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Category: News

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November 19, 2024

Patty Tew shares her Alpha-1 story in the Orlando Sentinel

Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]

Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel

November 13, 2024

2024 Alpha-1 Awareness Month: Week 2 Highlights

“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]

Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights

November 13, 2024

2025 Medicare Parts A & B Premiums and Deductibles

On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]

Read More… from 2025 Medicare Parts A & B Premiums and Deductibles

November 4, 2024

October 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from October 2024 PubMed Articles

November 1, 2024

COVID-19 Update for the Alpha-1 Community

November 1, 2024 Vaccines remain the best public health measure to protect people from COVID-19; slow transmission; and reduce the likelihood of […]

Read More… from COVID-19 Update for the Alpha-1 Community

October 31, 2024

“The Power to Connect”: November is Alpha-1 Awareness Month! 

Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]

Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month! 

October 17, 2024

Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]

Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

October 11, 2024

FDA Authorizes Marketing of First Home Flu and COVID-19 Combination Test Outside of Emergency Use Authorities

Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]

Read More… from FDA Authorizes Marketing of First Home Flu and COVID-19 Combination Test Outside of Emergency Use Authorities

October 7, 2024

Raising Awareness One Race at a Time

Michael Allen, Alpha and Support Group Co-Leader from Schenectady, New York continues his virtual fundraising campaign in 2024. The Alpha-1 […]

Read More… from Raising Awareness One Race at a Time

October 7, 2024

MassAlpha Support Group Thanks Plasma Donors

Photo (left to right): Judy Thomas, Karin Pittsley, Liz Chase, Lori Mitcheroney, Liz Reid, Joyce Croci, Michaela Perry On Saturday, […]

Read More… from MassAlpha Support Group Thanks Plasma Donors

October 4, 2024

In memory of Fred Walsh, beloved Alpha and Friend

It is with great sadness that we share the news that Alpha-1 community leader Fred Walsh passed away peacefully on […]

Read More… from In memory of Fred Walsh, beloved Alpha and Friend

October 3, 2024

September 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from September 2024 PubMed Articles

October 2, 2024

Recognizing World Oxygen Day, October 2, 2024

World Oxygen Day celebrates everyone who benefits from oxygen therapy. From babies to adults, millions of people rely on oxygen […]

Read More… from Recognizing World Oxygen Day, October 2, 2024

September 30, 2024

Alpha-1 Foundation Mourns the Loss of Fred Walsh

Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]

Read More… from Alpha-1 Foundation Mourns the Loss of Fred Walsh

September 19, 2024

New Medicare Prescription Payment Plan – A Patient’s Guide

Medicare patients in the Part D prescription drug program often face significant out-of-pocket costs early in the year while trying […]

Read More… from New Medicare Prescription Payment Plan – A Patient’s Guide

September 10, 2024

August 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from August 2024 PubMed Articles

August 26, 2024

Inhaled alpha-1-antitrypsin (AAT) restores lower respiratory tract protease- antiprotease homeostasis and reduces inflammation in AAT-deficient individuals: A randomized phase 2 study 

Mark Brantly1, James Stocks2, Jorge Lascano1, Tammy Flagg1, Ann M. Jeffers2, Shuzi Z. Owens2, Torry A. Tucker2, Megan Devine2 Noga […]

Read More… from Inhaled alpha-1-antitrypsin (AAT) restores lower respiratory tract protease- antiprotease homeostasis and reduces inflammation in AAT-deficient individuals: A randomized phase 2 study 

August 14, 2024

July 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from July 2024 PubMed Articles

August 6, 2024

C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]

Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

August 5, 2024

Biomarkers Associated with Future Severe Liver Disease in Children with Alpha-1 Antitrypsin Deficiency

“For many years we have known that most kids with ZZ Alpha-1 do fine, but a few get very sick […]

Read More… from Biomarkers Associated with Future Severe Liver Disease in Children with Alpha-1 Antitrypsin Deficiency

July 25, 2024

Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines

Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]

Read More… from Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines

July 23, 2024

Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations

Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article.  Thank you to […]

Read More… from Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations

July 10, 2024

Raising Alpha-1 Awareness in Oregon

Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]

Read More… from Raising Alpha-1 Awareness in Oregon

July 10, 2024

Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]

Read More… from Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

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