Finding a cure for Alpha-1 and improving the lives of those affected

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OUR IMPACT

We’ve invested over $100 million into Alpha‑1 research and related programs

From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.

$100M

in research funded

130

researchers funded

10X

the clinical trials within a decade

TOP STORIES

NORD Webinar: Open Enrollment Essentials for Rare Disease Families

Health insurance is changing …are you ready? Join us on Nov. 19 at 2 p.m. ET for a Zoom webinar […]

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November 13, 2025
Fazirsiran and the Future of RNA Therapy in AATD Liver Disease, With Pavel Strnad, MD

Strnad emphasizes the promise offered by RNA therapeutics in liver disease and what potential fazirsiran may hold for AATD liver […]

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November 13, 2025
Alpha-1 Awareness Month: 2025 Week 2 Recap 

November continues to raise awareness and funds for Alpha-1. This week focuses on the theme of INNOVATION. A1F is known […]

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November 12, 2025
A1F raises awareness at AASLD: The Liver Meeting

The annual American Association for the Study of Liver Diseases (AASLD) The Liver Meeting took place from November 7-11, 2025 […]

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November 12, 2025
Important things to know about telehealth as the government shutdown is ending

During COVID-19, Congress temporarily allowed Medicare to pay for telehealth visits much more broadly including visits at home, in cities […]

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November 12, 2025
Important Medicare Update for 2026 – Please Read!

If you or someone you know has Medicare Advantage (MA) coverage, please take a few minutes to check what’s changing for 2026. […]

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November 10, 2025
Alpha-1 Awareness Month: 2025 Week 1 Recap

November 2025 kicked off with incredible energy and creativity from the Alpha-1 community coast to coast! Teams walked, paraded, and […]

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November 5, 2025
November is Alpha-1 Awareness Month 

November is Alpha-1 Awareness Month, a 30-day initiative that encourages the Alpha-1 community to share stories and resources while raising […]

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October 31, 2025
3rd Annual Alpha-1 Gulf Coast Ride in Dunedin, FL 

The sun was shining over beautiful Dunedin, Florida, as the Alpha-1 Foundation (A1F) once again joined forces with the American Lung Association (ALA) for […]

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October 30, 2025
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SPOTLIGHT

Alpha-1 Awareness Month & the A1F Virtual Walk

During Alpha-1 Awareness Month in November, the Alpha-1 community joins the annual A1F Virtual Walk to raise funds and awareness for Alpha-1. Though many participate to move the mission forward, others, like Team Steve led by Memory Whitlock and her family, also walk in honor of their loved ones.

“After losing Steve, my kids and I knew how important it was to continue the journey of finding a cure. For the past ten years, we have promoted our walk with the love and support of family, friends, and our community, and have been successful in raising funds to support Alpha-1 research. I encourage anyone affected by Alpha-1 to help find a cure.” – Memory Whitlock

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