Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested more than $97 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$97M

in research funded

129

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Raising Alpha-1 Awareness in Oregon

Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]

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July 10, 2024
Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]

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July 10, 2024
2024 Bettina B. Irvine Invitational Classic

On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

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July 3, 2024
Batter Up… It’s time to Strike Out Alpha-1!

Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]

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July 3, 2024
Cones for a Cure: Double Scoop of Fun & Fundraising!

The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]

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July 2, 2024
The Alpha-1 Foundation Welcomes New Board Members

The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]

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July 2, 2024
Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)

The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]

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July 2, 2024
Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants

ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]

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June 18, 2024
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SPOTLIGHT

Exciting research developments for Alpha-1 Kids

“We are at a new and exciting stage in understanding children with Alpha-1 Antitrypsin Deficiency. For the first time, we are developing tools to predict which kids are at high risk of future severe liver disease. This is thanks to the cooperative studies of the Alpha-1 Foundation and the NIH Childhood Liver Disease Research Network (ChiLDReN). We are now better equipped to help families prepare for the future and to begin to guide high-risk kids into the new generation of liver therapy trials to eventually cure this disease,” stated Dr. Jeffrey Teckman.

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