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The medical leadership team at the Alpha-1 Foundation has provided an updated Statement for the Alpha-1 Antitrypsin Deficiency Community: Understanding the […]
On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Read More… from A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational
The Alpha-1 Foundation (A1F) is proud to host the 2025 A1f National Conference from June 6th thru June 8th in Miami, Florida. […]
Read More… from The 2025 A1F National Conference Celebrates 30 Years
On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco […]
Read More… from A1F recognizes 2025 Grant Award Recipients during ATS
On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]
Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino
An exciting national effort is making it easier for patients and caregivers to participate in clinical research. The Champions for Change […]
Honoring Three Decades of Research & Collaboration The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]
On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
FOR IMMEDIATE RELEASE MAY 1, 2025- “I scream, you scream, we all scream for Ice Cream for Alpha-1”. The Alpha-1 […]
Read More… from Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1
The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]
Read More… from A1F signs-on urging Congress to cosponsor the SOAR Act
Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]
Read More… from Korro Bio provides update on progress made: KRRO-110
Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]
Read More… from Mutated DNA Restored to Normal in Gene Therapy Advance
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
Watch her video interview here. New data from the open-label extension of the phase 2b SEQUOIA study of fazirsiran support […]
Read More… from Virginia Clark, MD: Understanding Fazirsiran’s Potential in AATD Liver Disease
The Centers for Medicare & Medicaid Services (CMS) remains committed to supporting a robust Marketplace Open Enrollment Period so millions […]
December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]
Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]
Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop
In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]
FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]
Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]
Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]
Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights
