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Get StartedFrom funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.
in research funded
researchers funded
the clinical trials within a decade
“We are at a new and exciting stage in understanding children with Alpha-1 Antitrypsin Deficiency. For the first time, we are developing tools to predict which kids are at high risk of future severe liver disease. This is thanks to the cooperative studies of the Alpha-1 Foundation and the NIH Childhood Liver Disease Research Network (ChiLDReN). We are now better equipped to help families prepare for the future and to begin to guide high-risk kids into the new generation of liver therapy trials to eventually cure this disease,” stated Dr. Jeffrey Teckman.
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