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Topic: Advocacy

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December 8, 2022

Welcome & Alpha-1 Foundation Update

Scott Santarella, President & CEO, Alpha-1 Foundation Bethesda Alpha-1 Education Day November 13, 2022 […]

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Advocacy – Open Enrollment 2022

Leslie Martinez, Program Manager, Montgomery County Health Connection, Montgomery County Department of Health and Human Services Bethesda Alpha-1 Education Day […]

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Alpha-1 Foundation Welcome & Update.mp4

Jon Hagstrom, Chair of the Board of the Alpha-1 Foundation, welcomed the attendees of the Los Angeles Alpha-1 Education Day […]

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How to Advocate for Yourself as an Alpha or a Carrier

2022 Hybrid Alpha-1 National Conference Saturday, June 11, 2022 Speaker: D. Kyle Hogarth, MD […]

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Your Voice Matters, Advocating for your Priorities to Further Our Mission

Miriam O’Day, Senior Public Policy Advisor, and James Romano, Legislative Advisor, presented on the Alpha-1 Foundation’s advocacy efforts during the […]

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COVID-19 Update

Dr. Jeanine D’Armiento, Chair of the Board of Directors for the Alpha-1 Foundation, gave a an update on COVID-19 during […]

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Alpha-1 Foundation Update

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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Alpha-1 Foundation Update

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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Alpha-1 Foundation Update – February 12, 2022

Scott Santarella, President & CEO of the Alpha-1 Foundation gave his update on the Alpha- Foundation at the Alpha-1 Education […]

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COVID-19 Update

Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation provided the Alpha-1 community with a COVID-19 update […]

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Alpha-1 Foundation Update

Miriam O’Day gives the Alpha-1 Foundation Update during the Los Angeles Alpha-1 Education day on Saturday, February 29, 2020. […]

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New Approaches in Alpha-1

Igor Barjaktarevic, MD, PhD discusses new approaches in Alpha-1 during the Los Angeles Alpha-1 Education day on Saturday, February 29, […]

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Alpha-1 Foundation Update

Scott Santarella, President & CEO of the Alpha-1 Foundation, kicked off the November 6, 2021 Virtual Alpha-1 Education Day with […]

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COVID-19 Update

Robert A. Sandhaus, MD, PhD, FCCP, gave the Alpha-1 and COVID-19 update at the conclusion of the November 6, 2021 […]

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2022 Open Enrollment Webinar

[…]

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Research Registry Update & Q&A

Jeanine D’Armiento, MD, PhD, gave her Alpha-1 Foundation Research Registry Update at the October 2, 2021 Virtual Alpha-1 Education Day. […]

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COVID-19 Update and Q&A

Robert A. Sandhaus, MD, PhD, FCCP, gave his COVID-19 Update and answered questions at the live Q&A session at the […]

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Alpha-1 101: How to Have Your Voice Heard

September 14, 2021 – Miriam O’Day and James Romano give an overview of Alpha-1 advocacy activities in anticipation of the […]

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COVID-19 & Vaccine Townhall

Mark Brantly, MD, Jeanine D’Armiento, MD, PhD, Benjamin Miko, MD, & Robert A. Sandhaus, MD, PhD, FCCP all give presentations […]

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Alpha-1 Foundation and Research Registry Update

Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation gave her update on the Alpha- Foundation and […]

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Takeda Sponsor Presentation and Keynote

2021 Virtual Alpha-1 National Conference June 10, 2021 Speaker: Loretta LaRoche, Renowned Humorist, Stress Management Expert and Star of Emmy-Winning […]

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Vertex Sponsor Presentation and Keynote

2021 Virtual Alpha-1 National Conference June 12, 2021 Speaker: Stephen Ezell, VP, Global Innovation Policy, Information Technology and Innovation Foundation […]

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Grifols Sponsor Presentation and Keynote

2021 Virtual Alpha-1 National Conference June 11, 2021 Speaker: Dane Jensen, CEO, Third Factor […]

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AlphaNet Sponsor Presentation and Keynote

2021 Virtual Alpha-1 National Conference June 10, 2021 Speaker: Mark Delvaux, President & CEO, AlphaNet, and Robert A. Sandhaus, MD, […]

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