Filter:
The U.S. Food and Drug Administration, a division within the U.S. Department of Health and Human Services (HHS), today announced […]
Read More… from FDA Launches Initiative to Advance Rare Disease Drug Development
Creating viable permanent cures for genetic disease has proved challenging, but some promising treatments are coming. By Gary Sernovitz Three years […]
It is with great sadness that we remember Arran, a member of the Alpha-1 Global community (and Alpha-1 advocate), whose life […]
Read More… from The Alpha-1 Community Remembers Arran Strong
The Alpha-1 Foundation (A1F) hosted the 2026 A1F National Conference from June 5th through June 7th in San Diego, California. As the largest annual […]
The annual A1F Grant Awards Reception took place last night in Orlando, FL during the American Thoracic Society (ATS) International […]
It is with great sadness that we share the news that longtime Alpha-1 Foundation (A1F) supporter and AlphaNet coordinator Deborah (Debbie) LaBud […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Alpha Deborah LaBud
Alpha-1 family members, friends, and caregivers from across the country came together for a meaningful and memorable Alpha-1 Foundation (A1F) Building Friends […]
Read More… from A1F Building Friends for a Cure Training: A Weekend of Growing Together
Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
Read More… from Medicare Drug Price Negotiation Program Engagement Opportunities
Empowering Voices. Inspiring Action. Elevating Patient-Centered Work. […]
Read More… from Launch of the A1F Fred C. Walsh Speaker Bureau
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
Read More… from Alpha-1 Foundation: Rationale for EU Strategic Engagement
Last month, the University of Kentucky was officially designated as a Clinical Resource Center (CRC) by the Alpha-1 Foundation. Alpha-1 […]
On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]
Read More… from Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational
Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]
Read More… from Alpha, Betsy Scher Shares Sweet Support for Alpha-1
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]
The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th through June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]
Read More… from Alphas, Take Action Today! June 2025 Advocacy Action Alerts
