Finding a cure for Alpha-1 and improving the lives of those affected
FEATURES
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OUR IMPACT
We’ve invested more than $97 million into Alpha‑1 research and related programs
From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.
$97M
in research funded
129
researchers funded
10X
the clinical trials within a decade
SPOTLIGHT
Exciting research developments for Alpha-1 Kids
“We are at a new and exciting stage in understanding children with Alpha-1 Antitrypsin Deficiency. For the first time, we are developing tools to predict which kids are at high risk of future severe liver disease. This is thanks to the cooperative studies of the Alpha-1 Foundation and the NIH Childhood Liver Disease Research Network (ChiLDReN). We are now better equipped to help families prepare for the future and to begin to guide high-risk kids into the new generation of liver therapy trials to eventually cure this disease,” stated Dr. Jeffrey Teckman.
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