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It is with great sadness that we remember Arran, a member of the Alpha-1 Global community (and Alpha-1 advocate), whose life […]
Read More… from The Alpha-1 Community Remembers Arran Strong
The Alpha-1 Foundation (A1F) hosted the 2026 A1F National Conference from June 5th through June 7th in San Diego, California. As the largest annual […]
The annual A1F Grant Awards Reception took place last night in Orlando, FL during the American Thoracic Society (ATS) International […]
It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud
Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]
Read More… from A1F Building Friends for a Cure Training: A Weekend of Growing Together
Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
Read More… from Medicare Drug Price Negotiation Program Engagement Opportunities
Empowering Voices. Inspiring Action. Elevating Patient-Centered Work. […]
Read More… from Launch of the A1F Fred C. Walsh Speaker Bureau
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
Read More… from Alpha-1 Foundation: Rationale for EU Strategic Engagement
Last month, the University of Kentucky was officially designated as a Clinical Resource Center (CRC) by the Alpha-1 Foundation. Alpha-1 […]
On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]
Read More… from Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational
Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]
Read More… from Alpha, Betsy Scher Shares Sweet Support for Alpha-1
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]
The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th through June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]
Read More… from Alphas, Take Action Today! June 2025 Advocacy Action Alerts
OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
