare & Medicaid […]
Read More… from Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D
December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]
Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]
Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop
In late November, the Alpha-1 community gathered in person and virtually to share stories of hope, resilience, and progress. The […]
Read More… from 2024 Alpha-1 Awareness Month: Week 4 Highlights
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]
Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]
Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel
“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights
On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]
Read More… from 2025 Medicare Parts A & B Premiums and Deductibles
The Alpha-1 Gulf Coast Bike Trek 2024 took place on Saturday, November 2nd at St. Petersburg College in Clearwater, Florida. In partnership with […]
“The Power to Connect” has already joined the community for Alpha-1 Awareness in the first week in November! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 1 Highlights
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
November 1, 2024 Vaccines remain the best public health measure to protect people from COVID-19; slow transmission; and reduce the likelihood of […]
Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]
Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month!
