WHO: The Alpha-1 Community! Every Alpha, family member, caregiver, friend, healthcare professional researcher and industry member can participate. The Alpha-1 Foundation in conjunction with the National Organization for Rare Disorders (NORD) will spread awareness about Alpha-1 on Rare Disease Day and help prepare Alphas to get involved in the days leading up to it.
WHAT: Rare Disease Day takes place on the last day of February each year to raise awareness about rare diseases and their impact on patients’ lives. The Alpha-1 Foundation is proud to partner with organizations around the globe to promote awareness.
WHERE: ANYWHERE! Be part of the social media campaign to show your support.
WHEN: Saturday, February 29, 2020
WHY: To increase awareness of Alpha-1 and rare diseases.
HOW: Wear your rare disease day limited edition Alpha-1 t-shirt and post a picture of yourself on social media with the hashtags: