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It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud
Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]
Read More… from A1F Building Friends for a Cure Training: A Weekend of Growing Together
Happy St. Patrick’s Day! The Alpha-1 Foundation has been celebrating St. Patrick’s Day as a community since 2008. Over 300 guests joined together […]
Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]
Read More… from Alpha-1 antitrypsin deficiency: A persistently underrecognized condition
A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
Read More… from Medicare Drug Price Negotiation Program Engagement Opportunities
“The continuation of achieving our goals hinges on detecting, testing, finding and helping every Alpha. We have increased our efforts […]
The second Latin American Alfa-1 Meeting titled “Consolidando avances, ampliando horizontes”, (“Consolidating Advances, Expanding Horizons”) was held on December 10, 2025, in Buenos Aires, Argentina. Organized by Alfa1 Argentina and supported by […]
Empowering Voices. Inspiring Action. Elevating Patient-Centered Work. […]
Read More… from Launch of the A1F Fred C. Walsh Speaker Bureau
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
Read More… from Alpha-1 Foundation: Rationale for EU Strategic Engagement
“Thank you to the Alpha-1 patients that participated in this important clinical trial, InnovAATe. It is because of the dedication of patients […]
Read More… from Kamada Announces Discontinuation of its Phase 3 Inhaled AAT Clinical Trial
Last month, the University of Kentucky was officially designated as a Clinical Resource Center (CRC) by the Alpha-1 Foundation. Alpha-1 […]
On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]
Read More… from Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational
Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]
Read More… from Alpha, Betsy Scher Shares Sweet Support for Alpha-1
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]
The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th through June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
