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Topic: Advocacy

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September 27, 2024

Advocacy Update

Miriam O’Day presented the “Advocacy Update” at the 2024 Indianapolis Alpha-1 Education Day. Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation […]

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Alpha-1 Patient Panel

Alpha-1 Patients: DC Young, Craig Hamilton & Lee Cropper presented the “Alpha-1 Patient Panel” at the 2024 Salt Lake City […]

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Saturday, June 8th, 2024 | Track 2: Policy & Advocacy

Jeanne Kushner, Senior Director of Communications at the Alpha-1 Foundation, presented “Policy & Advocacy” at the 2024 Alpha-1 Foundation National […]

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Saturday, June 8th, 2024 | Track 1: How to Advocate for Yourself as an Alpha-1 Patient

Dr. Michael Campos presented “How to Advocate for Yourself as an Alpha-1 Patient” at the 2024 Alpha-1 Foundation National Conference. […]

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Friday, June 7th, 2024: Alpha Empowerment Hour

Erin Carr, Dan Grimm, Jessica Brown, and Melissa Hale presented an “Alpha-1 Empowerment Hour” at the 2024 Alpha-1 Foundation National […]

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Doctor-Patient Conversation

Dr. Oliver McElvaney moderated a “Doctor-Patient Conversation” at the 2024 Seattle Alpha-1 Education Day. Oliver McElvaney, MD, PHD University of […]

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Patient Advocacy Webinar on “The Impact of the EU’s Substances of Human Origin (SOHO) Regulation on Alpha-1 Patients”

On 19 February 2024 Alpha-1 Global, in cooperation with Alpha-1 Europe Alliance, organised a webinar, which explored the impact of […]

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Alpha-1 Patient Panel

Cathey Henderson, Director of Patient Services, moderated an Alpha-1 Patient Panel at the 2024 Sacramento Alpha-1 Education Day. Alpha-1 Patient […]

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Advocacy Update

Miriam O’Day presented an “Advocacy Update” at the 2024 Sacramento Alpha-1 Education Day. Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation […]

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2024 State of Alpha-1 Advocacy

The 2024 State of Alpha-1 Programs was presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the […]

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Alpha-1 Advocacy and Public Policy: How to Make a Difference

Miriam O’Day presented “Alpha-1 Advocacy and Public Policy: How to Make a Difference” at the 2023 Raleigh Alpha-1 Education Day. […]

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Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate!

“Alpha-1 Foundation Research Registry and Alpha-1 Biomarker Consortium-Why You Should Participate” presented by Dr. Jeanine D’Armiento at the 2023 Denver […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Denver Alpha-1 Education […]

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Patient Involvement in Advocacy & Policy

“Patient Involvement in Advocacy & Policy” presented by Kinga Wojtowicz and Anton Stoyanov at the 2023 Alpha-1 Global 5th Research […]

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Alpha-1 Foundation Global Program Update

“Alpha-1 Foundation Global Program Update” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

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Opening Remarks and Alpha-1 Foundation Address – A1NC23

Saturday: “Opening Remarks and Alpha-1 Foundation Address” presented by Jon Hagstrom, Chair of Board of Directors at the Alpha-1 Foundation, […]

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Public Policy – A1NC23

Saturday, Track 2: “Public Policy” presented by Scott Santarella, President & CEO of the Alpha-1 Foundation, at the 2023 Alpha-1 […]

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Oxygen Reform Legislation – A1NC23

Saturday, Track 2: “Oxygen Reform Legislation” presented by Miriam O’Day, Senior Policy Advisor at the Alpha-1 Foundation, at the 2023 […]

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Alpha-1 Advocacy Access & Reimbursement – A1NC23

Saturday, Track 1: “Alpha-1 Advocacy Access & Reimbursement” moderated by Miriam O’Day, Senior Policy Advisor, Alpha-1 Foundation at the 2023 […]

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Conference Orientation for First-Time Attendees – A1NC23

Friday, Track 1: “Conference Orientation for First-Time Attendees” presented by Cathey Horsak Henderson, Director of Community Programs at the Alpha-1 […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Scott Santarella, President & CEO of the Alpha-1 Foundation Board of Directors, at the 2023 […]

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Alpha-1 Foundation Update

Alpha-1 Foundation Update presented by Peg Iverson, Member of the Alpha-1 Foundation Board of Directors, at the 2023 Orlando Alpha-1 […]

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2023 Alpha-1 State of the Union

Scott Santarella, President & CEO, Alpha-1 Foundation & Jon Hagstrom, Chair of the Board of Directors, Alpha-1 Foundation […]

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State of Alpha-1 Advocacy, Scott Santarella

State of Alpha-1 Advocacy presented by President & CEO of the Alpha-1 Foundation Scott Santarella at the 2023 Virtual Alpha-1 […]

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