Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]

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October 17, 2024
FDA Authorizes Marketing of First Home Flu and COVID-19 Combination Test Outside of Emergency Use Authorities

Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]

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October 11, 2024
Escape to the Cape 2024

The Alpha-1 Foundation was proud to partner for the 28th year with the American Lung Association (ALA) at the 40th […]

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October 9, 2024
Raising Awareness One Race at a Time

Michael Allen, Alpha and Support Group Co-Leader from Schenectady, New York continues his virtual fundraising campaign in 2024. The Alpha-1 […]

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October 7, 2024
MassAlpha Support Group Thanks Plasma Donors

Photo (left to right): Judy Thomas, Karin Pittsley, Liz Chase, Lori Mitcheroney, Liz Reid, Joyce Croci, Michaela Perry On Saturday, […]

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October 7, 2024
In memory of Fred Walsh, beloved Alpha and Friend

It is with great sadness that we share the news that Alpha-1 community leader Fred Walsh passed away peacefully on […]

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October 4, 2024
September 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

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October 3, 2024
Recognizing World Oxygen Day, October 2, 2024

World Oxygen Day celebrates everyone who benefits from oxygen therapy. From babies to adults, millions of people rely on oxygen […]

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October 2, 2024
Alpha-1 Foundation Mourns the Loss of Fred Walsh

Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]

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September 30, 2024
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SPOTLIGHT

In Memory of Fred Walsh

“Fred was the quintessential Alpha, always willing to lend an ear, offer guidance and advice, and help all Alphas wherever they were in their journey. He was a champion of the Alpha-1 Foundation and AlphaNet missions, and his positive spirit, warmth, and passion are a legacy that we can all aspire to,” said Scott Santarella, President and CEO, Alpha-1 Foundation.

Fred’s legacy, rooted in compassion, advocacy, and community, will undoubtedly inspire future generations of Alphas to connect, support, and strive for a brighter future.

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