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Tag: alpha-1 antitrypsin deficiency

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December 17, 2025

Kamada Announces Discontinuation of its Phase 3 Inhaled AAT Clinical Trial

“Thank you to the Alpha-1 patients that participated in this important clinical trial, InnovAATe. It is because of the dedication of patients […]

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October 13, 2025

2026 Medicare Open Enrollment Webinar For Alphas

Mark Your Calendars! Medicare Open Enrollment happens from October 15th – December 7th and is the time each year when […]

Read More… from 2026 Medicare Open Enrollment Webinar For Alphas

October 8, 2025

Escape to the Cape 2025 

The Alpha-1 Foundation’s (A1F) 30th anniversary was nothing short of inspirational at the American Lung Association’s (ALA) Escape to The […]

Read More… from Escape to the Cape 2025 

September 26, 2025

Guidance for Alphas on Adult Seasonal Respiratory Vaccines

It is important for Alphas to be up-to-date on their seasonal vaccines. AlphaNet has provided a chart to keep you […]

Read More… from Guidance for Alphas on Adult Seasonal Respiratory Vaccines

September 26, 2025

Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

Early September, Alpha-1 Foundation (A1F) advocates from across the country gathered in Washington, DC, for a Lobby Day bringing the […]

Read More… from Alphas Go to Washington, DC: Momentum Builds for Home Infusion and Oxygen Access

September 25, 2025

A1F Endorses Safe Step Act Patient Protection Bill

The Alpha-1 Foundation proudly joins the broad coalition of more than 200 organizations endorsing the Safe Step Act and stand […]

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September 12, 2025

A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]

Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program

March 25, 2020

Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients

Because of COVID-19’s impacts on the lungs, the U.S. Alpha-1 Foundation has provided detailed, specific guidance for patients who have alpha […]

Read More… from Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients

March 17, 2020

The FDA has granted Emergency Use Authorization for two commercially developed coronavirus tests– providing fast results within 4 hours.

Shortly after the FDA granted an Emergency Use Authorization to its first commercially developed coronavirus test—developed by Roche for use […]

Read More… from The FDA has granted Emergency Use Authorization for two commercially developed coronavirus tests– providing fast results within 4 hours.

March 17, 2020

NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind

For many immunocompromised people, social distancing isn’t a new endeavor. Alpha-1 Antitrypsin Deficiency is sometimes called an “invisible disability”. This […]

Read More… from NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind

February 25, 2020

Are You Informed: Clinical Trials

https://www.alpha1.org/alphas-friends-family/resources/clinical-trials/ A clinical trial is a research study in which one or more human subjects are prospectively assigned to one […]

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February 3, 2020

2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies

Recent international reports have highlighted the emergence of a new coronavirus in Wuhan, Hubei Province, China. The 2019 Novel Coronavirus […]

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January 31, 2020

The Alpha-1 Foundation celebrates its 25th anniversary

Miami, January 31, 2020 – The Alpha-1 Foundation is proud to celebrate its 25th Anniversary. On January 31, 1995, the […]

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January 29, 2020

Grifols’s Prolastina approved for use in Denmark

The Alpha-1 Foundation is proud to report that multinational pharmaceutical manufacturer Grifols also received approval by the Danish Medicines Council […]

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January 13, 2020

Jonathan Maidment goes for the Triple Crown of Hiking

Miami, Jan. 13, 2020 – Jonathan Maidment will return to the trails again in 2020! He is pleased to announce […]

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January 8, 2020

Q&A: Alphas, seasonal flu and winter wellness

Cold weather conditions can worsen symptoms for lung affected Alphas and for patients with chronic obstructive pulmonary disease (COPD), as […]

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January 5, 2020

The Celtic Connection 2020

Celebrate Irish Heritage by observing St. Patrick’s Day with friends and family to benefit Alpha-1 research and programs! Enjoy the […]

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